Re: Intergel update

From: Helen Dynda (olddad66@runestone.net)
Sat Sep 4 15:41:30 1999


Sue Ann, I would also be interested in information available regarding ML Laboratory's clinical trial of Adept in the United States. I had a hysterectomy in 1972 so I know that I do not qualify for the Intergel clinical trials. You can either post this information here or email me direct. Thank you!!

I have really appreciated your willingness to share your experience. I do have two questions: Did you have a laparotomy or a laparoscopy?" and "At what point did you find out that Intergel was used in your surgery - and not a placebo?"

At Fri, 3 Sep 1999, Sue Ann Murray wrote: >>
>>For anyone who might be interested, I was talking to the clinical trials
>>nurse and she found out that Lifecore (the makers of intergel/lubricoat)
>>will fly any eligible patient out to LA to take part in the study there if
>>there is no trial site nearby. (I did mine in Pittsburgh, but don't know
>>where other sites might be.) What I can tell you about qualifying for the
>>trial is that you can't have had a hysterectomy, and you have to have at
>>least 4 but no more than 12 adhesions when they get in there. I'm not sure
>>about other health considerations, but I have other health problems and I
>>still qualified. Just keep in mind that it's still a 50-50 chance of
>>getting the gel or a simple saline solution instead.
>> Although I did find out from Anne, who had contacted the nurse before,
>>that there is another study for women who have had hysterectomies with
>>another liquid made by some company in England. I can try and find out
>>more information if anyone is interested or give you the nurse's e-mail and
>>you can contact her directly.
>> Now for a disclaimer: I put my own experience on the board originally
>>just to be helpful and to share my experience, which so far has been good,
>>with the intergel. I still think six months will be a better time-frame for
>>judging success. And I mentioned the trial in the event that someone else
>>might be interested and could be helped by it. However, Lifecore discovered
>>through the trials nurse that I had been sharing this information and is now
>>offering me a commission for anyone I "recruit". But I don't want anyone to
>>think that I am "recruiting" anyone. I have not contacted Lifecore directly
>>or asked for anything. (It was the trials nurse who suggested it to them).
>>But you can contact the nurse or Lifecore directly and I will give you those
>>addresses and you DO NOT have to mention my name or where you got the
>>information. I have shared their web-site address before and I will share
>>it again or you can find it searching on your own. I am simply trying to be
>>helpful. But in case anyone would find out about it or was wondering, I
>>don't want anyone to think I'm doing this for any other reason than to be
>>helpful. Whew-- well got that off my chest!
>>
>> I hope all are having a good day and enjoy the holidays!
>>
>>Sue Ann
>
>Sue Ann,I may be interested in the trials that deal with adhesions after
>hysterectomy.If you would e-mail me the nurses e-mail address I would
>like to at least talk to her about it and see what it is all
>about.Thanks "FRIENDS THAT STICK TOGETHER" PEGGY


Enter keywords:
Returns per screen: Require all keywords: