Re: toni-fears
From: toni welsh (twelsh1@webtv.com)
Mon Oct 25 09:14:59 1999
At Mon, 25 Oct 1999, Gina wrote:
>
>Hi Toni,
>I sure do understand your fears & why you have them! (It is same for me
>in my family with bowel problems, and cancer running in the family and I
>have pretty much had everything my mom had so far, and she died of
>cancer at 52. I'm 36).
>
>I am sure you are telling your docs of your family history correct? I am
>surprised that you aren't seeing a GI doc regularly to monitor your
>situation? I think if it were me, I would insist on being followed-up. I
>know a few years ago I had severe IBS (that I now believe was caused by
>adhesions). I was seeing a specialist almost monthly for years for this
>problem, I was followed VERY closely. No one even mentioned adhesions
>then, or I could have been saved 8 years of suffering from it. The
>adhesions on my bowels were removed in my last surgery 6 weeks ago.
>
>2 weeks ago I had serious bowel troubles, and pain and pressure. I am
>convinced I have new adhesions, this time on my lower intestines in
>pelvic area. It took me a week of taking laxatives, and an ER visit,
>plus an enema morning and night daily, before I started to get relief. I
>would suggest you try enemas also. It is less destructive than
>laxatives.
>Also try metamucil 2x a day, follow each glass with a FULL glass of
>water. Try to get away from laxatives such as senna, x-lax, etc. Those
>make things worse and don't promote a healthy bowel environment at all.
>Also if you could eat a salad every day, it would help.
>
>My bowels are now moving daily, but are a little sluggish (takes 3 days
>to eliminate a specific meal). I believe the zantac prescription I take
>for the suspected stomach ulcer, is causing the little bit of sluggish
>bowel constipation I still have. Today I am seeing a doc to switch
>medicines (tagamet supposedly doesn't have that side effect, zantac
>does).
>
>Hope this helps?
>Gina
>
>>yesterda I could
>>not even walk and to try to move the pain and costricting pain was
>>terrible. I have not gone to the bathroom for awhile, and I do think
>>that was part of the problem, but some of my drs just do not listen to
>>me, if I do not take a laxative of some sort, and they tell me senekot
>>being a vegetable laxative, will not hurt my bowel, I do not go. I am
>>feeling now my bowel has become reliant on laxatives.
>>
>>last week I took it on monday night, and the cramps kept me awak for 3
>>hours, and finally I did go, but it hurts to ave a bowel movement.
>>People who do not ave this problem do not understand the terrible pain.
>>For a lot of people it is just normal to go everyday. They do not
>>understand my fear, My mother dies after an epeisode kind of a bowel
>>obstruction, but I know now she had a different situatio. her bowel
>>died, and te blood supply was cut off to her bowel, and the drs kept
>>telling her it was the flu. Well she had 3 surgeries in 3 days 6 hours
>>long, and we lost her. She was very ill and I know this. We did not
>>know it then, she trusted her drs. WRONG!
>>
>>Well we lost another family member, he was 70 years old, but he had a
>>colonoscopy in June, and the dr DID tell him he could not get the scope
>>in, and he did have a blockage, well he was told to see a surgeon, and
>>he didn't. he got sicl on a Sunday, and they had to remove 7 inches of
>>his bowel, but he had already develped an infection, they put a
>>temporarycolostomy on him and gave him 48 hours and they would have to
>>go back in, well 28 hours later they performed emergency urgery again,
>>and he died he next night. Tis WAS a bowel obstruction that killed him
>>
>>My feras a so real and strong, and I am extremely scared of ANYMORE
>>surgery unless there is an obstruction, but when you have this happen in
>>your family so many times, and crohns disease in your son and sister the
>>fears are greater, I am scared, and very scared. Today I am feeling
>>better, but I am convinced that I am ahving partial obstructions at
>>times, do to the extreme pain I get at times. Do any of you understand
>>this fear, or am I crazy?
>>
>>I hope today finds you all happy, I am to the poit now where I do not
>>even feel like going out too often, and that is not me. I guess I just
>>want to feel good again, and time keeps going on. when is some one
>>going to find a way to help us. Boy I did not expect this to be so
>>long, sorry!
>>
>>Love to all,
>>Toni
Gina, thank you so uch for your caring post. I have been treated fir
IBS for years, they changed te Levbid Itook for raninitide, it is a
generic for zantac. On top of that being constipating I have been on
narcotics for 7 months now. Seems every med I take it is constipating,
cannnot win.
This morning I woke up with severe cramping , and still my bowels have
not moved. When I get those cramping pains and they are very strong, I
wait a little while, and even though it s very painful just to tr to
relief it, the gas is extremely hardto get out. This is all that has
come ut so far, not to sound gross, but that is the only way to explain
this to drs. I drank a large glass of prune juice which should work for
me soon. But this is why I feel I ave had partal obstructions, due to
the terrible hard pains after a laxative, I had 4 senekot and 2 colace
before bed. It works for awhile, then I go back on duphalc which is a
prescription syrup, this is safe to take forever, but it works for
awhile too, then I have to depend on something else. I sometimes feel
so discouraged I cannot tand it Gina, but something keeps us going. Now
the thought that something may work for us someday. By the waywith all
this on my mid, I am prod to say it is now a full month for no
cigarettes, it got rough Saturday, but I made it through tat day! Back o
the patch, it DOES help! I hope you feel better soon, Gina, I care too!
Toni