Re: Susan needs a new doctor

From: Susan_OR (Susan_OR@iwon.com)
Sun Feb 13 12:54:54 2000


Hi Karen,

Thanks for the advice. I am taking Naproxen for inflammation. It seems to work the best for me...I've taken just about every one out there in my quest for relief. Unfortunately, the only drugs that really seem to give me a bit of relief are narcotics. So...I only get occasional relief. I'm so frustrated and getting desperate!! I'm starting a new job tomorrow and think I must surely be crazy to do that right now. I can't even take care of my son and home because of the pain...and I'm going to take on a job?

My doctor is saying "wait and see" because she's hoping that my pain is still residual pain from my hysterectomy. I had it the end of September so it wasn't too long ago. I really think that the amount of pain I'm having is excessive though. I just don't know how to make the docs understand that. I don't know what it's going to take to make them understand how much I'm suffering. I try really hard to just live through the pain and try not to complain about it all the time because I'm driving everyone crazy with that...but if I'm not complaining, and trying to keep going...everyone assumes the pain is gone.

It's so frustrating!!

Take Care, Susan

At Sat, 12 Feb 2000, Karen Kaplan wrote: >
>Susan: I feel for you as another ARD sufferer who also had to cope with
>cancer.
>Tylenol may not help because it only raises your pain threshold and does
>nothing for inflammatory pain. Can you try Bayer Arthritis strength aspirin
>with enteric coating instead (it will dissolve in your small bowel and avoid
>irritating your stomach)? But, you should find a a doctor who will at
>least help you cope with your pain while you "wait and see" My former
>doctors said that about my bowel dysfunction. What does she think will
>happen if you wait?
>Karen

>>----- Original Message -----
>From: Susan_OR <Susan_OR@iwon.com>
>To: Multiple recipients of list ADHESIONS <adhesions@forum.obgyn.net>
>Sent: Friday, February 11, 2000 9:14 PM
>Subject: Wow! I'm not crazy!!
>
>> I am so thankful to have stumbled upon this site today. I'm not the
>> only one to have this pain after surgery! I've had 3 abdominal surgeries
>> in the past year. The last surgery was a total abdominal hysterectomy
>> caused by invasive cervical adenocarcinoma. After my first surgery I
>> started having some unexplained pain that has just gotten worse with
>> each surgery. It's at an all time high right now. The CT scan didn't
>> show anything and my doctor doesn't know what is causing my pain now.
>> She mentioned briefly that "it could be adhesions" but said that she
>> didn't want to do surgery because that would cause more. So what am I
>> supposed to do? I'm 28 years old. Living the rest of my life in this
>> much pain just isn't an option. I'm taking the max dose of naproxen and
>> tylenol everyday with no relief. My doctor just wants to "wait and see"
>> what happens. Easy for her to say!! She won't even give me anything for
>> the pain. I also have Fibromyalgia and IBS...which is making it that
>> much harder to diagnose the pain.
>>


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