SO..anyone who feels challenged, confused or even a bit peeved ( which happens as we are all human ) please feel free to ask questions, challenge back and above all...if something said on this forum doesn't seem right or feel right...discuss it openly, just as Jayne did here. Good job , Jayne!
>----- Original Message -----
From: Jaynie Jarvis <hipjaynie@webtv.net>
To: Multiple recipients of list ADHESIONS <adhesions@forum.obgyn.net>
Sent: Tuesday, May 23, 2000 9:38 PM
Subject: Re: ADHESIONS DON'T CAUSE PAIN !
> At Tue, 23 May 2000, chris smtih wrote:
> >
> >At Fri, 19 May 2000, Jaynie Jarvis wrote:
> >>
> >>I KNEW THAT WOULD GET YOUR ATTENTION ! That is what my gyno. told me.
> >>She says I have phantom pain just like the people that get there hands
> >>cut off. My nerves keep firering and sending pain signals to my brain.
> >>We need to retrain them. So I have changed tracks again. Taking
> >>nortriptaline to stop pain signals and back to stup-id P.T. Bad
> >>attitude !!! I was going to PA to get an operation with Redan and Riech.
> >>I was so disapointed. I was looking for a quick fix. I have done some
> >>reading about this "CHRONIC PAIN SYNDROME." SHE MAY BE WRONG BUT I HAVE
> >>TO GIVE IT A TRY. ANOTHER WEIRD THING THAT HAPPENED IS REDAN LOOkED AT
> >>MY VIDEO FROM MY LAST SURGERY AND SAID HE SAW NOTHING WRONG INSIDE OF
> >>ME. SO THAT MEANS THAT DOCTOR TOOK OUT MY OVARIES AND APPENDIXS FOR
> >>NOTHING. He came out and told my family that it was a good thing I came
> >>because my appendixs was about to burst. The pathology report says my
> >>appendixs was GLISTENING AND GROSSLY NORMAL. I feel so violated. Then
> >>I here this guy is notorious for doing this to women. One of THOSE. My
> >>doctor made sense when she said " You have let the boys try to make you
> >>feel better, 3 times they cut on you, now let a girl try." And she said
> >>the way my body is acting is like someone who has been sexually abused
> >>as a kid. I don't know. So maybe I don't have adhesions ? I don't know
> >>? I may even go to a live in pain clinic. Maybe that would get my life
> >>back. Thanks for listening. I am going to find the chronic pain forum.
> >>But I will check back always. I hope everyone finds there path to a
> >>pain free life. Jaynie
> >
> >Hi!
> >
> >I felt I had to respond to this post. First, I would wonder about any
> >doctor who made blanket statements like "adhesions do not cause pain" or
> >"adhesions always cause pain". The fact is that the human body does not
> >work this way, "always" or "never". Second, I have had positive results
> >from nortryptilene and after 3 years of searching for an answer I have
> >decided maybe its time to take a break. Third, I would not get too
> >upset by the pathology report. Why do you trust the pathologist more
> >than the surgeon? Or even another surgeon who wasn't there at the time
> >of the surgery? I have heard from people who were told by the surgeon
> >that their ovaries were 100% normal (yet he removed them anyway) and the
> >pathologist said otherwise. I had a gland in my neck removed once, the
> >surgeon told me what a mess it was (adhesions?) and how difficult it was
> >to remove, how enlarged it was, the xray documented that there was
> >something wrong as the ducts were compressed, yet the pathology report
> >came back "normal." So who am I supposed to believe? I would also wonder
> >about a doctor who referred to the "boys" and the "girls" Sounds like an
> >inflammatory inference to me. After listening to opinions from all
> >different specialties I realize they all have their own opinions and
> >viewpoints. I hope the chronic pain management can give you a break for
> >awhile. Then maybe something will happen that might give you some
> >clues. Good Luck!
> >
> >CHris S.
>
> Chris, what do you mean some clues ? Are you saying I don't have a CLUE
> ? Are you being sarcastic ? Or sincere ? The rest of your letter is full
> of anger for the medical people and I agree, the fustration of it all.
> Could someone make up there minds and point me in the right direction
> please. I hear ya girlfriend, Jaynie
>