Re: Pain & more frustration & pain...Posted by stevie...hopefully easier to read...

From: Helen Dynda (olddad66@runestone.net)
Fri Jul 7 00:45:32 2000


[ Cyber-mischief again!! I don't understand how this happens; because, Stevie, your message fit the Message box perfectly. Hopefully your message will appear as you meant it to. I did move it to the top...and I hope you don't mind. Robin's message is directly below your message.]

At Thu, 6 Jul 2000, stevie wrote:

Robin,

If its any help, I read your post and I can feel your misery. I use a tens unit also with some relief if I lay down with it and a heat pad. I also use a functional electrical stim vaginally. I know there are days when you feel like how the heck can you live like this, and then there are days where you feel half way normal and start to think god I think maybe its going away and I am going to be back to the person I use to know , only for the agony to hit you in the face again. I after being this way for 3.5 years have developed panic attacks from it all so I am fighting that as well. Hang in there, as you can see you arent by yourself like so my Drs.make you feel like, like you are the only person they have ever seen with this type of problem and then you start feeling like you are,I can see how the medical profession doesnt want to address adhesions can you imagine the money that would be lost to physical therapy, pain clinics, medical testing cat scan etc. not to mention the drug companies and all the pain medicines. my $3,500 hysterectomy has now cost me and the insurance company $45,000 imagine that and all I keep being told is go home and put it behind you. hang in there, there is an answer some where, just believe. Stevie

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At Thu, 6 Jul 2000, Robin wrote:

The last month or so, I have gone through alot. My dr is working on a pain clinic visit in Albuquerque, NM, 5 hrs away, but in the mean time, I went to a pain clinic in El Paso, Texas(about 3 hrs away) I had a CT scan & a bone scan, that showed nothing, (except the problems in my knees from tendonidis)I also had a spinal block shot which didnt help much if any. The pain clinic dr thought I might have a hernia, & sent me to a hernia surgeon, that wasnt on my HMO plan. After a thousand calls to the insurance co, they would not cover him. So, the surgeon saw me for free, because of the friendship between the 2 drs. The surgeon didnt think that I had a hernia, but irritable bowle (I was already being treated for irritable bladder) But the surgeon wanted to have an sonogram to make sure. I went to report to my dr & she got all the referals, etc. to get the sonogram. I went to my appointment(fasting) & the radiologist doesnt want to do the sonogram, because "CT scans are the best test for hernias" Well, the nurse there called my dr & told her that a GYN that I happened to have seen last year, did the adhesion surgery on her using an adhesion barrier, & she is doing great. Well, after 2 weeks of waiting the gyn office calls, asking me questions about my visit(needless to say, I was so happy, I thought alright, this is finally it!) They would call back later, to set up the appointment. After about a week, I called them, well, the gyn wants to send me to the same pain clinic in Alberquerque that my dr has been trying to get me into (the pain clinic wont call my dr back to set anything up...for over a month & after lots of calls to them). Well, I felt like I was hit in the gut, one more time. I sat & cried for an hour. I felt like she would help me & this suffering would finally be over with. Now here it is 3 weeks later, & I havent heard from anyone! I am just taking my pain meds, being in pain & waiting. I am not holding out much hope now. My dr did get me into physical theraphy. It costs me $20.00 a visit with 2 visits a week. This is killing us financially with all the other expenses with the dr & prescriptions. I am using a TENS unit, which does help some, but inspite of the physical therapy, the tens unit & the pain meds, I am in constant pain. I just dont know how much more I can take of the daily pain. Robin


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