Re: I don't know what else to do

From: suzanne (living@nwlink.com)
Mon Aug 21 18:40:33 2000


Stacey, I had the same problem. My ob/gyn left endo on my bowels, bladder, cul-de-sac and posterior vagina during my hysterectomy. I had only 2 months of minimal pain before it came back with a vengence. I did alot of research because I didn;t want to make the wrong move again. I decided to have lap with Dr. Redwine, an endometriosis specialist. He excised the remainder of my endo as well as major adhesions. I know the thought of another surgery is terrible, but for long-term relief from endo this may be your only answer. Have you contacted an endo specialist? There are wonderful and highly skilled doctors out there who commit their lives to helping women like ourselves, you just have to find them. There is hope stacey, you need not be in pain for the rest of your life. And none of the endo specialist would ever blow you off or make you feel like you don't know what you're talking about. I don't know where you live, but there may be an endo specialist near you or you might have to travel. My surgery with endo specialist has given me my life back and it can for you too. Good luck and keep searching for relief and the quality of life you so much deserve.

At Fri, 18 Aug 2000, Stacey wrote: >
>I am 27 years old and have had four gynecological surgeries within the
>past 3 years. The first two were for cysts the size of grapefruits. I
>was bleeding inside and had emergency surgery, both were laparotomies.
>The third one was for another large ovarian cyst, my left ovary and
>fallopian tube was removed. At the time of this surgery endometriosis
>was also found on my intestines, bladder and ureters along with other
>areas. My doctor burned off the endometriosis in the other areas but
>left the spots on my intestines and bladder. After these three
>surgeries I could hardly funtion due to excrutiating pain. I went to
>doctor after doctor because I wanted a hysterectomy. I was tired of
>having major surgery every year. Finally, I found one that agreed that
>I needed it and it was performed. After the surgery he informed me that
>my colon, bladder, right ovary and ureter were all connected with
>adhesions. He said there was still endometriosis in some areas, but he
>could not remove it from vital organs. I still have it on my intestines
>and bladder. After the hysterectomy, which was about 1 1/2 years ago,
>my pain was minimal. I could tolerate it anyway, but it never went
>away. Now, all of the sudden the same pain that I had before the
>hysterectomy has returned and I am in terrible pain 24 hours a day. I
>can barely function on a daily basis. I don't know what to do. I don't
>want anymore surgery. What type of doctor should I go see about this.
>Most gyn's just say there is nothing that can be done. I am so tired of
>hearing this. I am so frustrated and tired of being in pain. Just the
>thought of having this pain for the rest of my life makes me want to
>die. I need to see a doctor, but I want one that will listen to me and
>not just blow me off. If anyone has any information or could help me
>with this please let me know. Thank you


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