From: Helen Dynda (email@example.com)
Tue Sep 5 01:20:37 2000
Dear Nancy, Today, I posted the web sites of the Endometriosis Treatment
Program of the St Charles Medical Center in Bend, Oregon...one of the
best endometriosis treatment centers in the USA - and also one of the
best endometriosis sites on the Internet. Take some time to read
through all of the web sites, which I have listed there - so that you
really understand what endometriosis is all about. I did not include
all of the titles - so there are many more topics for you to read there.
Since you have been diagnosed as having endometriosis in the past, just
because you have had surgery for endometriosis does not mean that your
surgeon was able to excise every speck of endometriosis within your
The surgeons, who are the BEST endometriosis specialists, believe that
EXCISION SURGERY is the best and the only way to attack endometriosis.
Dr. David Redwine has written an article called: "A Better Approach to
Endometriosis." Read what he has to say about this procedure.
By the way the best endometriosis specialists DO NOT believe in drug
therapy for endometriosis...including Lupron and all of the others!!!
I have some additional suggestions for you:
1.) Consider becoming a member of the Endometriosis Association ( EA ),
if you are not already a member. Their information is the best there is
on endometriosis!! Through the EA you can purchase books, pamphlets,
audio tapes,and videos. The EA also has a list of OBGYNs who specialize
in Endometriosis - and if you are a member, they will send you a list of
endometriosis specialists from the state where you are from.
2.) The Endometriosis Pavilion Forum...click the current month.
3.) If you would like to get a Dr's opinion of your endometriosis
problem, try the Women's Health Forum
4.) The pain which you developed after surgery could be as a result of
adhesions!! Surgery begets adhesions!! So stay with us at the Adhesions
Forum too because adhesions and endometriosis are considered to be:
ADHESION-RELATED DISEASES ( ARD ). You will find both education and
5.) I encourage you to read the message I posted on Sunday, if you
already haven't. The title is: Adhesion-Related Diseases ( ARD
~ ~ ~ ~ ~
At Mon, 4 Sep 2000, Nancy wrote:
I'm having trouble finding information. I've had four surgeries for
endometriosis. The last two were to alleviate chronic pain and bowel
problems. This last time, I had one ovary and one tube removed.
Two months after the surgery, I felt great. I had no pain and no bowel
problems. My OB/GYN suggested that I go back on birth control pills to
prevent a recurrance of endometriosis.
Well, that was three weeks ago and my pain is coming back. I'm
wondering if the pills have anything to do with my pain. It is an awful
cooincidence that the pain returned so
quickly after I started the pills. Also, I have been spotting (heavily,
sometimes) for 13 days.
What I have been wondering is this. Since I only have one ovary, am I
producing only half of the normal estrogen? If that is the fact, why
would I need to be on birth control pills to control endometriosis?
Wouldn't the reduced estrogen, in effect, keep a lid on the
I feel like I am the only person in the world having these problems.
Does anyone know of any sources of detailed information. So much of
what is available on the Internet is too simple. I'm stuck.
Thanks for any help.