Re: new here - worried about adhesions
From: Karla (ifirgit@webcntrl.com)
Wed Sep 13 22:16:43 2000
Adhesions can cause pain anywhere. They can also cause very substantial
bladder difficulties. I was diagnosed with "interstitial cystitis" but it
ended up being that my problems stemmed from adhesions enveloping my
bladder. At this time, I have no bladder because they removed it.
We all need to educate ourselves about this disease. We should not be
allowing doctors to perform any more surgeries unless we are sure that these
doctors use the proper techniques to remove the adhesions. To date I am
only aware of a couple of doctors that do this successfully.....Dr. Redan
and Dr. Rich in Scranton, Pennsylvania at the new adhesion center and
possibly Dr. Korell in Germany...he uses the intergel barrier.
I am not saying that Dr. Cook is not a good surgeon....he very well could
be. But I would need to know more about his technique and hear from some of
his patients a year or so after their surgeries. Speaking of Dr.
Cook....has anyone heard from Kay Moran? She had surgery in June with Dr.
Cook and I don't think I have seen anything from her since. I hope and pray
that she is okay.
--
Karla
>----- Original Message -----
From: DRiekeRosehill@aol.com
To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com>
Sent: Wednesday, September 13, 2000 9:58 PM
Subject: Re: new here - worried about adhesions
> There are some articles on this network that can explain alot. your
symtoms
> are exactly the same as mine. Only I've had multiple surgeries to take
them
> down and they return worse. Be careful about any more surgeries. Visit Dr.
> Cooks archives use Keyword Dr Cook and go to the archives or frequently
asked
> questions for a start. Anytime Dr.s touch tissue internally it seems to
have
> a very negative result. Can this be your pain? oh yes. My last surgery the
> doctor punctured a hole through my bowel as adhesions covered the bowel
and
> attached it to abdominal wall. That was devastating as a long hard drug
> ridden recovery and multiple er visits resulted sending our finances into
> unbelievable debt. My family life has been severly damaged as a result of
the
> pain mood swings from meds, the doctor who punctured the hole abandoned me
> because he said it was not the source of my pain and made me look like a
> drug, ie narcotics addict. I've never been adicted to anything but this
can
> devastate you emotionally, labled this way. Many doctors now understand
the
> pain it causes, no easy answers, I'm on my way to a pain clinic tomorrow
to
> help me deal with all aspects of this devastating problem. I take them
when
> needed and they make me sick, then have minnie withdraws when not needed.
> Remember narcotics are essentially opiate based and thats basically
heroin.
> The most addictive substance there is. The minnie withdraws are the worst,
> sometimes worse than the pain itself.
> I would keep educated on this network, When you get to Dr. Cook click on
Ask
> Dr. Cook and there is a menue , click on adhesions and theres a three part
> series. No answers really viable but information on the disease itself,
steer
> clear of interceed and gortex they cause more problems. I'm no doctoer but
> have fought this for years,
> and now am told long term pain control necessary and tears possible, if
> intestines are locked together and attached. Then you have trouble. Not an
> expert, just my experience, also use keyword Adhesive disease, or
adhesions
> under health for other sources. The Womens Journal is helpful and info on
> endometriosis is helpful as it adresses adhesions as well. I've almost
given
> up. Lost my husband, mood swings from drugs, I pray for a miracle as thats
> pretty much all I have left. Good luck feel free to contact me at
> DRiekeRosehill@AOL.com. It's interesting to me that your pain is lower
right
> quadrant as well, might check out with your doc on the possibility of
> intercyctial cystitus. They have a Society as well. You might write ti Dr.
> Buttrick in Overland Park Kansas as he is very knowledgeable. He works out
of
> Kansas City Womens Clinic. Don't know the legalities of giving out his
> address but he is listed .
>
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