I find myself a little bit frustrated......actually a lot frustrated! As
you know I have been traveling back and forth to Chicago....trying to get
everything set up so that I might have my surgery. I now have a plastic
reconstructive surgeon, a reconstructive urologist, a general surgeon, a
cardiologist, a pulmonologist, an internist, a pain specialist, a ent
physician and some special anesthesiologists (am I forgetting anyone?). I
have had to meet with each and everyone of them. I spoke with the nurse
that has been coordinating all of this and she told me that they have been
having group meetings about me...she says I have become quite the celebrity!
I tried to ask her some questions.....like how often I would have to travel
to Oshkosh to see the reconstructive plastic surgeon (this is another doctor
all together) who will do the adjusting of the expanders they will be
installing in my abdomen. She has no idea. I asked her if she had any idea
when I would be scheduled for surgery...again she has no idea. I talked to
her about that because my daughter will be having her baby soon....she is
due in late October early November....but who knows with that. She told me
I shouldn't worry because she was sure that I would not be having my surgery
before then. I asked her if she thought I would be having it before
Christmas and she said yes. I am just so frustrated. I have things to
do...places to go....people to see. And don't forget that I have PAIN and I
leak all the time!!!! I have been in need of surgery for over a year now
and yet here I sit. I understand that they want to make sure I don't have
cardiac or respiratory arrest again. But I can't handle it! I give up!