Re: Small victory

From: Robin (rmasse2333@aol.com)
Thu Oct 12 07:34:54 2000


For years, I thought that my pain was from my Left ovary. I had at least one cyst. I thought that after my TAH it would be the end of my pain. Even after 6 years since my TAH, I still have pain. My pain now is the same as before, it seems like it is still my ovary giving me the pain, but, since I dont have either ovaries, that cant be it. It is the scar tissue. The first time I had this pain was in Nov 83, one month after my first c-section. Best of luck, Robin

At Thu, 12 Oct 2000, mark harrington wrote: >
>Hi everyone,
>I have been following your discussions for some time now and I congradulate
>you all on the way you prvide support and information to us all.
>I am from Australia (Perth) and I have been suffering this horrible
>condition for 4 years. Unlike you guys in America the support here in
>Australia in non-existent and if I had'nt found this wonderful web site I
>really think that by now I would be in the depths of depression. It took me
>2 years of being passed around from gyn to gyn to be told that I had major
>internal problems, and following a viginal hysto and suspension of all major
>organs, I really thought my problems would be over. I had never heard of
>Adhesions, had never been told of the risks of getting Adhesions and so when
>the pain returned after 4 months I thought that it was all in my head.
>Fortuanly I have a wonderful Gyno who diagnosed ARD and I had futher surgery
>to cut adhesions, only to have them return again in 3 months. I then had
>another operation for adhesions, but during all these ops not one doctor
>told me that more surgery can cause more adhesions.I only realised this when
>I started to do some research on the subject. I am about to go in for
>another major surgery on the 24th Oct and I am praying that this time they
>will get it right with the removal of both my ovaries.
>This was my decision, not the Gyno's as I feel this is where all the pain
>comes from. I wish that we had the support networks over here that you guys
>have there and if there are any other Australians out there I would love to
>here from you.
>My heart and prayers go to you all , at least here in Australia it is free
>to have your surgery and you certainly don't get sent home on the same day,
>your lucky if your out of hospital in one week, I have talked to my Gyno of
>Adhesion
>issues and he has listened and hopefully learned but he seems reasonably on
>the ball with the pain and disruption it causes in our lives. Get the
>message out there and let them know its not alright to have to live in pain
>everyday, I am trying.
>Thanks for reading
>love
>Helen.

>>----- Original Message -----
>From: Renee Madron <madron2@yahoo.com>
>To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com>
>Sent: Thursday, October 12, 2000 5:18 AM
>Subject: Small victory
>
>> I would like to share my small victory with my IAS family. I had a gyn
>> check-up today and my doc. acknowledged the severity of my adhesion
>> disease, as well as offered to help me in my current project. I have
>> been seeing my gyn for 3 years and I have waged war with him on several
>> visits on behalf of others and myself, that suffer with the consequences
>> of adhesions, but early on he wouldn't bend, in his acknowledgment of
>> the subject and the problems they create.
>>
>> My adhesion disease is pelvic and abdominal, but they are also, severe
>> and visible in my vaginal canal. Upon exam it appears, that I have a
>> cervix, which I do not, I have had a complete and total hysterectomy.
>> The adhesions in this area, attach at least two inches down into the
>> vaginal canal, give or take a few centimeters. And as usual during an
>> exam, like today, he asked that silly question, "did your former gyn
>> leave a piece of your cervix"? That questioned angered me today, simply
>> because I have answered it the same way many times in the past the same
>> way, so I let him know a thing or two today, about myself and about my
>> adhesion disease and my project, which in the past he wasn't willing to
>> listen to, but I made him today, I stood in front of the door and didn't
>> move until he had heard everything I had to say. I guess I looked a
>> little funny, standing there in my fanciful white paper shirt and
>> matching paper coverlet half held on. I don't advice anyone to act as I
>> did unless you have a good relationship with your doc, which I do, but
>> he tends to be set in his ways a bit and tends to need a slight "I got
>> something to tell you" thrown at him.
>>
>> So, I do feel good about this victory, even as small as it is, it's
>> still a step forward. Knowing too, that he is willing to aid me in my
>> efforts of bringing recognition to this disease in my resident area is
>> truly a good thing. So see, persistence does pay off, as well as
>> educating one's self to a higher degree, in order to insure intelligence
>> when discussing this subject with your physician(s).
>>
>> --
>> Renee Madron
>> Richmond Adhesion Society
>> http://www.aboutras.org (Under construction)
>> 765-965-7435
>> madron2@yahoo.com
>>


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