Re: Please, don't get dissapointed with my progress........

From: Kathy L. (kjlu9857@velocity.net)
Sun Nov 12 18:21:41 2000


Dear Chrissie:

I am so sorry to hear that your pain is back. Don't worry, I won't let it bother me since I am scheduled for surgery on November 22nd. I feel that this is the best thing to try first. The least invasive. If it doesn't work then I know I at least tried to do it the best way for me. I wish you luck with your pain management people. Did you get the name from Dr. Wiseman's list. I think he has recommendations and maybe you can find someone who understands adhesions instead of these idiots who want you to pray or take a nerve pill. Both of those things are great for those who need them but you know your own body!

Take Care and don't give up hope! Kathy l

At Sun, 12 Nov 2000, Chrissie wrote: >
>Hi everyone,
>Now it's time for me to ask for your help. I don't want to dissapoint
>anyone - this email is not my intent. But I know I can get words of
>wisdom from all of you and some help as well. As most of you know I had
>my surgery with Redan and Reich on July 24 of this year. Everything was
>fine for a month and a half. I was so happy to be almost ALL pain free.
>Now, the pain has come back triple and I can't stand it. I did let
>Redan know and he said give it six months for the surgery to work. I
>know my body well enough that this is the pain I had prior to the
>surgery. This is the pain that I have known for most of my life. This
>is the pain and it's BACK. My God, I am so depressed. I know I am
>usually upbeat and give happy emails, I'm sorry that this one is such a
>downer. I do not want to bring feelings down, but I know on this site,
>all of you are here to help everyone, and I need your help. Please. I
>went to Boston Brigham and Womens pain center last week and the Mr. Man
>docotor told me that adhesions do not cause pain. He said take this
>nerve medication and it will be ok. I tried, tried and tried to tell
>him that I tried this med 2 years ago and he didn't listen. HE DIDN'T
>listen. I have been through this that I know what to bring to my
>appointments, what to say, and how to prepare myself for a let down, but
>this time I lost it. I truley lost it. I have pondering around in my
>head whether to share this with all of you, or not. I thought about it
>and thought about it and then I told myself I had to be honest with all
>of you and let you know how I'm feeling. Please, don't let me
>dissapoint those who are going to R&R. Remember all bodies are
>different. Remember that I have been through lots of surgeries and have
>been diagnosed with endometriosis stage 5. And of course that diagnose
>came years too late. Maybe I'm venting. Maybe I'm feeling really down
>and want words of hope. I'm sorry to all of those I have dissapointed.
>I needed to share my feelings. Now, my next step is going to a pain
>clinic in NH. I have been there before and left because the doctor I
>was seeing there told me to see a priest for my pain! The one and only
>thing that has worked for my pain is Oxycontin. I don't want the
>doctors to think that I am a drug user - I use the oxycontin the way it
>is prescribed to me and I don't abuse it. It helps me sleep (what is
>that anyway, sleep?) It helps me work my job (which I need to pay bills)
>It HELPS me, and that is what I need right now, help.
>Love and hugs to all of you,
>~Chrissie


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