Re: Please, don't get dissapointed with my progress........

From: Connie (connied@yourinter.net)
Sun Nov 12 20:13:09 2000


Chrissie: Please, don't ever think that you are disappointing anyone on this board by the way you are feeling. Your pain is real and we are all here to support you and help you through this. I, myself, know the frustration you are feeling. I suffer with pain, but am on my way to (hopefully) finding a "cure". But, when are these doctors going to realize that these "nerve" pills don't work!! Plain and simple, I think everyone here on this board has tried them...they don't work!! (I just had to stress that again). Keep searching for relief, it has got to be out there somewhere. If you saw my post about my friend Lisa, who is now in California and scheduled to have her surgery with Dr. Cook (who by the way works with your insurance). She has been in a tremendous amount of pain and her doctors here in Western PA have given up on her and simply wouldn't do anymore surgery on her. She was fortunate, however, that her gyne actually spoke to Dr. Cook and told him some of his thoughts on the pain and where he thinks it might be helpful if he focused looking. She and I both go to the same doctor who is kind and compassionate, just at a loss as to what to do. He is now working on something non-surgical for me, which if it works will lead to a surgical repair. Again, we care, we are here and don't feel as if you are a drug addict or anything. As my PCP told me, when a narcotic is attacking pain, addiction is highly unlikely. It is when you find yourself taking the drugs when you have no pain at all. (Like that ever happens, huh?) Do you have a follow-up visit with Redan & Reich? If not, see if you can schedule one if it is possible. I live 3 hours from them, but due to budgetary constraints I can't consider surgery with them at this time. Keep posting and pouring out your feelings, that in itself is a relief. WE ALL CARE.

Love, Connie

At Sun, 12 Nov 2000, Chrissie wrote: >
>Hi everyone,
>Now it's time for me to ask for your help. I don't want to dissapoint
>anyone - this email is not my intent. But I know I can get words of
>wisdom from all of you and some help as well. As most of you know I had
>my surgery with Redan and Reich on July 24 of this year. Everything was
>fine for a month and a half. I was so happy to be almost ALL pain free.
>Now, the pain has come back triple and I can't stand it. I did let
>Redan know and he said give it six months for the surgery to work. I
>know my body well enough that this is the pain I had prior to the
>surgery. This is the pain that I have known for most of my life. This
>is the pain and it's BACK. My God, I am so depressed. I know I am
>usually upbeat and give happy emails, I'm sorry that this one is such a
>downer. I do not want to bring feelings down, but I know on this site,
>all of you are here to help everyone, and I need your help. Please. I
>went to Boston Brigham and Womens pain center last week and the Mr. Man
>docotor told me that adhesions do not cause pain. He said take this
>nerve medication and it will be ok. I tried, tried and tried to tell
>him that I tried this med 2 years ago and he didn't listen. HE DIDN'T
>listen. I have been through this that I know what to bring to my
>appointments, what to say, and how to prepare myself for a let down, but
>this time I lost it. I truley lost it. I have pondering around in my
>head whether to share this with all of you, or not. I thought about it
>and thought about it and then I told myself I had to be honest with all
>of you and let you know how I'm feeling. Please, don't let me
>dissapoint those who are going to R&R. Remember all bodies are
>different. Remember that I have been through lots of surgeries and have
>been diagnosed with endometriosis stage 5. And of course that diagnose
>came years too late. Maybe I'm venting. Maybe I'm feeling really down
>and want words of hope. I'm sorry to all of those I have dissapointed.
>I needed to share my feelings. Now, my next step is going to a pain
>clinic in NH. I have been there before and left because the doctor I
>was seeing there told me to see a priest for my pain! The one and only
>thing that has worked for my pain is Oxycontin. I don't want the
>doctors to think that I am a drug user - I use the oxycontin the way it
>is prescribed to me and I don't abuse it. It helps me sleep (what is
>that anyway, sleep?) It helps me work my job (which I need to pay bills)
>It HELPS me, and that is what I need right now, help.
>Love and hugs to all of you,
>~Chrissie


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