Re: Hi

From: Richard Hagen (rsh4799@att.net)
Sat Jan 20 06:07:55 2001


Send your in-laws the same info. Get to a pain doctor and sleep specialist and start working on solutions. Talk to the surgeons mentioned on this board. Dr. Korell in Germany is more reasonable than you realize. Dr. Semertzides is in Ohio and Dr. Redan may be worth the $17,000 dollars to bring empathy, support, understanding and relief to your problem.

This ARD is greatly misunderstood by doctors and family. Get your husband to contact these people for you if you feel intimidated by it all. Its amazing sometimes what doctors and will do for the wife when they know the husband(guard dog) is watching.

Take charge of your life because this battle(war of ARD) will not go away and must be delt with actively(positively) on your part. It will destroy your relationships, contribute to depression, and generally screw up your life until you die unless you fight it with everything you have. I know. Watch the movie Braveheart. Then get busy.

Richard

-----Original Message----- From: adhesions@adhesions.org [mailto:adhesions@adhesions.org]On Behalf Of Jenny Sent: Saturday, January 20, 2001 2:52 AM To: Multiple recipients of list ADHESIONS Subject: Hi

Hello everyone, My name is Jenny. i am 34 years old. I have had three adhesions surgeries. The first was after a tubal pregnancy, the second in February last year when they removed the adhesions, 3 inches of my colon, and a softball sized mass, the third was in June with a total hysterectomy. I have been hurting again since November. It wasn't too bad at first. My GYN sent me to a gastroenterologist. I was not real impressed with the man. He acted like my other doctors didn't know what they were doing. He said," You mean to tell me they operated on you because you were in pain?!" Anyway, he did a colonoscopy and a CT which both came out normal. In the meantime, my pain has gotten alot worse. I told my GYN that I didn't need pain meds back in November because I could tolerate it. It is getting to be that I can't. I am almost afraid to call and ask. His nurse told me she thought I was addicted to pain meds last January before they removed the softball sized mass and all. That wasn't true. I could go 3 days without anything, then the pain was unbearable. I guess I will have to lay down my pride and ask soon so I can maybe get some sleep. I mostly have pain on the left side although there is some on the right. I also have pains that shoot down the back of both legs and pain that goes down my front left side through my groin and down the front of my left leg. Does anyone else ever have anything like that? When my husband and I are intimate sometimes I have a shrp shooting pain that goes through me. But most of the time I don't have pain until after we are through. I was just wondering if that was typical. I read one of the postings that someone wrote about maybe there being endometriosis in the abdomen after a hysterectomy. Is that possible? I did have that before. I thought the hysterectomy would of taken care of that. The gastroenterologist mentioned that to me too. Well he said I should ask my GYN if that was a possibility. I am so grateful for this message board. My husband found it and Dr. Wiseman's website. He printed out about 50 pages. I cried for an hour after I read them. So much of what I read had came out of my own mouth. I have noticed how people act around you. My in-laws think I lay in bed and sleep all day. And jsut because I'm laying down surely does not mean I'm sleeping. I hardly get the sleep I need in this condition becasue I can't get comfortable. They don't realize my stomach looks like a reverse giraffe from the heating pad. Sound familiar to any one? That is about the only thing that brings some sort of comfort since I have no pain meds. I told my husband so many times that I feel like people don't want to be around me or ask how I'm doing because I may say I am hurting. It is a horrible feeling to be hurting and be in fear that no one will believe you. Sometimes I have wondered if it was all in my head, but then I can't get comfortable, and the pain is too real. I have felt all alone going through this. It is such a comfort to know that you are all there. I appreciate each and everyone of you. Thanks for being here and thanks for listening. I'm sorry for rambling on. I am worried that my GYN is getting frustrated with me too. He is acting different towards me. Maybe it is just me. Does anyone know of an Adhesions Specialist in Houston, Texas? Are these doctors not covered under people's insurance companies? Just curious. I saw someone saying that Dr. Redden (?) charges $17,000 for adhesion surgery. Who could afford that? OR flying to Germany for the other doctor? Anyway, thanks again for listening. I'm sorry this is so long. You will all be in my thoughts and prayers.

Jenny


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