Hello everyone,
My name is Jenny. i am 34 years old. I have had three adhesions
surgeries. The first was after a tubal pregnancy, the second in
February last year when they removed the adhesions, 3 inches of my
colon, and a softball sized mass, the third was in June with a total
hysterectomy. I have been hurting again since November. It wasn't too
bad at first. My GYN sent me to a gastroenterologist. I was not real
impressed with the man. He acted like my other doctors didn't know what
they were doing. He said," You mean to tell me they operated on you
because you were in pain?!" Anyway, he did a colonoscopy and a CT which
both came out normal. In the meantime, my pain has gotten alot worse. I
told my GYN that I didn't need pain meds back in November because I
could tolerate it. It is getting to be that I can't. I am almost
afraid to call and ask. His nurse told me she thought I was addicted to
pain meds last January before they removed the softball sized mass and
all. That wasn't true. I could go 3 days without anything, then the
pain was unbearable. I guess I will have to lay down my pride and ask
soon so I can maybe get some sleep. I mostly have pain on the left side
although there is some on the right. I also have pains that shoot down
the back of both legs and pain that goes down my front left side through
my groin and down the front of my left leg. Does anyone else ever have
anything like that? When my husband and I are intimate sometimes I have
a shrp shooting pain that goes through me. But most of the time I don't
have pain until after we are through. I was just wondering if that was
typical. I read one of the postings that someone wrote about maybe
there being endometriosis in the abdomen after a hysterectomy. Is that
possible? I did have that before. I thought the hysterectomy would of
taken care of that. The gastroenterologist mentioned that to me too.
Well he said I should ask my GYN if that was a possibility.
I am so grateful for this message board. My husband found it and Dr.
Wiseman's website. He printed out about 50 pages. I cried for an hour
after I read them. So much of what I read had came out of my own mouth.
I have noticed how people act around you. My in-laws think I lay in bed
and sleep all day. And jsut because I'm laying down surely does not
mean I'm sleeping. I hardly get the sleep I need in this condition
becasue I can't get comfortable. They don't realize my stomach looks
like a reverse giraffe from the heating pad. Sound familiar to any one?
That is about the only thing that brings some sort of comfort since I
have no pain meds. I told my husband so many times that I feel like
people don't want to be around me or ask how I'm doing because I may say
I am hurting. It is a horrible feeling to be hurting and be in fear
that no one will believe you. Sometimes I have wondered if it was all
in my head, but then I can't get comfortable, and the pain is too real.
I have felt all alone going through this. It is such a comfort to know
that you are all there. I appreciate each and everyone of you. Thanks
for being here and thanks for listening. I'm sorry for rambling on. I
am worried that my GYN is getting frustrated with me too. He is acting
different towards me. Maybe it is just me. Does anyone know of an
Adhesions Specialist in Houston, Texas? Are these doctors not covered
under people's insurance companies? Just curious. I saw someone saying
that Dr. Redden (?) charges $17,000 for adhesion surgery. Who could
afford that? OR flying to Germany for the other doctor? Anyway, thanks
again for listening. I'm sorry this is so long. You will all be in my
thoughts and prayers.