Re: Hi

From: Robin (rmasse2333@aol.com)
Sat Jan 20 08:32:48 2001


Dear Jenny, Sorry to hear about all your problems. I also had a large mass of adhesions removed in 98. I was opened up to remove it. My OB/GYN then came to my hospital room & told me "it really wasn't all in your head, there really was something there" Like that was comforting!! My previous PCP told me in March 2000 that I was addicted to my pain meds. My husband has been behind me all the way, but even he said the dr did talk a good talk. I have taken anti-depressants for many years, & also had to see a psycologists for my meds, so that wasnt an issue, but I was still depressed because of all the pain & the fact that I couldn't find anyone to help me. Dr Riech & Redan usually have you put up $3,000-$6,000. If your insurance will cover you, that isn't bad. For Dr Korell, in Germany, the total cost will be about $7,000. for everything. I havent heard of any specialist in Texas, but, you might be able to find a good one, but.... you might not. I had my surgery with Dr. Korell. He is a wonderful man & I can say he is very comforting & understanding. Don't give up!! Ask for pain meds, if one Dr wont give them to you, ask another. Good luck. If you decide you would like to know more about Dr Korell, I can help you there. Best wishes Robin

At Sat, 20 Jan 2001, Jenny wrote: >
>Hello everyone,
>My name is Jenny. i am 34 years old. I have had three adhesions
>surgeries. The first was after a tubal pregnancy, the second in
>February last year when they removed the adhesions, 3 inches of my
>colon, and a softball sized mass, the third was in June with a total
>hysterectomy. I have been hurting again since November. It wasn't too
>bad at first. My GYN sent me to a gastroenterologist. I was not real
>impressed with the man. He acted like my other doctors didn't know what
>they were doing. He said," You mean to tell me they operated on you
>because you were in pain?!" Anyway, he did a colonoscopy and a CT which
>both came out normal. In the meantime, my pain has gotten alot worse. I
>told my GYN that I didn't need pain meds back in November because I
>could tolerate it. It is getting to be that I can't. I am almost
>afraid to call and ask. His nurse told me she thought I was addicted to
>pain meds last January before they removed the softball sized mass and
>all. That wasn't true. I could go 3 days without anything, then the
>pain was unbearable. I guess I will have to lay down my pride and ask
>soon so I can maybe get some sleep. I mostly have pain on the left side
>although there is some on the right. I also have pains that shoot down
>the back of both legs and pain that goes down my front left side through
>my groin and down the front of my left leg. Does anyone else ever have
>anything like that? When my husband and I are intimate sometimes I have
>a shrp shooting pain that goes through me. But most of the time I don't
>have pain until after we are through. I was just wondering if that was
>typical. I read one of the postings that someone wrote about maybe
>there being endometriosis in the abdomen after a hysterectomy. Is that
>possible? I did have that before. I thought the hysterectomy would of
>taken care of that. The gastroenterologist mentioned that to me too.
>Well he said I should ask my GYN if that was a possibility.
>I am so grateful for this message board. My husband found it and Dr.
>Wiseman's website. He printed out about 50 pages. I cried for an hour
>after I read them. So much of what I read had came out of my own mouth.
>I have noticed how people act around you. My in-laws think I lay in bed
>and sleep all day. And jsut because I'm laying down surely does not
>mean I'm sleeping. I hardly get the sleep I need in this condition
>becasue I can't get comfortable. They don't realize my stomach looks
>like a reverse giraffe from the heating pad. Sound familiar to any one?
>That is about the only thing that brings some sort of comfort since I
>have no pain meds. I told my husband so many times that I feel like
>people don't want to be around me or ask how I'm doing because I may say
>I am hurting. It is a horrible feeling to be hurting and be in fear
>that no one will believe you. Sometimes I have wondered if it was all
>in my head, but then I can't get comfortable, and the pain is too real.
>I have felt all alone going through this. It is such a comfort to know
>that you are all there. I appreciate each and everyone of you. Thanks
>for being here and thanks for listening. I'm sorry for rambling on. I
>am worried that my GYN is getting frustrated with me too. He is acting
>different towards me. Maybe it is just me. Does anyone know of an
>Adhesions Specialist in Houston, Texas? Are these doctors not covered
>under people's insurance companies? Just curious. I saw someone saying
>that Dr. Redden (?) charges $17,000 for adhesion surgery. Who could
>afford that? OR flying to Germany for the other doctor? Anyway, thanks
>again for listening. I'm sorry this is so long. You will all be in my
>thoughts and prayers.
>
>--
>Jenny
>


Enter keywords:
Returns per screen: Require all keywords: