Toni

From: jenny low (jenklow@hotmail.com)
Tue Feb 27 05:25:52 2001


Hi Toni,

I know that my tubal ligation and more than likely the reversal since it was a laparotomy was the beginning of my adhesions too. I had a tubal pregnancy 3 years ago. They gave me a chemo drug to dissolve the pregnancy so I wouldn't lose the only working fallopian tube I had. I was still having problems. They went in to remove a cyst formed on the ovary due to the pregnancy. They were supposed to be doing it with a laparoscope. There were so many adhesions that they had to open me up. THe doc said I had had other tubal pregnancies in the same place. The following year I was in the hospital for what they thought was a hemmorhagic cyst. It ended up being adhesions and a swollen fallopian tube. The doc thinks maybe it was a possible tubal pregnancy again. There is no telling how many babies I have in heaven waiting on me. I have 3 birth children, all girls, and 4 adopted boys, and all my babies in heaven. I know of at least 3 miscarriages other than the tubal pregnancies. I had a hysterectomy last June at the age of 34. I feel like my body is years older than it actually is. Even the fertility doctor told me that my hormones levels were that of a much older woman and that was before the hysterectomy. My story is on the quilt. Sounds like we have some things in common as far as surgeries go. I hope you are doing well. Take care!

Love, Jenny

>From: twelsh1@hotmail.com (toni welsh)
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: Re: Millie
>Date: Tue, 27 Feb 2001 06:06:11 -0600
>
>At Tue, 27 Feb 2001, jenny low wrote:
> >
> >Hi Millie,
> >
> >How are you doing? I was wondering about when you had your hysterectomy
> >done. Did the doctor discuss with you at all about the type of surgery
>that
> >you were supposed to be having done? What type of surgery did you sign
>the
> >consent form for? I don't want you to beat yourself up for allowing this
> >woman doctor to open you up. I have been there and done that myself. I
>hated
> >myself for years after I had a tubal ligation. It was not something I
> >wanted. I was pushed into it by family members and a doctor who told me I
> >could go into kidney failure if I got pregnant again. I should not of
> >listened and done something I really didn't want to do. And what did I
>get
> >out of it but periods that lasted 2 weeks and came every 2 weeks. When I
>had
> >the tubal reversed I got adhesions. So it is just has been a never ending
> >battle. But I had to learn to forgive myself. I listened thinking that
>what
> >everyone wanted me to do was in my best interest. I have learned since
>that
> >that is not always so. IT has made me a stronger person because now no
>one
> >pushes me into anything that I am not ready to do. I don't believe that
>it
> >is any different with you. I believe that you allowed this doctor to open
> >you up thinking it was in your best interest, that she was helping you.
> >Isn't that true? You thought she was someone you could trust. We should
>be
> >able to trust our doctor. So don't blame yourself now. She failed you not
> >you failed you. So don't hold that against yourself. You need to forgive
> >you. Sometimes it is hardest to forgive ourselves. I know it took me
>years
> >to forgive myself. And sometimes I still struggle with it. I am just
>sorry
> >that your doctor failed you and that you have to endure so much pain
> >physically as well as emotionally. Remember that it is not your fault. I
> >hope you can find some peace in what I have said. I also hope that you
>find
> >a doctor who can build your faith and trust back up in doctors. Not all
> >doctors are bad. You met the ones there in Scranton. I don't think they
>were
> >pushing you aside. I think they just want the average time for healing to
> >pass so they can know for sure that it is adhesions that reformed and not
> >just that you haven't completely healed from your surgery. It might do
>you
> >more damage in the long run if they went in before you had time to heal.
>I
> >really believe they were looking out for your best interests. So be
> >comforted in that. I have never met these doctors but with all the good I
> >have heard and read about them, I don't think there could be any other
> >reason why they might make you wait. Now if your doctor did your
> >hysterectomy without your consent and without explaining in detail what
>she
> >was doing, then I would think you have grounds for a law suit. Even
>though I
> >have had numerous surgeries my doctor always goes over all the risks
>anyway.
> >He even tells me "I know you have been through this up teen million
> >times...but these are the risks and this is what I am doing". And they
>also
> >go over it in the hospital. I have consent forms from my doctor and
>consent
> >forms from the hospital. SO find out exactly what you consented to and go
> >from there. I hope I can be of some help to you. I hope your pain has
> >ceased. I'm thinking about you.
> >
> >Love,
> >Jenny
> >
> >>From: "Millie" <milliem@citlink.net>
> >>Reply-To: adhesions@adhesions.org
> >>To: Multiple recipients of list ADHESIONS
> >><adhesions@mail.medispecialty.com>
> >>Subject: Re: Millie: some help with your anger
> >>Date: Sun, 25 Feb 2001 16:04:31 -0600
> >>
> >>Dear Trace,
> >>Thanks for the suggestions. This morning I thought I'd die when I tried
>to
> >>have a bm. It was awful. I took a Dulcolax suppository, and 3 Tbsp.
>Haleys
> >>M O with water. I finally went some, but the pains get worse. I went to
>see
> >>Dr. Redan, but my luck- he said he couldn't do anything right now. He
> >>looked
> >>at the scar, and pressed around. He said to wait a few months. I am to
>the
> >>point that I don't know what to do. I think I need to find new Drs. Yes,
>I
> >>was abused. The male nurse practitioner asked me in January - "Did you
>have
> >>your uterus yanked out yet?"
> >>I should have ran the other way then. I went back to their e.r., and the
> >>Dr.
> >>was not nice. He told me it is colic. I asked how he'd know without
>not
> >>running any tests. I told him that I am going to have to get away from
>them
> >>and find new Drs. I told him I know the surgery was unneeded. He got
>real
> >>smart and said, "YOU signed for it!~!" I told him we were supposed to
>have
> >>agreed that I wanted her to check for endo, and fix what she could of
>that,
> >>and she was going to check left ovary for adhesions, & cysts. She only
> >>wrote possible hyst.
> >>There's nothing on the pre op, or post op that showed the need for a
>hyst.
> >>Both said - chronic pelvic pain, endometriosis(she wrote 'minimal') and
> >>history of pelvic adhesions. Dr. Redan's medical assistant asked me why
>she
> >>took everything, and I said I also wonder. I saw Dr. Redan give him a
> >>funny
> >>look. Do you think he either figured for the money, or for some other
> >>reason. I saw the look he gave his helper.
> >>Millie

>> >>----- Original Message -----
> >>From: "niko" <nicko69@dingoblue.net.au>
> >>To: "Multiple recipients of list ADHESIONS"
> >><adhesions@mail.medispecialty.com>
> >>Sent: Sunday, February 25, 2001 12:26 AM
> >>Subject: Millie: some help with your anger
> >>
> >> > Hi MIllie,
> >> >
> >> > Millie I see your anger in your messages, and we all sympathize
> >>immensely.
> >> > Most of us have dealt with the same situations at one time or
>another. I
> >> > used to believe that my anger kept me going. I was angry at the
>doctors,
> >> > angry at my body, angry at anyone who would listen really. I have
>learnt
> >> > alot from this board. One of the best revelations I have made is NOT
>to
> >>be
> >> > angry anymore, You see it makes my condition 100% worse. I cannot
>take
> >>back
> >> > what has been done to my body. It's unfair sometimes. It really is.
>My
> >> > situation needn't have ended up with nearly 30 operations.
> >> >
> >> > Acceptance of things I cannot change releases the tension you will
>feel.
> >>The
> >> > stress you are putting yourself under will be felt throughout your
>body.
> >>You
> >> > do need time to let your body heal from your hysterectomy. It is a
>very
> >> > major operation as unneccessary as it may well have been.
> >> > I was able to communicate better with my doctors when I wasn't so
>angry.
> >>It
> >> > enabled me to explore my options without any accusations and defenses
> >>they
> >> > put up to me.
> >> >
> >> > Irritable Bowel is often misdiagnosed with adhesions, but it is also
>a
> >>real
> >> > complaint. I take "Colofac", and it relaxes my bowel when it becomes
> >> > irritated. I do not have irritable bowel symtoms from food, but from
>the
> >> > operations. I only realised the extent of irratability when the
>tablets
> >> > relaxed it. I know it sounds like doctors are "palming" your pain
>off,
> >>but
> >>I
> >> > think it is worth entertaining this idea with the problems you are
> >> > experiencing. Drink lots of water as it flushes your system and
>hydrates
> >> > your bowel. A dehydrated bowel causes so much pain. I know this for a
> >>fact.
> >> >
> >> > When we are in constant pain, it makes you extremely edgy. It brings
>out
> >>the
> >> > worst in anyone. How could it not? I don't think anyone truly
> >>understands
> >> > until they've lived with it for awhile. You will have plenty of time
> >>when
> >> > you are strong enough, to deal with these insensitive doctors.
> >> >
> >> > What was Dr. Redan's suggestions for helping your bowel movements?
> >> >
> >> > Millie, I truly hope that you find some relief, I really do. You have
> >>been
> >> > mistreated and abused.
> >> >
> >> > I wish I could give you something to make it all right again, but I
> >> > can't.... so the next best thing is our support.
> >> >
> >> > Your pain pal
> >> > Trace xo
> >> >

>> >> > ----- Original Message -----
> >> > From: "Millie" <milliem@citlink.net>
> >> > To: "Multiple recipients of list ADHESIONS"
> >> > <adhesions@mail.medispecialty.com>
> >> > Sent: Sunday, 25 February 2001 12:35
> >> > Subject: Re: Re:Robin
> >> >
> >> > > Dawn'
> >> > > I read your note about the pain from adhesions. It is a terrible
> >>thing.
> >>I
> >> > > have not been right since I had the TAH in January. She tried to
>say
> >>it's
> >> > > irritable bowel. She laughed it off. Last night I wentback to the
>e.r.
> >>of
> >> > > that hospital, and I had the same e.r. dr. I saw a few days after
> >>surgery.
> >> > > He wasn't too happy that I came back. All he did was bloodwork, and
> >>tried
> >> > > to say it is a colic. Bull!! Then he came back in, and was kind of
> >> > > nasty,when he asked me why I didn't take the medicine she
>prescribed.
> >>I
> >> > told
> >> > > him that what she prescribed was Bentyl, which is constipating, and
>so
> >>is
> >> > > Effexor. I told him I am angry that she took everything but 1 ovary
> >>when
> >> > > there was nothing really wrong with the organs. He got a bit snotty
> >>and
> >> > > said, "well, you must have signed forit." I'd like to report him.,
>if
> >>I
> >> > knew
> >> > > where. Also, sometime before I had the surgery , the male nurse
> >> > practitioner
> >> > > asked ,"Did you get your uterus ripped out yet?" He should be
> >>reported.
> >>Of
> >> > > course, if if isn't on paper in a Drs. report, it doesn't exist in
> >>their
> >> > > eyes. I am having even more problems going. I went to see Dr.
>Redan,
> >> > > yesterday, but I came away even more discouraged, because he said
>to
> >>wait
> >> > 3
> >> > > months to be sure you're healed, then maybe he'd take a look. He
> >>looked
> >>at
> >> > > the incision, and pressed around it some.
> >> > > He was very nice, but I only saw him for 10 minutes at the most,
>after
> >> > going
> >> > > 60 miles. After hurrying to fax in forms to them, to supposedly be
>set
> >>up
> >> > > for the adhesiolysis. I have had more pain today. The little bit of
> >>stool
> >> > I
> >> > > do pass, is small, painful, and it gets worse.Even to pass gas. I
> >>don't
> >> > want
> >> > > to end up with an ostomy. Did you ever have a n.g. tube? Are they
> >>really
> >> > > painful to have inserted, or uncomfortable?
> >> > > How would you feel if a Dr. or nurse practitioner said that to you?
> >>What
> >> > > would you do?
> >> > > Millie

>> >> > > ----- Original Message -----
> >> > > From: <Cheechiebomb@aol.com>
> >> > > To: "Multiple recipients of list ADHESIONS"
> >> > > <adhesions@mail.medispecialty.com>
> >> > > Sent: Saturday, February 24, 2001 1:55 PM
> >> > > Subject: Re:Robin
> >> > >
> >> > > > Hi Robin
> >> > > >
> >> > > > I am new here too.I had 2 c-sections in 1988 and one in 1990
> >>Ihad
> >> > my
> >> > > gal
> >> > > > bladder removed during my second pregancy. I had my tubes tied in
> >>1991
> >> > > then
> >> > > > in 1992 I had my right ovaries removed becauseof cysts then in
>1994
> >>I
> >> > had
> >> > > a
> >> > > > complete hystrectomy and I had lap in may of 2000 for my
>adhesions
> >>on
> >>my
> >> > > > instestines and small bowel then in August of 2000 dr wilson
>opened
> >>me
> >> > up
> >> > > > along my c-section cut to try to give me some releif but here I
>am
> >>again
> >> > > 31
> >> > > > years old I can not eat and the pain is unbearable my insurance
>has
> >> > > changed
> >> > > > and now I am dealing with someone who knows less than I do about
> >> > adhesions
> >> > > I
> >> > > > have to deal without any pain releif and I cry almost contsantly
> >>when
> >>it
> >> > > gets
> >> > > > real bad I go to the er and the head dr there knows how it feels
> >>because
> >> > > his
> >> > > > grandmother suffered for years with adhesions. So hang in there
>and
> >> > don't
> >> > > > give up. I hang on to a thread of hope that someone will help me.
> >>Tired
> >> > > and
> >> > > > feeling useless in Tenn. I wish you luck and will keep you close
>to
> >> > heart
> >> > > in
> >> > > > my prayers.
> >> > > >
> >> > > > wishing you the best
> >> > > >
> >> > > > Dawn
> >> > > >
> >> > > > to the unsubscribe form at
> >>http://www.adhesions.org/forums/listcmds.htm
> >> > >
> >> > > to the unsubscribe form at
> >>http://www.adhesions.org/forums/listcmds.htm
> >> >
> >>

> >
> >--

>first marriage, Doug and I never had any children. I know this is when
>the adhesions started I am sure, he was also born C section. I hope you
>are doing okay!
>
>Love,
>Toni
>


Enter keywords:
Returns per screen: Require all keywords: