Re: Toni

From: toni welsh (twelsh1@hotmail.com)
Tue Feb 27 06:06:39 2001


At Tue, 27 Feb 2001, jenny low wrote: >
>Hi Toni,
>
>I know that my tubal ligation and more than likely the reversal since it was
>a laparotomy was the beginning of my adhesions too. I had a tubal pregnancy
>3 years ago. They gave me a chemo drug to dissolve the pregnancy so I
>wouldn't lose the only working fallopian tube I had. I was still having
>problems. They went in to remove a cyst formed on the ovary due to the
>pregnancy. They were supposed to be doing it with a laparoscope. There were
>so many adhesions that they had to open me up. THe doc said I had had other
>tubal pregnancies in the same place. The following year I was in the
>hospital for what they thought was a hemmorhagic cyst. It ended up being
>adhesions and a swollen fallopian tube. The doc thinks maybe it was a
>possible tubal pregnancy again. There is no telling how many babies I have
>in heaven waiting on me. I have 3 birth children, all girls, and 4 adopted
>boys, and all my babies in heaven. I know of at least 3 miscarriages other
>than the tubal pregnancies. I had a hysterectomy last June at the age of 34.
>I feel like my body is years older than it actually is. Even the fertility
>doctor told me that my hormones levels were that of a much older woman and
>that was before the hysterectomy. My story is on the quilt. Sounds like we
>have some things in common as far as surgeries go. I hope you are doing
>well. Take care!
>
>Love, Jenny
>
>>From: twelsh1@hotmail.com (toni welsh)
>>Reply-To: adhesions@adhesions.org
>>To: Multiple recipients of list ADHESIONS
>><adhesions@mail.medispecialty.com>
>>Subject: Re: Millie
>>Date: Tue, 27 Feb 2001 06:06:11 -0600
>>
>>At Tue, 27 Feb 2001, jenny low wrote:
>> >
>> >Hi Millie,
>> >
>> >How are you doing? I was wondering about when you had your hysterectomy
>> >done. Did the doctor discuss with you at all about the type of surgery
>>that
>> >you were supposed to be having done? What type of surgery did you sign
>>the
>> >consent form for? I don't want you to beat yourself up for allowing this
>> >woman doctor to open you up. I have been there and done that myself. I
>>hated
>> >myself for years after I had a tubal ligation. It was not something I
>> >wanted. I was pushed into it by family members and a doctor who told me I
>> >could go into kidney failure if I got pregnant again. I should not of
>> >listened and done something I really didn't want to do. And what did I
>>get
>> >out of it but periods that lasted 2 weeks and came every 2 weeks. When I
>>had
>> >the tubal reversed I got adhesions. So it is just has been a never ending
>> >battle. But I had to learn to forgive myself. I listened thinking that
>>what
>> >everyone wanted me to do was in my best interest. I have learned since
>>that
>> >that is not always so. IT has made me a stronger person because now no
>>one
>> >pushes me into anything that I am not ready to do. I don't believe that
>>it
>> >is any different with you. I believe that you allowed this doctor to open
>> >you up thinking it was in your best interest, that she was helping you.
>> >Isn't that true? You thought she was someone you could trust. We should
>>be
>> >able to trust our doctor. So don't blame yourself now. She failed you not
>> >you failed you. So don't hold that against yourself. You need to forgive
>> >you. Sometimes it is hardest to forgive ourselves. I know it took me
>>years
>> >to forgive myself. And sometimes I still struggle with it. I am just
>>sorry
>> >that your doctor failed you and that you have to endure so much pain
>> >physically as well as emotionally. Remember that it is not your fault. I
>> >hope you can find some peace in what I have said. I also hope that you
>>find
>> >a doctor who can build your faith and trust back up in doctors. Not all
>> >doctors are bad. You met the ones there in Scranton. I don't think they
>>were
>> >pushing you aside. I think they just want the average time for healing to
>> >pass so they can know for sure that it is adhesions that reformed and not
>> >just that you haven't completely healed from your surgery. It might do
>>you
>> >more damage in the long run if they went in before you had time to heal.
>>I
>> >really believe they were looking out for your best interests. So be
>> >comforted in that. I have never met these doctors but with all the good I
>> >have heard and read about them, I don't think there could be any other
>> >reason why they might make you wait. Now if your doctor did your
>> >hysterectomy without your consent and without explaining in detail what
>>she
>> >was doing, then I would think you have grounds for a law suit. Even
>>though I
>> >have had numerous surgeries my doctor always goes over all the risks
>>anyway.
>> >He even tells me "I know you have been through this up teen million
>> >times...but these are the risks and this is what I am doing". And they
>>also
>> >go over it in the hospital. I have consent forms from my doctor and
>>consent
>> >forms from the hospital. SO find out exactly what you consented to and go
>> >from there. I hope I can be of some help to you. I hope your pain has
>> >ceased. I'm thinking about you.
>> >
>> >Love,
>> >Jenny
>> >
>> >>From: "Millie" <milliem@citlink.net>
>> >>Reply-To: adhesions@adhesions.org
>> >>To: Multiple recipients of list ADHESIONS
>> >><adhesions@mail.medispecialty.com>
>> >>Subject: Re: Millie: some help with your anger
>> >>Date: Sun, 25 Feb 2001 16:04:31 -0600
>> >>
>> >>Dear Trace,
>> >>Thanks for the suggestions. This morning I thought I'd die when I tried
>>to
>> >>have a bm. It was awful. I took a Dulcolax suppository, and 3 Tbsp.
>>Haleys
>> >>M O with water. I finally went some, but the pains get worse. I went to
>>see
>> >>Dr. Redan, but my luck- he said he couldn't do anything right now. He
>> >>looked
>> >>at the scar, and pressed around. He said to wait a few months. I am to
>>the
>> >>point that I don't know what to do. I think I need to find new Drs. Yes,
>>I
>> >>was abused. The male nurse practitioner asked me in January - "Did you
>>have
>> >>your uterus yanked out yet?"
>> >>I should have ran the other way then. I went back to their e.r., and the
>> >>Dr.
>> >>was not nice. He told me it is colic. I asked how he'd know without
>>not
>> >>running any tests. I told him that I am going to have to get away from
>>them
>> >>and find new Drs. I told him I know the surgery was unneeded. He got
>>real
>> >>smart and said, "YOU signed for it!~!" I told him we were supposed to
>>have
>> >>agreed that I wanted her to check for endo, and fix what she could of
>>that,
>> >>and she was going to check left ovary for adhesions, & cysts. She only
>> >>wrote possible hyst.
>> >>There's nothing on the pre op, or post op that showed the need for a
>>hyst.
>> >>Both said - chronic pelvic pain, endometriosis(she wrote 'minimal') and
>> >>history of pelvic adhesions. Dr. Redan's medical assistant asked me why
>>she
>> >>took everything, and I said I also wonder. I saw Dr. Redan give him a
>> >>funny
>> >>look. Do you think he either figured for the money, or for some other
>> >>reason. I saw the look he gave his helper.
>> >>Millie

>>> >>----- Original Message -----
>> >>From: "niko" <nicko69@dingoblue.net.au>
>> >>To: "Multiple recipients of list ADHESIONS"
>> >><adhesions@mail.medispecialty.com>
>> >>Sent: Sunday, February 25, 2001 12:26 AM
>> >>Subject: Millie: some help with your anger
>> >>
>> >> > Hi MIllie,
>> >> >
>> >> > Millie I see your anger in your messages, and we all sympathize
>> >>immensely.
>> >> > Most of us have dealt with the same situations at one time or
>>another. I
>> >> > used to believe that my anger kept me going. I was angry at the
>>doctors,
>> >> > angry at my body, angry at anyone who would listen really. I have
>>learnt
>> >> > alot from this board. One of the best revelations I have made is NOT
>>to
>> >>be
>> >> > angry anymore, You see it makes my condition 100% worse. I cannot
>>take
>> >>back
>> >> > what has been done to my body. It's unfair sometimes. It really is.
>>My
>> >> > situation needn't have ended up with nearly 30 operations.
>> >> >
>> >> > Acceptance of things I cannot change releases the tension you will
>>feel.
>> >>The
>> >> > stress you are putting yourself under will be felt throughout your
>>body.
>> >>You
>> >> > do need time to let your body heal from your hysterectomy. It is a
>>very
>> >> > major operation as unneccessary as it may well have been.
>> >> > I was able to communicate better with my doctors when I wasn't so
>>angry.
>> >>It
>> >> > enabled me to explore my options without any accusations and defenses
>> >>they
>> >> > put up to me.
>> >> >
>> >> > Irritable Bowel is often misdiagnosed with adhesions, but it is also
>>a
>> >>real
>> >> > complaint. I take "Colofac", and it relaxes my bowel when it becomes
>> >> > irritated. I do not have irritable bowel symtoms from food, but from
>>the
>> >> > operations. I only realised the extent of irratability when the
>>tablets
>> >> > relaxed it. I know it sounds like doctors are "palming" your pain
>>off,
>> >>but
>> >>I
>> >> > think it is worth entertaining this idea with the problems you are
>> >> > experiencing. Drink lots of water as it flushes your system and
>>hydrates
>> >> > your bowel. A dehydrated bowel causes so much pain. I know this for a
>> >>fact.
>> >> >
>> >> > When we are in constant pain, it makes you extremely edgy. It brings
>>out
>> >>the
>> >> > worst in anyone. How could it not? I don't think anyone truly
>> >>understands
>> >> > until they've lived with it for awhile. You will have plenty of time
>> >>when
>> >> > you are strong enough, to deal with these insensitive doctors.
>> >> >
>> >> > What was Dr. Redan's suggestions for helping your bowel movements?
>> >> >
>> >> > Millie, I truly hope that you find some relief, I really do. You have
>> >>been
>> >> > mistreated and abused.
>> >> >
>> >> > I wish I could give you something to make it all right again, but I
>> >> > can't.... so the next best thing is our support.
>> >> >
>> >> > Your pain pal
>> >> > Trace xo
>> >> >

>>> >> > ----- Original Message -----
>> >> > From: "Millie" <milliem@citlink.net>
>> >> > To: "Multiple recipients of list ADHESIONS"
>> >> > <adhesions@mail.medispecialty.com>
>> >> > Sent: Sunday, 25 February 2001 12:35
>> >> > Subject: Re: Re:Robin
>> >> >
>> >> > > Dawn'
>> >> > > I read your note about the pain from adhesions. It is a terrible
>> >>thing.
>> >>I
>> >> > > have not been right since I had the TAH in January. She tried to
>>say
>> >>it's
>> >> > > irritable bowel. She laughed it off. Last night I wentback to the
>>e.r.
>> >>of
>> >> > > that hospital, and I had the same e.r. dr. I saw a few days after
>> >>surgery.
>> >> > > He wasn't too happy that I came back. All he did was bloodwork, and
>> >>tried
>> >> > > to say it is a colic. Bull!! Then he came back in, and was kind of
>> >> > > nasty,when he asked me why I didn't take the medicine she
>>prescribed.
>> >>I
>> >> > told
>> >> > > him that what she prescribed was Bentyl, which is constipating, and
>>so
>> >>is
>> >> > > Effexor. I told him I am angry that she took everything but 1 ovary
>> >>when
>> >> > > there was nothing really wrong with the organs. He got a bit snotty
>> >>and
>> >> > > said, "well, you must have signed forit." I'd like to report him.,
>>if
>> >>I
>> >> > knew
>> >> > > where. Also, sometime before I had the surgery , the male nurse
>> >> > practitioner
>> >> > > asked ,"Did you get your uterus ripped out yet?" He should be
>> >>reported.
>> >>Of
>> >> > > course, if if isn't on paper in a Drs. report, it doesn't exist in
>> >>their
>> >> > > eyes. I am having even more problems going. I went to see Dr.
>>Redan,
>> >> > > yesterday, but I came away even more discouraged, because he said
>>to
>> >>wait
>> >> > 3
>> >> > > months to be sure you're healed, then maybe he'd take a look. He
>> >>looked
>> >>at
>> >> > > the incision, and pressed around it some.
>> >> > > He was very nice, but I only saw him for 10 minutes at the most,
>>after
>> >> > going
>> >> > > 60 miles. After hurrying to fax in forms to them, to supposedly be
>>set
>> >>up
>> >> > > for the adhesiolysis. I have had more pain today. The little bit of
>> >>stool
>> >> > I
>> >> > > do pass, is small, painful, and it gets worse.Even to pass gas. I
>> >>don't
>> >> > want
>> >> > > to end up with an ostomy. Did you ever have a n.g. tube? Are they
>> >>really
>> >> > > painful to have inserted, or uncomfortable?
>> >> > > How would you feel if a Dr. or nurse practitioner said that to you?
>> >>What
>> >> > > would you do?
>> >> > > Millie

>>> >> > > ----- Original Message -----
>> >> > > From: <Cheechiebomb@aol.com>
>> >> > > To: "Multiple recipients of list ADHESIONS"
>> >> > > <adhesions@mail.medispecialty.com>
>> >> > > Sent: Saturday, February 24, 2001 1:55 PM
>> >> > > Subject: Re:Robin
>> >> > >
>> >> > > > Hi Robin
>> >> > > >
>> >> > > > I am new here too.I had 2 c-sections in 1988 and one in 1990
>> >>Ihad
>> >> > my
>> >> > > gal
>> >> > > > bladder removed during my second pregancy. I had my tubes tied in
>> >>1991
>> >> > > then
>> >> > > > in 1992 I had my right ovaries removed becauseof cysts then in
>>1994
>> >>I
>> >> > had
>> >> > > a
>> >> > > > complete hystrectomy and I had lap in may of 2000 for my
>>adhesions
>> >>on
>> >>my
>> >> > > > instestines and small bowel then in August of 2000 dr wilson
>>opened
>> >>me
>> >> > up
>> >> > > > along my c-section cut to try to give me some releif but here I
>>am
>> >>again
>> >> > > 31
>> >> > > > years old I can not eat and the pain is unbearable my insurance
>>has
>> >> > > changed
>> >> > > > and now I am dealing with someone who knows less than I do about
>> >> > adhesions
>> >> > > I
>> >> > > > have to deal without any pain releif and I cry almost contsantly
>> >>when
>> >>it
>> >> > > gets
>> >> > > > real bad I go to the er and the head dr there knows how it feels
>> >>because
>> >> > > his
>> >> > > > grandmother suffered for years with adhesions. So hang in there
>>and
>> >> > don't
>> >> > > > give up. I hang on to a thread of hope that someone will help me.
>> >>Tired
>> >> > > and
>> >> > > > feeling useless in Tenn. I wish you luck and will keep you close
>>to
>> >> > heart
>> >> > > in
>> >> > > > my prayers.
>> >> > > >
>> >> > > > wishing you the best
>> >> > > >
>> >> > > > Dawn
>> >> > > >
>> >> > > > to the unsubscribe form at
>> >>http://www.adhesions.org/forums/listcmds.htm
>> >> > >
>> >> > > to the unsubscribe form at
>> >>http://www.adhesions.org/forums/listcmds.htm
>> >> >
>> >>

>>first marriage, Doug and I never had any children. I know this is when
>>the adhesions started I am sure, he was also born C section. I hope you
>>are doing okay!
>>
>>Love,
>>Toni
>>

>
>--

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