Re: Thankyou Jackie

From: Helen Gibson (
Wed Mar 14 20:21:19 2001

Well put Trace, my feelings exactly

Love Helen G

> ----- Original Message -----
From: niko To: Multiple recipients of list ADHESIONS Sent: Thursday, March 15, 2001 10:11 AM Subject: Re: Thankyou Jackie

Hi Jackie,

Thankyou for sharing your story. I'm sure I speak on behalf of most of us when I say, it does help.

Unfortunately for sufferers, we do need to hear the malpractice, or surgeries that didn't work, as well as the successes. It gives us more options when we really understand the risks.

I was saddened to read what has happened to you though !! You have been through hell, and yet I felt some acceptance of it in your letter. Your courage and story I hope will spread knowledge and strength, as it has to me.

Please take care, and let us know how your going ;-)) Your pain pal Trace xo

> ----- Original Message -----
From: jackie burgess To: Multiple recipients of list ADHESIONS Sent: Thursday, 15 March 2001 9:05 Subject: PLEASE DON'T GIVE UP!!!!!!

Hi everybody, >
>6yrs ago I went into hospital on a friday morn. was told that i
>would only be in for half a day, had my op. removal of ovaries,
>that afternoon my hubby rang up to see if he could collect me to
>take me home, he was told there had been some sort of
complications, >but not told what. On the sat. junior dr came round on ward round
>and said that i could go home, I stated that I had not passed
>urine, or opened my bowels AND SIMPLY DID NOT FEEL WELL ENOUGH TO
>GO HOME, I was absolutely desperate to go to wee, so they inserted
>a catheter(relief). so they kept me in hospital. On the sunday
>morn.i felt a little better but not right, on the mon. morn. at
>6.30am they came to remove my catheter with the prospect of going
>home that day, well after that all hell broke loose I was being
>violently sick, but it was a horrible blacky/green in colour, and
>the pain was excruciating, this progressed for most of the morn. I
>went to try to open bowels but i was literally crawling on my hands
>and knees, i thought i was going to die(little did I know I was,
>actually). After my husband kicked up a right stink that the
>consultant should be called he eventually arrived around 3.00ish
>and said oops it looks like i might have nicked your bowel and
>bladder, because at this point I was totally incontinent of urine. I
>was then rushed into theatre as an emergency at around 10.00pm and
>came out of theatre around 2.00am with tubes in every orifice in my
>body, in my neck up my nose all over my body and to my horror and
>yes it was horror a colostomy, of course i was heavily sedated
>on morphine. I was kept in hospital for roughly 3 months so I had
>no alternative but to cope with my new friend!!! > HA HA. But
>everyone kept telling me how well i was coping, but they didnt know
>what was going on in my mind only i did, yes i'll admit i didnt want
>to carry on life as a 'Freak' but then i had to weigh up the
>alternatives. I KNOW I went through the tunnel to GOD. I could tell u
> everybody that was standing at my bedside mourning me, everything
>was white,the whole room was white and very very bright, but i
>wasnt frightened, it was so serene I eventually had the colostomy
>reversed in the dec. and its the worst mistake i had to make. at
>least i could do more things then than i can now.They didnt repair
>the whole in my bladder til the following february, that was worse
>than having a colostomy, you think u smell of urine all the time, and
>if and when i did go out i was wearing adult nappies two pairs
>of underwear just to try to remain dry, i did have a few mishaps and
>i just burst out crying with the humiliation of WETTING myself.
>I DID NOT find a colostomy hard to care for, as i didnt have a
>choice, hey this is what i'd been dealt so I had to get on with
>it, It was the coping mentally, what were people thinking of me,
>could they smell 'the pooh' all those kinds of things.would my
>hubby want to make love to me with a colostomy? Since then i
>have had 17 ops to try to sort all the problems out, but my inside
>is an absolute mess, and I wont ever be cured of pain. one of the
>worst things is trying to have a sex life, or opening my bowels.
>either of these things take me to my bed with so much pain, and
>sometimes vomiting straight after. as i said before i am now
>registered disabled and have not worked for 6 yrs since and cannot
>do housework cooking very often, all the things people take for
>granted.BUT this is how i'm going to be for the rest of my life so
>i HAVE to learn to cope, not saying that i do all the time,
>sometimes i'm so depressed, but what other choice do i have, GOD gave
>me a second chance at life, i've a job to do, still,on this earth,
>so i WILL do it to the best of my abilities, disabled or not.
>I dont mean to be patronising, but, try not to look on what could
>happen, all the time, YES u have to be realistic and be aware of
>what could go wrong, but you could get all het up worrying about a
>stay as positive as u can. I was just very unlucky, but then i let
>the judicial system fight my case, and happily i won. So many
>things go wrong in this world, but God put us on this earth as he
said "for just one day, any more time u get after that one day, is a >bonus.I know its hard to stay strong at times, but IF i can cope then
>i know others can Hope this answers some of your concerns, and
>if i've helped then its been my pleasure to share MY experience
>with others

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