Re: Welcome Tami

From: Sally Grigg (
Fri Mar 16 11:40:01 2001

Dear Tami, We're so glad you finally found this site. We all have much in common. Have you added your story to the Quilt? It's important. The more of us that join together the stronger we get, and maybe someday there will be answers and a pain free life. I have to say that I'm not always positive, but knowing there's some place to "chat" actually keeps me alive. Welcome, Sally Grigg

Tami Torres wrote:

> Hi fellow pain members, my name is Tami and I just joined this group. First
> to say I am so glad to find out I am not alone in this. I have been
> suffering with this disease for about 10 years, before that 10 years of
> endometriosis. I have two beautiful daughters, who are 7 1/2 years apart.
> I had a complete hysterectomy 5 years ago and have had 3 surgeries since for
> the adheisions. My hysterectomy lasted almost 6 hours due to massive
> adheisions, the doctor couldn't find my ovaries, bladder, ureters or much of
> anything else. Anyway, it's been 2 years since my last surgery and I
> haven't gone back to the doctor. I know what he will tell me. It's that
> time again. I am in terrible pain again. Almost constantly. I am just so
> very tired of this. At times I just can't take it any more. To make it
> even better, I have to be kept awake while under going surgery. I have to
> have an epidural while its being done. My bladder feels like its the size
> of a peanut. During my hysterectomy my doctor told me that the adhesions
> had wrapped completely around the bladder and was squeezing it like some
> type of vice grip or something. Anyway, just wanted to say hi, and thanks
> for listening and how much better I feel knowing I am not alone. For years
> I didn't know anybody else existed out there with this dreadful disease.
> Bless you all, Tami
> >From: (Wally)
> >Reply-To:
> >To: Multiple recipients of list ADHESIONS
> ><>
> >Subject: Re: New member/bladder adhesions?????
> >Date: Thu, 15 Mar 2001 17:14:55 -0600
> >
> >Hi Rose, my name is Joanne and there are many of us here who know
> >exactly what mean about adhesions around on or near the bladder. Just
> >the day before yesterday, my GYN told me that adhesions on the bladder
> >are quite common. Nice of them (doctors)to tell us that BEFORE surgery!
> >
> >Rose, I had my hystorectomy in Feb 2000, and if you look it up in the
> >archives you will find my story. I now have reduced capacity in my
> >bladder.....just 300mls immediatley AFTER being stretched under
> >anasthetc. It is healthy on the inside as confirmed by the uroligist
> >when he did the "stretch". My problem is caused by adhesions all over
> >my bladder, after 4 c-sections my bladder, uterous and abdomen were
> >"glued" together with thick adhesions. My hystorectomy took 5 1/2 hrs.
> >I returned for emergency surgery 5 days later. Because the same area
> >had been opened now five times, my muscle wall was weak, and half of my
> >bowel pushed through the muscle wall, forming a large hernia and
> >heamatoma (spelling....agh!). Because of the blood loss during surgery
> >and these 5 days, adhesions rapidly filled the empty space.
> >
> >Rose, I now experience pain before during and after urination and cannot
> >hold even a cup of urine in my bladder. The adhesions prevent the
> >bladder from expanding (the bladder is a bit like a balloon and swells
> >as the urine collects in it), therefore it can cause leackage and or the
> >urine can back up into the kidney's causing infection and can cause
> >other serious problems.
> >
> >I have been using Chinese herbal therepy, and find it has helped with
> >this part of my problem very well, I don't have the pain, and my kidneys
> >donot ache as much. (IT is wonderful to not have a constant back ache).
> >Everyone is different, and because the herbal is working for me, doesn't
> >mean that it will work for everyone. My advice is to try everything, do
> >lots of reading and research....ask lots of questions here on the board.
> >I have been able to make very serious decisions about my future
> >treatment with the help of some of the information here.
> >
> >As for seeing adhesions on a scan, I'm afraid they don't show up. The
> >only way to diagnose adhesions is by laperoscopy. This is a small
> >incision in the or just under the belly button, a small camera is
> >inserted into the abdominal cavity so that the doctor can look around.
> >Laperoscopy provides the least opportunity for more adhesions to form.
> >
> >My laperoscopy revealed that my ovaries are attached to my vagina, my
> >bladder is encased in adhesions and my bowel is adhered to the abdominal
> >wall. I am scheduled for surgery on April 9 to "clean up" and seperate
> >my organs, I was going to have my ovaries removed, but I have
> >reconsidered and will ask the surgeon to just seperate them first, and
> >only remove them if they are too damaged to remain, I am only 37yrs old.
> >
> >Don't loose hope Rose, as a support group, we will answer any question,
> >my motto is the only stupid question is a question that isn't asked. So
> >don't be afraid to ask ANYTHING, if we can't answer it, we will help you
> >find the right place to get the answer.
> >
> >Welcome to the board
> >Cheers and Hugs
> >Jo
> >
> >--
> >You will never never know.......if you don't give it a go :)
> >

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