Re: New Adhesions Sufferer Seeking Support

From: Mary Wade (
Mon Mar 19 10:20:44 2001

Dear Missy, Welcome from a bunch who reeeeeally understands! There is a great deal of information in the archives that will be helpful to you. My own personal shortcut to finding information is to just type "Helen Dynda" on the search and start looking at the wealth of informative websites that she has found for us. Take time to read the quilt. I return to it often. Why do I stick around even now when I am so much better after surgery? Because of that quilt. Who thought of that quilt for this site? It serves its stated purpose quite well. Anyway, welcome home :)))

At Mon, 19 Mar 2001, wrote: >
>Dear Friends,
>I guess everyone get's these letters, so here I am writing and hoping for
>some comfort and help.
>It's been a long few weeks, few months, few years. The doctors have just
>figured out that I have adhesions, but there doesn't seem to be one single dr
>out there who believes they cause pain or that is willing to do adhesiolysis.
>So I continue to suffer. Things got so bad this past weekend I went to the
>ER and complained of a backache just to get something for the pain. Isn't
>that retarded? Why should I have to lie? Why can't they understand that this
>pain is real?
>I would love to get some adhesion pen pals. I am 38, have had a complete
>hysterectomy 10 years ago, an appendectomy, my gallbladder is gone, I've had
>ovarian cancer w/mets to the uterus and cervix which led to the hysterectomy,
>and in total 13 surgeries in 15 years.
>I am the mother of 5 children. 3 are mine and 2 are mine by marriage. We
>have 2 grandkids with my step son and 3 grandkids with my daughter and
>another grandchild by my next to youngest son.
>I have the adhesions, CFS and Fibro, they are all inter-related I am told.
>Please tell me I am not nuts that this does get better! I don't know how
>much of this run around I can take going from dr to dr to dr going through
>the same tests over and over again. I am afraid to eat because of bowel
>obstructions (been hospitalized once for that and that was enough). I have
>horrible backaches and migraines from the adhesions on my spine and now I
>just don't know what to do. My family is afraid to say or do anything
>because I am not the same woman I was. Adhesions are ruining my life.
>If anyone out there understands where I am coming from I would love to hear
>form you.

Mary Wade

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