Re: New Adhesions Sufferer Seeking Support

From: Janet Karam (
Tue Mar 20 17:16:00 2001

Dear Missy,

We all empathize with your struggles, I'm so glad you found can be a dark and lonely road until you get here, but having the love support and diraction from people who have walked in your shoes is a huge comfort.

I had surgery for adhesiolysis, gall bladder removal and 4th stage endemetriosis in Scranton, PA last Thursday.

I would love to share my story and experience with you, please feel free to e-mail me directly.

You'll make alot of great friends here if you stick around.



>----- Original Message -----
From: To: "Multiple recipients of list ADHESIONS" <> Sent: Monday, March 19, 2001 7:51 AM Subject: New Adhesions Sufferer Seeking Support

> Dear Friends,
> I guess everyone get's these letters, so here I am writing and hoping for
> some comfort and help.
> It's been a long few weeks, few months, few years. The doctors have just
> figured out that I have adhesions, but there doesn't seem to be one single
dr > out there who believes they cause pain or that is willing to do
adhesiolysis. > So I continue to suffer. Things got so bad this past weekend I went to
the > ER and complained of a backache just to get something for the pain. Isn't
> that retarded? Why should I have to lie? Why can't they understand that
this > pain is real?
> I would love to get some adhesion pen pals. I am 38, have had a complete
> hysterectomy 10 years ago, an appendectomy, my gallbladder is gone, I've
had > ovarian cancer w/mets to the uterus and cervix which led to the
hysterectomy, > and in total 13 surgeries in 15 years.
> I am the mother of 5 children. 3 are mine and 2 are mine by marriage. We
> have 2 grandkids with my step son and 3 grandkids with my daughter and
> another grandchild by my next to youngest son.
> I have the adhesions, CFS and Fibro, they are all inter-related I am told.
> Please tell me I am not nuts that this does get better! I don't know how
> much of this run around I can take going from dr to dr to dr going through
> the same tests over and over again. I am afraid to eat because of bowel
> obstructions (been hospitalized once for that and that was enough). I
have > horrible backaches and migraines from the adhesions on my spine and now I
> just don't know what to do. My family is afraid to say or do anything
> because I am not the same woman I was. Adhesions are ruining my life.
> If anyone out there understands where I am coming from I would love to
hear > form you.
> Missy

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