Re: Help!

From: jenny low (
Sun Mar 25 21:01:32 2001

Dear anonymous(cmscas),

It is not your fault that you are in pain. And yes it is normal the way you feel. I believe all of us can relate to how you feel and what you are going through. I have 7 kids, 3 natural born and 4 adopted. Everyday I feel like I have let them down. They take care of me instead of me taking care of them. I hate it. I want to be able to do the normal everyday things. But right now it is not possible. I have good days and bad days. I think we all do. Some days I have excruciating pain even taking the pain meds and other days the pain meds keep it down for me. I have had adhesions surgeries 5 times. The last was February 16 and they area already back. I never had any relief from the pain. So I am now going to be going to see a pain specialist. It is almost useless to have surgery again just to develop more. I am hurting in places now that I didn't before this last surgery. My question to you is are you nursing your baby? If you aren't, there might be a chance that you could see a pain specialist as well who could get your pain under control and still allow you to be conscious enough and aware enough to take care of your infant without putting them at risk in any way. I don't mean that in a bad way, so please don't take it that way. I just know that some of the pain meds can really make you foggy headed, forgetful, knock you out, or not aware of your surroundings. I know because mine do that to me. That is at least one option that you can look into. The other is finding a dr who specialize's in adhesions. Don't go to just any one either. I heard good things about the surgeon who did my last surgery and how he would use a harmonic scalpel which would cut down on the chances of the adhesions coming back. Well, they came back. It depends alot on the individual as well I think though. There are several drs who are mentioned on the board here that are good. But they too have had patients whose adhesions reformed. I guess it just depends on the chance you are willing to take. There is always the chance that they can reform. That is not the drs fault, it is just our bodies. Whatever you decide to do though, know that you are not alone. You have all of your adhesions friends here who will be a great support and comfort to you. I hope I have been of some help and I hope you will keep coming back and sharing with us. Maybe you will even trust us enough to tell us your name. I have found some of the most amazing friends here. I wouldn't trade them for anything. I hope you find the answers that you are seeking. Take care and write soon.

Love, Jenny

>From: (cmscas)
>To: Multiple recipients of list ADHESIONS
>Subject: Help!
>Date: Sun, 25 Mar 2001 15:48:00 -0600
>Today is my first day visiting this site. I heard about it through
>another site for C-Sections.
>I had an emergency C-Section on October 28, 2000. Seven weeks later I
>was admitted to the hospital to undergo emergency abdominal surgery for
>a small bowel obstruction, multiple adhesions throughout my entire
>pelvis, hematomas and my uterus was stuck up high on the pelvic wall.
>About three months later, I was again admitted to the hospital for
>another eight days for an infection. (I have been home for about aweek
>and a half now and enjoying my four and a half month old!)
>My problem is pain. I live with it every day! Doctors say it's to be
>expected?!?! I don't have another bowel obstruction, so they say I'm
>okay. They also say that another bowel obstruction could for again in
>the future, even with no additional surgery. Once you've had these
>types of adhesions, they can keep coming back.
>The only problem I'm having is I don't feel okay. Some days I ache so
>bad I can't stand it. It's mind numbing. I try so hard to be there for
>my newborn, but when you are in so much pain, it's tough. On top of
>that, I feel like I've let my family down. Again, when you are in a lot
>of pain, it's so hard to keep your mind focused on day-to-day
>activities. I feel like I drive my husband crazy. I'm afraid he's
>going to leave me, as I'm not the same person I used to be. I'm also
>deeply saddened by the prospect that all this has rendered me infertile.
>I may not get the opportunity to have another child.
>Please, to any one out there, am I normal for the way I feel. Has any
>one experienced these types of feelings?
>I would also like to hear success stories out there about those who were
>told they may have a tough time having more children and were able to
>acheive a successful pregnancy. (My fallopian tubes, ovaries and uterus
>were full of adhesions and some of my Dr.'s feel another pregnancy may
>be hard for me)
>I look forward to hearing from some of you. I think this site is great
>and already feel better for having found it. At least I don't feel so
>crazy that I feel pain despite the medical community telling me there is
>nothing wrong with me. I now know, I'm not alone.

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