I am sorry you are having one of those days. I have had a rough day with my kids too. And then of course there is the pain. I agree with you. I surely don't know what I would do without all the encoragement that I get from this board. I am forever endebted to you all for the love and friendships that you have shown me.
I noticed that you are in Louisiana. I am in Houston. I have an appointment to see a pain dr on April 10. I was just wondering if Houston is closer than where you are going in Mississippi. If it is, then my home is open to you to come here to see a dr if you need to. I just thought I would let you know. I am going to be questioning this dr when I go and see if he is willing to treat more ARD sufferers. I know he is willing to treat me because I had to get all my records sent there before I could even set up an appointment. They reviewed them and called me to set up the appointment. So I know they will treat me. So if the dr in Mississippi doesn't work out, or you are closer to Houston and want to come here for a dr, then you are more than welcome to stay with my family. That would surely cut down on expenses too. I just thought I would offer. We are family now right?
I hope tomorrow is a better day for the both of us. If you need to ask me anything, you can post it here or email me privately.
Love, Jenny
>From: TediBrHugs@aol.com
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: UH OH I am falling apart at the seams!!!!!!!
>Date: Mon, 26 Mar 2001 22:46:23 -0600
>
>My dear supportive, loving, kind, caring friends,
>How would we get through a day without our letters of encouragement?
>I know that today has been the day from HE double hockey sticks and I feel
>like total crud, but I get on and read a post from someone feeling worse
>than
>me, someone suffering more than me, someone going through so much to get
>well
>and I think to myself.......but for the the grace of God.....and I keep
>going.
>It is just so hard sometimes and right now is one of those times......I've
>spent the whole day fighting with doctors and hospitals trying to get my
>medical records and half of them don't know where to find them and the
>other
>half want money (hahaha what;s that??). But I did get some thing
>accomplished and just when I thought the day was going to be ok, my pain
>wasn't too bad, I felt pretty good, the roof fell in. The pain is
>increasing
>and I am completely out of meds. The only choice for relief is an all
>niter
>at the ER and that doesn't appeal to me. Then my son (15) started testing
>my
>limits and we had a war and I started crying.
>Just once I wish that a male could feel this pain, endure this suffering,
>neglect, ignorance and despair. Just once. Even if it's only for a day.
>I
>know I know it won't happen, but hey a girl can dream cant' she?
>I do have the hope looming in the near future as I have an appointment with
>a
>pain specialist in Mississippi (I am in Louisiana) and it will be a 4 hour
>trip there and 4 hours back, but I know that it will be well worth it.
>(Keep
>reminding me of that ok guys?) and I will be out of the excruciating pain,
>or
>atleast it will be manageable. This pain that knocks your knees out from
>under you and totally incapacitates you is just too much to handle and I am
>going to demand the drugs to keep it under control I refuse to be a victim
>any longer.
>That's it!!!!!!! We are not Adhesion Sufferers............WE ARE ADHESION
>SURVIVORS!!!!!! WE ARE ADHESION WARRIORS!!!!! I like that!!!!
>OK OK enough crying, the keyboard is soaked again.
>I love you all my e-friends, for each of you in your own way has touched my
>life in a positive way. A special thanks to my advocate HC and tolerating
>my
>blondeness and chemo brains, I love you girl!
>Love,
>Missy the cry baby bear
>