Re: Help, It happened again..

From: Janet Karam (
Sat Mar 31 09:59:35 2001

Dear Regina,

What about looking into Dr. Redwine in Oregon? I have heard him mentioned a couple of times on the board. You might post a message to those who have seen him.

We all understand your frusration and anger, I don't think any of us have escaped the same kind of treatment you describe. My plight started in Denver August '98, it is truly horrible that I was as sick as I was, and only finally got real help March 2001, I can't tell you how many doctors later. So hang in there, there is hope, and you have so many of us here to help you through.

I have full confidence in Dr.'s Reich and Redan as they are the doctors who saved my life, they are the most compassinate caring doctors I have ever met. I understand your conflicts, however, and hope that you will not give up on finding proper deserve this!



>----- Original Message -----
From: "Regina T." <> To: "Multiple recipients of list ADHESIONS" <> Sent: Friday, March 30, 2001 6:30 PM Subject: Help, It happened again..

> I really cannot believe I actually had it happen again. I was referred
> to a prominent doctor/surgeon by my GI and waited weeks to see him. Upon
> my initial office visit he immediately admitted me into Temple
> University Hospital and stated he could help me and sees people with
> adhesions all the time. He proceeded to repeat all of the GI tests(?) I
> have had recently. I told them I had all of them last week but they
> said they wanted to do them again. They also took me to the short
> procedure unit and inserted a central line.
> I really thought I was on the right track with this one. Well, after
> seven days by myself in a hospital where I know no one and my family
> cannot visit me due to the distance, the "prominent" doc, whom I hadn't
> seen since my admission, arrives to tell me that he is not going to do
> anything further for me. He isn't going to do surgery or ANYTHING!
> At first I was in shock, then I just cried and asked why??
> He knew what my problem was going into this. He simply stated "YOUR
> CONDITION IS NOT LIFE THREATENING" and I asked what about my quality of
> life? He said" YOUR QUALITY OF LIFE IS NOT MY CONCERN" He then, get
> this, put out his hand like I would shake it. That's it, discharged.
> Pain management will see you before you go. Which they did-duragesic
> patch and some drug they use for parkinsons disease. I don't want to
> deal with pain docs anymore, I don't want the pain anymore, I can't take
> the pain anymore!!!Why, why, why won't anyone listen. So now I sit here
> at home, haven't stopped crying, in the middle of limbo. Why was my
> time wasted? This did it, I am done. I have lost jobs and precious time
> with my child. My marriage is barely there anymore. No one believes me
> about adhesion pain or even thier ability to cause such pain. I don't
> know where else to turn, I am truly tired. I was forced, not by my
> choice, to leave school for a semester on a academic leave due to
> medical condition. I truly now have nothing. Oh yeah, I tried the
> "patch" I heard it really helped some people, I woke up at three oclock
> with hives all over me and I was having a hard time breathing. Of
> course, I am allergic to the adhesive. One more strike against me. I
> know we are all supposed to be strong and supportive, and god knows I
> have tried to help people in my own way, but maybe now everyone will
> truly understand my bitterness towards the medical community and docs
> who don't understand adhesions and their sufferers. I am sure R&R will
> love to hear that I was shot down so severely by another doc. Hey, this
> one took my insurance but wouldn't help me. Then there are some who
> will help me, but won't take my insurance and want cash up front. Ugly
> cycle here, and in the mean time I am truly afraid for myself.
> Regina T.
> --
> Regina T.

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