Re: - Lets explain Adhesions to the world!!!!!

From: Millie (milliem@citlink.net)
Sun Apr 8 16:06:59 2001


Hi, Jo, I think we should include all the "gross" details, as that will give a good picture of what ARD can , and does do to us. Don't we all get tired of being told it's all in our heads? If I'm ever told IBS once more, I'm going to lose it, big time. Millie

>----- Original Message -----
From: "Wally" <wallamara@hotmail.com> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Saturday, April 07, 2001 11:36 PM Subject: Re: - Lets explain Adhesions to the world!!!!!

> Hi Jackie,
> That is why we are putting together press kits, so that we can send them
> to media around the world!
> The idea of the elstic bands and the sponge balls is to help get the
> attention of the media people. Any ideas? I took onboard Sally's
> comments about people not being interested in details (yuk) BUT I
> believe we need to "grose them out" to make them sit up and pay
> attention to our problem.
>
> If everyone keeps writing to people like Oprah & others, eventually
> someone will listen..........keep it up guys.....someone will listen to
> us eventually!
>
> Cheers & hugs,
> Jo
>
> At Sat, 7 Apr 2001, jackie burgess wrote:
> >
> >Maybe, it's just an idea but what about if one of the WOMENS MAGAZINES
could > >do some articles, with patients stories, doctors responses, any medical
> >interpretations, ideas.
> >
> > THIS CONDITION HAS GOT TO BE MADE MORE WORLDLY recognized even to the
> >medical proffession,
> >
> >ARD IS A DISABILITY -----NOT JUST IT'S IN OUR MINDS.
> >
> >just a thought , any ideas ???
> >regards
> >jackie B england
>
> --
> You will never never know.......if you don't give it a go :)
>


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