kindest regards jackie B englan
>----- Original Message -----
From: dawn <momofverymany@aol.com>
To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com>
Sent: Friday, May 04, 2001 7:49 PM
Subject: my tale of woe
> As you know I am new to the site.
>
> I do have the access to a pain management team. Stonybrook anethesia
> Pain clinic. I was very hopful when I was sent there in Dec 2000. The
> first words from the mouth of my primary md there was "Don't give up
> hope" .However, I feel that since I was sent there that all efforts to
> find the cause of my constant pain have been haulted. I have "only" had
> an MRI, a Sonogram, a Cystoscopy, and a Sigmoidoscopy. noone has
> actually looked at my "guts".
>
> Unfortunately for me I have "issues" that as time goes on and situations
> occur only get worse. I have been under the care of a psychiatrist due
> to the opinion of my 1st set of MDs that the pain was due to psych
> issues. I have taken all of the pills that have been prescribed. The
> only thing they managed to due was cause nausea, headaches, and a day I
> cannot remember because of an interaction error.
>
> Anything that has been suggested, I have tried. If i was told that
> hanging from my left nipple from the closeline in january would do it. I
> would try it. I guess I am having a very difficult time as I do not
> feel comfortable going to work taking narcotics, and quite frankly I
> require alotof narcotics to do the job. 50mcg Duragesic patch and 4mg
> Dilaudid q 4hrs to have adeqaute pain relief. And my work is my life.
>
> I have 6 kids that expect to be chaufferred here and there and they just
> don't understand the fact that mom is legally loaded. I am not
> comfortable doing it, so I forgo pain relief for peace of mind. My
> darling hubby is less than supportive. and to say he tells me I am
> making more of things than they are is a mild understatement. It should
> also be know that he works the evening shift, leaving me with the bulk
> of the child and house hold duties. I have asked him on more than one
> occasions to please change shifts, and Im told that we can't afford to
> have the decrease in pay. Evidently he doesn't realize that I have been
> out of work for the past 7 weeks without a paycheck.
>
> I had been using a continuous epidural pump. carried my pump with me
> everywhere I went that was wonderful. However, I kept developing site
> infections at the insertion site. So I would go from being essentially
> numb from the butt to navel to having the 100% pain back when it was
> removed. That my friends is a bad trip.
>
> I still have hope that I have some adhesions around a nerve or my l
> ovary that if released will bring some relief, I just need to find an MD
> willing to open me up with a regional anesthesia and I should be on the
> road to happy land.
>
> If anyone has a kind and compassionate MD near LOng Island Please let me
> know. My hubby won't even go into Manhattan, it's too far. And I'm
> hitting the opiates so I'm not driving these days.
>