Re: Nice to meet you all

From: Colette (anonymous@medispecialty.com)
Thu Jun 28 20:31:02 2001


Hi Mandii, Wow what you have been through! Welcome this is a great site as you can see! WE GET A LITTLE NUTTY SOMETIMES BUT WE LAUGH,CRY and smile together were like a family here My name is Colette i had a tah kept overies tons of bm problems well you know the story!Y ou take care! Hugs to you!! Colette >
>Hi, I recently had the pleasure of accidently coming across this message
>board whilst doing a casual web search on adhesions. And boy am I glad
>I did!
>My husband and I sat glued to the monitor, tears in the corners of my
>eyes and a kind of relief filling me.
>I guess all of us with adhesions go through it, but I felt so alone in
>my pain.
>Reading people telling of their pain, so similar to my own and hearing
>of others frustration and anguish has made me feel like I am not alone
>in this, there are many of us all fighting with the same demon.
>I rang my best friend and almost shouted into the phone that I had found
>the most amazing site. That I had read stories saying almost the exact
>same thing I had been feeling for so long.
>Sorry to sound so mushy, I realise none of you really know me at all but
>this is the first glimmer of light I have had in my dark world for a
>long time.
>All of a sudden here in front of me are a group of strong battlers who
>would know exactly how I am feeling without me seeking for words to try
>and explain it.
>I guess I should give you all a quick run down on who I am and why I am
>here.
>My name is Amanda, I am a 27 year old female. I live in Brisbane,
>Australia and am married to a terrific guy named Frank.
>I was diagnosed with Ulcerative Colitis when I was 6 years old and when
>I was 9 I had my large intestine surgically removed, followed by a
>number of other surgeries. A number of years later when I was 21 I had
>a hysterectomy (leaving both ovaries). Two years ago I started get a
>large amount of pain in the right side of my abdomen, ultrasound showed
>a growing cyst, I was taken to surgery days later to have it removed.
>They found out it was to be no simple ovary removal. They discovered
>the cause of my pain was not only a cyst but a large quantity of
>adhesions. They removed the ovary, closed up and then I went home.
>Months later I got that same pain on my left side. Another cyst on the
>left ovary. Although the cyst was only small they could not figure out
>why I was getting so much pain, surgery a number of days later explained
>why... adhesions. It took them many hours in surgery to remove the
>ovary as it was bound by adhesions to my bladder wall and end of my
>small intestine.Both ovary removals resulted in a large incision having
>to be made, to get around the adhesions to the source of the problem.
>The surgeon actually apologised to myself and Frank for leaving the
>surgery for days like he did. He said that he had no idea about the
>severity of adhesions inside of me and was stunned by the pain I had
>shakily dealt with.
>Two months after surgery was when the pain really kicked in. It came
>and went and I lived with it..with the help of codeine (which I can't
>take anymore as it makes me sick). About a year ago it got worse and
>hasn't settled since, it just gets worse, never better. Some days I
>find it a real chore to get out of bed. I walk down the hallway to the
>study and by the time I get there my abdomen is distended and hard as a
>rock. Pain shoots across my back, in my abdomen and down to my groin
>area. The pain when I pee, well I am sure you can imagine and god help
>me if I move the wrong way.
>I am very lucky to have an understanding doctor who supports me and
>helps me in anyway he can. He has me on methodone at the moment. But I
>am going to see him tomorrow morning as the methodone is no longer
>getting on top of the pain for me. Sometimes it dulls it but within an
>hour or two it is back, full blown.
>I am also really lucky to have a supportive husband and a group of
>online friends, a gaming group called CoFR made up of 500+ members.
>Anyway I hope I haven't bored you all to death with my story. I
>apologise for it being so long but I wanted to share with you all who I
>am and how I have come to be here and also my thoughts on what an
>amazing group of people you all come across as :) You all have so much
>pain and yet the support you offer each other, the smiles and happy
>cameraderie is truely a wonderful thing to see.
>
>Best Wishes and Keep Smiling, Mandii

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