Hi Mandii,
Wow what you have been through! Welcome this is a great site as you can
see! WE GET A LITTLE NUTTY SOMETIMES BUT WE LAUGH,CRY and smile together
were like a family here My name is Colette i had a tah kept overies tons
of bm problems well you know the story!Y ou take care!
Hugs to you!!
Colette
> >Hi, I recently had the pleasure of accidently coming across this message >board whilst doing a casual web search on adhesions. And boy am I glad >I did! >My husband and I sat glued to the monitor, tears in the corners of my >eyes and a kind of relief filling me. >I guess all of us with adhesions go through it, but I felt so alone in >my pain. >Reading people telling of their pain, so similar to my own and hearing >of others frustration and anguish has made me feel like I am not alone >in this, there are many of us all fighting with the same demon. >I rang my best friend and almost shouted into the phone that I had found >the most amazing site. That I had read stories saying almost the exact >same thing I had been feeling for so long. >Sorry to sound so mushy, I realise none of you really know me at all but >this is the first glimmer of light I have had in my dark world for a >long time. >All of a sudden here in front of me are a group of strong battlers who >would know exactly how I am feeling without me seeking for words to try >and explain it. >I guess I should give you all a quick run down on who I am and why I am >here. >My name is Amanda, I am a 27 year old female. I live in Brisbane, >Australia and am married to a terrific guy named Frank. >I was diagnosed with Ulcerative Colitis when I was 6 years old and when >I was 9 I had my large intestine surgically removed, followed by a >number of other surgeries. A number of years later when I was 21 I had >a hysterectomy (leaving both ovaries). Two years ago I started get a >large amount of pain in the right side of my abdomen, ultrasound showed >a growing cyst, I was taken to surgery days later to have it removed. >They found out it was to be no simple ovary removal. They discovered >the cause of my pain was not only a cyst but a large quantity of >adhesions. They removed the ovary, closed up and then I went home. >Months later I got that same pain on my left side. Another cyst on the >left ovary. Although the cyst was only small they could not figure out >why I was getting so much pain, surgery a number of days later explained >why... adhesions. It took them many hours in surgery to remove the >ovary as it was bound by adhesions to my bladder wall and end of my >small intestine.Both ovary removals resulted in a large incision having >to be made, to get around the adhesions to the source of the problem. >The surgeon actually apologised to myself and Frank for leaving the >surgery for days like he did. He said that he had no idea about the >severity of adhesions inside of me and was stunned by the pain I had >shakily dealt with. >Two months after surgery was when the pain really kicked in. It came >and went and I lived with it..with the help of codeine (which I can't >take anymore as it makes me sick). About a year ago it got worse and >hasn't settled since, it just gets worse, never better. Some days I >find it a real chore to get out of bed. I walk down the hallway to the >study and by the time I get there my abdomen is distended and hard as a >rock. Pain shoots across my back, in my abdomen and down to my groin >area. The pain when I pee, well I am sure you can imagine and god help >me if I move the wrong way. >I am very lucky to have an understanding doctor who supports me and >helps me in anyway he can. He has me on methodone at the moment. But I >am going to see him tomorrow morning as the methodone is no longer >getting on top of the pain for me. Sometimes it dulls it but within an >hour or two it is back, full blown. >I am also really lucky to have a supportive husband and a group of >online friends, a gaming group called CoFR made up of 500+ members. >Anyway I hope I haven't bored you all to death with my story. I >apologise for it being so long but I wanted to share with you all who I >am and how I have come to be here and also my thoughts on what an >amazing group of people you all come across as :) You all have so much >pain and yet the support you offer each other, the smiles and happy >cameraderie is truely a wonderful thing to see. > >Best Wishes and Keep Smiling, Mandii