Re: NASAP info?
From: Hchalm@aol.com
Sat Jun 30 22:36:24 2001
Dearest Cheryl:
When I was desparately looking for a doctor over a year ago, after finding
out I had adhesions, and couldn't find a doctor to help me with the
horrendous pain I was in, I stumbled upon the NASAP site. Once in the sight
I saw the panic button and filled out the form telling them that I was in
terrible pain, had ARD and what that was, etc., and sent it on its way. I
heard back from a representative from the sight that they would assist me in
looking for a pain specialist. After doing so, I also found the ASAP site
and filled out their pain form and e-mailed it to a state representative for
my state. The next day I heard back from the ASAP site that I could give her
a call and she would help me find a pain specialist. I never had any
dealings with NASAP again, as it is mostly for assisting those in Canada, and
I was referred to a wonderful pain specialist in Virginia from the ASAP site
who I have been seeing ever since.
I do not think ARD is listed in their site at all, as it is not listed in
ASAP either (seems our disease is an unknown disease to both sites until
hearing from me), but not enough of us have gone to either site, it seems,
for our disease to be listed. It would be nice if we could change that!!!
I have not browsed through the NASAP site since last year to know exactly
what it is all about, I only posted it for those that are from Canada and
were in desparate need of a pain specialist, as I stated, there is a PANIC
BUTTON THERE to keep pain patients from commiting suicide, and at the time I
was browsing the site that was all I was interested in.
Perhaps a copy of the IAS News Letter should be sent to their site also to
enlighten them about our disease, and it could be listed along with all the
other diseases that are hard to diagnose and patients have a difficult time
finding adequate pain medication for. I'll add it to my list of who to send
the IAS News Letters to.
In Friendship,
Helen Chalmers
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