Hi Amy,
My name is colette, first of all i'm soo sorry for your daughter! She
will be in my thoughts and prayers! second of all you hang in there this
has got to be soo hard on you! I have 2 sons and a daughter and i could
not imagine its bad enough i have problems with this dreaded
thing!!!Please keep us up dated!!!
Many many hugs and kiss and prayers your way all my love, Colette
> >Megan has been admitted to the hospital. She's scheduled for an >UGI/SBFT with "enteroclysis" tomorrow.. which means that instead of >swallowing the barium, they will insert a catheter down through her >esophagus and into her duodenum, inflate it and put in the contrast that >way. It will be more uncomfortable/painful for her, but the surgeon and >GI feel that they will get a better picture of what is going on in her >insestines that way vs. the standard barium swallow. > >Surgeon is still reluctant to do surgery *just* for adhesions, and is >basially looking for a clear reason to operate. He also needs to know, >if he does go in there, exactly what area of intestine he will be >targeting, rather than having to manipulate and look at all of it and >thus increasing the chance of adhesions throughout the intestine as >before. Laproscopy is NOT an option for her due to the extent of her >adhesions, he wouldn't even be able to get the scope through. Long >term, they are talking giving her a port-o-cath for better IV access, >especially if she won't be eating for awhile. She's pretty down but is >being a trooper. Still on only Ultram for pain, again, reluctant to >give narcotics due to the narcotic bowel syndrome she developed before. >Still, he paints a pretty grim picture of the future for her... says it >is likely she will have to live with pain from adhesions most of her >life, and will have to learn to deal with it. Plan is to create a team >of pain management specialist, gi, surgeon, and nutritionist to >coordinate her care, long-term. > >Damn this disease (crohns) and adhesions.