Re: Amy/Megan

From: Amy (adkramer@mediaone.net)
Tue Jul 10 20:51:43 2001


Well, here's the scoop.

Upper GI showed NOTHING significant. barium went through fine. no obvious obstructions or strictures. So, adhesions may be causing pain, but they are not causing enough "trouble" to warrant surgery apparently. I haven't talked to the surgeon yet.. but that is what I gathered from talking to the nurses. I missed him when he made rounds tonight, dammit. I hope to catch him tomorrow and have a long talk. My biggest concern right now is, whether or not the tests are showing an obstruction caused by the adhesions, the fact is SHE CANNOT EAT. This is the 3rd time since April now that when advanced beyond a soft diet, her ostomy stops outputting and her pain is back. Yet, air still gets through, and eventually after bowel rest the ostomy starts working again. What's the answer, keep her on TPN or a soft diet INDEFINITELY?? IS that any way for her to live?? I realize the surgeon is afraid he will make things WORSE by operating, and that is a possibility.. but hell shouldn't we just take that chance????

Very frustrated and discouraged here. I hope to have answers to these concerns tomorrow. Megan is doing better than I am, I think. I expect she'll be in a few more days, advanced her diet slowly again and bring in the pain management specialist again to consult.


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