Re: Amy/Megan

From: marianne bolding (ojowojo@yahoo.com)
Tue Jul 10 22:25:49 2001


I thought they were doing more than an upper GI...I'm actually disappointed. What about the colonoscopy, there are so many problems a simple upper GI won't find. This is the test where she drank the barium? Has anyone checked into IBS (D), Does she vomit, or diarrhea...or both? I hope she hasn't lost too much weight, does she faint ever? another symptom to watch for with certain diseases. And if adhesions are really bad...an upper GI will not allow full visibility. I thought I'd have gained some weight at my drs. appt. today. I actually lost more. I'm a melting pot of 99. That's 11 lbs. gone. Yet, the OBGYN dr has done his part of detaching the ovary from the intestine. However, he neglected to (since I was already open and he had the camera inside) do a full check of the abdomen area. He's just referred me to see a gastroinologist, too check. I'm dissapointed to find this out. Why wouldn't he have fully checked all he could within his realm of medical capability? That's how I feel for Megan...why just a GI? Mostly, right now...since you haven't talked to the dr. personally, yet...I shouldn't pass judgement. Maybe he has more to say than what the nurses are telling you he does. I'll wait for the update. I looked up ostomy....what is it? colon, ileum,...colonostomy is to check for cancer? I'd like to read my medical reference book to see if it has any suggestions for foods to try or avoid. If you'd like. I wish I could do something for both of you. Love, Marianne--- Amy <adkramer@mediaone.net> wrote: > Well, here's the scoop.
>
> Upper GI showed NOTHING significant. barium went
> through fine. no
> obvious obstructions or strictures. So, adhesions
> may be causing pain,
> but they are not causing enough "trouble" to warrant
> surgery apparently.
> I haven't talked to the surgeon yet.. but that is
> what I gathered from
> talking to the nurses. I missed him when he made
> rounds tonight,
> dammit. I hope to catch him tomorrow and have a
> long talk. My biggest
> concern right now is, whether or not the tests are
> showing an
> obstruction caused by the adhesions, the fact is SHE
> CANNOT EAT. This
> is the 3rd time since April now that when advanced
> beyond a soft diet,
> her ostomy stops outputting and her pain is back.
> Yet, air still gets
> through, and eventually after bowel rest the ostomy
> starts working
> again. What's the answer, keep her on TPN or a soft
> diet INDEFINITELY??
> IS that any way for her to live?? I realize the
> surgeon is afraid he
> will make things WORSE by operating, and that is a
> possibility.. but
> hell shouldn't we just take that chance????
>
> Very frustrated and discouraged here. I hope to
> have answers to these
> concerns tomorrow. Megan is doing better than I am,
> I think. I expect
> she'll be in a few more days, advanced her diet
> slowly again and bring
> in the pain management specialist again to consult.
>
> http://www.adhesions.org/forums/listcmds.htm

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