Re: :-) Thnx Mandii :-)

From: Mandii (minimandii@hotmail.com)
Mon Oct 22 06:16:37 2001


At Mon, 22 Oct 2001, Wally wrote: >
>Dear Mansii,
>
>I knew that your intentions were good, and that is why I wanted to
>respond to your post, I'm all for everyone posting & responding in their
>own way. I admire your determination to be pain free & doing it without
>medication.
>
>Believe it or not, before this all happened I rarely took a panadol for
>a headache! It was only after much stamping of feet (hubby) and raised
>voice saying "take 2 tablets & go to bed!!!!!" LOL I am very stubborn at
>times I am reliably told.
>
>I have lived with pain my whole life, I was born with dislocated hips,
>they weren't corrected until after I learned to walk! So I have had
>residual pain from that ordeal ever since, because my hip joints aren't
>properly formed.
>
>I was recently told by a councilor that because I have lived with it all
>this time, I have a higher resistance to pain, and cope better. Please
>don't misunderstand me here & think that I think I am better than anyone
>else, because can tell you right now, I have my warts & carbuncles!
>
>Is it puerly self control you are using to deal with your pain? Are you
>using any meditation or relaxation exersises or tecniques? I am always
>intyerested to learn how individuals cope, because I never know when I
>am going to learn something new! :-)
>
>Glad you are posting on the board, I look forward to your future posts.
>
>Hope you are having a great day!
>
>Love & warm hugs,
>Jo (Australia)
>
>At Sun, 21 Oct 2001, Mandii wrote:
>>
>>At Mon, 22 Oct 2001, Jo Eslick wrote:
>>>
>>>Mandii,
>>>
>>>Thank you for taking the time to reply, I appreciate it very much. There is
>>>one thing that I would ask you to keep in mind, being positive about illness
>>>& pain is very important, and I am usually VERY positive about my disease,
>>>prognosis and pain. Sometimes though, we get to a point where we need to
>>>feel down, and seek a little sympathy...it's actually a very natural
>>>reaction.
>>>
>>>I am an active mother of 4 daughters (3 teenagers), and I also run a
>>>successful business with my husband, as well as work for several charities.
>>>I have been posting on the board since February this year, and if you look
>>>back through the archives you will see just how positive I can be :-)
>>>
>>>Everyone is entitled to an "off day" once in a while & feel the need to seek
>>>sympathy, that is what this site is all about. I'm glad that you are
>>>getting through your days with out medication, I have times when I can do
>>>that too.... but I choose to use medicine, when I need it to get on with my
>>>day & do the things I want to do...whether it be for my family, friends or
>>>even talking with my friends here on the board.
>>>
>>>Thanks again for taking the time to respond, I hope your positive attitude
>>>continues to help you cope with your pain.
>>>
>>>Love & gentle hugs
>>>Jo (Australia)
>>
>>--
>>Jo,
>>I am sorry if I gave the impression that it's not okay to have a "bad" day.
>>I guess in my way I was only offering my own personal experience that helps me.
>>I am really glad to see you keep a positive outlook in life.
>>And you are entitled to your off day, we all are. I really hope today is a better day for you.
>>-Mandii
>>
>--
>Positive Affirmation
>
>Say this with your hands above your head
>(victory style) and repeat three times:
>I'm Alive I'm Alert I'm a LOT of fun!!
>
>That should get you smiling!
>

--
Dear Jo,

I am a little like you I think. Well besides being a fellow aussie.... :) I have always been one to bite my lip, grin and make out like everything is better than it is. Put on a happy face and all that jazz. Over the years people have depended on my strength and I have gotten used to hiding pain etc from people who worry continuosly about me.

I have been sick since I was 6 years old. Over the years I have had quite a few surgeries and medical problems, which continue today. I can see we are both veterans where pain and medical history is concerned.

Mine started out as Ulcerative Colitis, went too total colectomy--> associated problems-->hysterectomy--> associated problems-->Right ovary removed due to complications(adhesions and cyst)-->3 months later left ovary removed for adhesions--> associated problems and now I get continuing problems such as small intestinal blockages, bad adhesion pain etc etc with the additive of have arthritis amongst other things.

At first I started taking low pain relief doses to take the edge off. As we all know that the pain can really start to take over. Then over time and a history of needing narcotics etc my tolerance to these pain meds was high. Eventually they had me on stronger doses and I was still suffering a great deal of pain. The crunch came when the pain management doctor strongly suggested I get a morphine pump.

I, like everyone else have my really bad days here and there and will lie down and breath, I listen to the sound of my breathing, really focus on it. I personally have found gently rubbing my abdomen in a circular motion (as a pregnant woman might do), and thinking of stuff I have planned for the next day, weekend etc I can overcome it for the most part.

Don't get me wrong I am not totally pain relief free. On the odd occassion nothing has worked and I have taken a morphine tablet or drunk some of that vile morphine liquid. I found my emotions were more unstable and things seemed to effect me alot more when I was taking regular pain relief also. I think what turned it all around was the fact that I have dealt with so much in the past and aknowledge I will have to do so in the future. I have survived and came this far, I will beat the pain and whatever else is thrown at me as well :)

Hope this is understandable :) Thank you I am having a great day, may you be also! Oh i am 28, married to a wonderful man and no children.

Take Care -Mandii


Enter keywords:
Returns per screen: Require all keywords: