>
>> ----- Original Message -----
> From: "Dolores" <dtouch@bellsouth.net>
> To: <adhesions@adhesions.org>
> Sent: Sunday, October 28, 2001 1:24 PM
> Subject: To Cathy Re: ok, everyone, I need the benefit of your 20-20
> hindsight
>
> > To Cathy:
> > It is very hard to give you specific advice about your condition and if
> you
> > are at a 1-2-3 level of pain and it does not last long and your life is
> not
> > being direly affected by it. It is not uncommon for women to have cysts
> on
> > their ovaries and sometimes they will rupture and set up some scar
tissue
> > which will bother you from time to time but I have been there and it was
> so
> > very livable compared to the hell I am in now. You should get the
report
> on
> > this just to see what it showed. My personal opinion is just to watch
it
> > and see what happens. I am one of the unfortunate ones who are adhesed
in
> a
> > way that I never get any relief(my small intestine is adhesed to my
> > diaphragm and both move 24 hours a day so there is no
> > relief for me. Sometimes I have to take two Vicodin ES to give me
enough
> > relief that I can just do my necessary activities and that just brings
it
> > down from an 11 to about a 8. I simply must have something done and
take
> my
> > chances as somedays death would be merciful. Wishing you the best.
> Dolores
> > dtouch@bellsouth.net
>> > ----- Original Message -----
> > From: "cathy:-" <anonymous@medispecialty.com>
> > To: "Multiple recipients of list ADHESIONS"
> > <adhesions@mail.medispecialty.com>
> > Sent: Saturday, October 27, 2001 11:15 PM
> > Subject: ok, everyone, I need the benefit of your 20-20 hindsight
> >
> > > I introduced myself a couple of weeks ago, but I'll recap...
> > >
> > > About 7 months ago I started having on-and-off sharp stabbing pains on
> > > my right side in exactly the same place and very much the same feeling
> > > as I get each month when I ovulate. But it is not nearly so
intense --
> > > my ovulation pain is 12 hours at about a 5 or 6, whereas this is more
> > > like 0, 1, 2, and an occasional spike to 3. At the same time I
started
> > > having an intense (like 6 or 7) pain at orgasm, which fortunately only
> > > lasts like 10 seconds or so. (When I read of you ladies who need an
> > > oxycondon to even consider sex I'm not sure whether I should be
> > > incredibly thankful that I don't have anything like that degree of
pain
> > > -- or really bummed that no matter how you look at it, it is now
> > > confirmed that EVERYBODY is getting better sex than me! <wicked grin>)
> > >
> > > About 6 weeks ago I visited my family practice doc, who listened to my
> > > description of symptoms and immediately guessed "adhesions." I knew
> > > something about adhesions because I have a book where the author talks
> > > about her surgical spiral where each new surgery for adhesions only
made
> > > the adhesions worse. The FP said that she would refer me to a
> > > gynocologist, and that if they decided it was adhesions then they
would
> > > probably go in and cut them. I immediately questioned that, "Don't
they
> > > just come back worse if you cut them? She said, "Uh, no, I don't think
> > > so." (But then she is not a surgeon. The important part is that she
> > > obviously believes that adhesions=pain, which I know is a good sign.)
> > >
> > > So she referred me to a gyne, who kept giving me "the look" -- as in
"if
> > > you only have this little bit of pain why are you in here
complaining?"
> > > This is in the middle of "ovarian cancer awareness month" where the
> > > article I read in the paper made this big deal about not brushing off
> > > vague abdominal symptoms, because with OC it's frequently true that
> > > there are vague "not right" things, but the first really significant
> > > symptom is often death. I kept feeling like she was saying that I
> > > didn't "deserve" her time because I wasn't in enough pain.
> > >
> > > The first doc had ordered a pelvic ultrasound which I had a couple of
> > > weeks after the appointment with the gyne. So far neither doc has
> > > called me with any results. I did get a bill from the hospital for
> > > DOING the ultrasound, but no bill from the radiologists for reading
the
> > > films. I posted to the Q&A board at obgyn.net because of 2 things
about
> > > the ultrasound -- one is that it took like 10 minutes, and two was
that
> > > the tech worked only from the left side of my bladder, which is a good
> > > 8-10 inches away from the pain on the right side. The doc on
obgyn.net
> > > told me that first of all it sounded like I needed a transvaginal
> > > ultrasound, not an abdominal one, but that anyway a "real" pelvic
> > > ultrasound requires moving the wand on both sides and the middle of
the
> > > abdomen.
> > >
> > > So I'm trying to figure out what to do next...
> > >
> > > Do I call my family practice doc and find out what the ultrasound
said?
> > >
> > > Do I call the radiologists and ask for a copy of the report? (At least
> > > that way I'll know that there IS a report!)
> > >
> > > Do I try for a referral to a different gyne? My FP clearly believes
that
> > > diagnosing and operating on adhesions are outside her expertise --
> > > although she DOES believe in them.
> > >
> > > I live in rural western IL. There is only one gyne who even does
> > > surgery at my local hospital -- I went to a nearby slightly larger
town
> > > to see the gyne. I know how many of you have had your inside (and
> > > lives!) totally mucked up by ignoramouses making a bad situation worse
> > > and worse... Should I just blow these people off completely? I've
been
> > > told that a diagnostic laporoscopy is "minimally invasive" surgery
like
> > > any schmuck can do it and do no harm. But there are those of you who
> > > clearly have formed new adhesions from diagnostic laporoscopies. I
have
> > > this idea of calling Drs Reich & Redan's office and going to Scranton
> > > for a lap. But I feel silly calling in the "A Team" when I don't even
> > > know for sure whether I HAVE adhesions! Which brings me back to my
> > > central problem... I'm really not in a huge amount of pain, and it's
> > > not interfering with my life. Except that part about how a
"successful"
> > > sexual interlude includes getting "kicked in the nuts" which really
> > > tends to put a chill on the old libido! So far I've only had one
> > > abdominal surgery, my (unnecessary) c-section 7-1/2 years ago. Does a
> > > diagnostic lap, even if done by a really good surgeon, mean a big risk
> > > that the adhesions and pain will get worse? I mean that seems like a
> > > pretty big price to pay to satisfy idle curiosity... What happens if
I
> > > just blow all these people off and wait until the pain becomes
> > > debilitating and then seek treatment?
> > >
> > > So, anyway, for those of you who've made it to the end of another of
my
> > > long rambling discourses... Once a lot of you were in roughly the
same
> > > situation I am now. Knowing what you know now, what do you think I
> > > should do? Think of me as you "doing it all over again." So I guess my
> > > question is "if you knew then what you know now, what would you have
> > > done?"
> > >
> > > --
> > > cathy :-)
> > >
> > > to the unsubscribe form at
http://www.adhesions.org/forums/listcmds.htm
> >
>