I'd say 'welcome' but I'd rather none of us had these problems ;0)!
So, I'll just say.....glad you found us! The only 'correct' way to use this site.....is to USE it. Scan for messages from Helen Dynda, the wonderful lady that posts all the articles with info and great links. Otherwise, we're here to listen, offer advice and, most of all, commiserate!
My best advice is to keep at your doctor! Get pain relief that doesn't require ER visits. Go to a pain magmt. doctor and NEVER feel that you are alone!
There are so many 'incidental' disorders that seem to go with ARD: Crohn's, IBS, migraines, etc. Just don't give up!
I don't get on line everyday, but feel free to e-mail me privately if you wish. And put your story on the adhesions quilt.....sometimes it is the easiest way to help find someone with similar circumstances.
kcmo ro(se)
At Mon, 29 Oct 2001, Jeanne wrote:
>
>New kid on the Block.
>Hello everyone, I have been getting wonderful notes from Nancy & Jo. I
>feel like I have found "heaven" with this web site.
>Here's a little about myself. (PS. I am not the best internet person,
>bare with me - thanks!)
>I am 51, single, live in northern Florida, have 2 cute pups and have a
>series of health issues, As we all do. I have Crohns, 7 years now also
>Solitary Retal Ulcerated Syndrome, have had a colonostomy 6 years ago, 2
>hernia repairs, abdominal reconstruction, had many sections of colon
>removed, the stoma remodeled and also a gastro bypass. So to say the
>least, I have a few adhersions. They only started bothering me about 4
>months ago. My surgeon says he doesn't want to do any surgery to remove
>them, not for at least 3 or 5 months. My last surgeery was in April
>2001.
>I believe the worst part is near the connection of the stomach & colon.
>I have been in the ER/Hospital 4 times since Father's Day (June) It
>feels like blockage, but now I am starting to beleive it maybe gas that
>is trapped from the scar tissue. That area turns hard as a rock and
>expands at least 5 inches. The pain is unbearable. It last for up to 8
>hours sometimes and then it will finally work it's way out. Every time
>I go to the ER it costs so much and all they do is give me morphine to
>relax me and do x-rays and tubes down my nose into my stomach to release
>the pressure. It's torture.
>Can anyone relate to all of this?
>I need some answers or directions. This seems like the place to start.
>Once again, this is all new to me and I appreciate all if anything
>anyone has to say. Please write when you can. And let me know if I am
>using this site correctly, thanks! Jeanne
>With great appreciation - Jeanne Dollypollysmom@aol.com
-- kcmo ro(se) ICQ #131145100 If you can't learn to do something well, learn to enjoy doing it poorly.