>----- Original Message -----
From: "dtouch" <dtouch@bellsouth.net>
To: "Multiple recipients of list ADHESIONS"
<adhesions@mail.medispecialty.com>
Sent: Wednesday, November 21, 2001 6:26 PM
Subject: Re: Trusting our doctors:Sally is RIGHT ON!
> Kimmi: If anyone with severe chronic pain said they were not depressed
they
> cannot possibly not have a certain amount of depression. Eventhough you
may not
> need specific treatment for depression, it is still a factor when you are
in
> chronic pain and yes it certainly makes ones pain worse.
> Love to all, Dolores in Louisiana dtouch@bellsouth.net
>
> Kimmi&Dave wrote:
>
> > Hi,
> > I have seen so many psychiatrist and you know what they tell me, You are
> > reasonable depressed. Nice hon.
> > Primarily though the doctors what you too see psychiatrists because
living
> > in chronic pain takes a huge toll on your mental condition. Almost
everyone
> > who lives with chronic pain is depressed. Depression causes more pain.
Pain
> > causes depression vicious cycle. So for all you are told they should
meet
> > with a phych. Most are not questioning if you are a crazy, they are
> > concerned that you may not mentally be able to handle it. But believe it
or
> > not they say that chronic pain patients are very strong. Stronger than
the
> > normal person who has a bout of pain.
> > Living with chronic pain is extremely difficult, I know I suffer with
> > terrible depression and anxiety. If they got rid of the pain most likely
my
> > depression would go away.
> > I have tried at least 10 different antidepressants to help with the
> > depression and anxiety none of helped.
> > Another thing is low dosages of anti depressants suppose to help with
pain.
> > Personally have not found this to be true for me, but some say it
> > helps..Hugs hon
> > Kimmi
>> > ----- Original Message -----
> > From: "Ginny Halpern" <gingin99@home.com>
> > To: "Multiple recipients of list ADHESIONS"
> > <adhesions@mail.medispecialty.com>
> > Sent: Tuesday, November 20, 2001 8:35 PM
> > Subject: Re: Trusting our doctors:Sally is RIGHT ON!
> >
> > > Everyone:
> > >
> > > I think Sally has hit the nail on the head. We suffer from a
> > > debilitating, very stressful medical entity that is so misunderstood
and
> > > even neglected by the medical profession that we are subjected to
> > > extremes.
> > >
> > > I have recieved many, many letters from you asking why you are being
> > > told once you've had a laproscopic exam and been diagnosed with
> > > adhesions to seek psychiatric assistance. It escapes me as to why
> > > surgeons are telling women, typically between 25 and 45 that
"adhesions
> > > do not cause pain" and therefore, are directing you to seek ongoing
> > > therapy. (mental "cleansing"!!)In effect, you are being told your
pain
> > > doesn't exist in your belly, only in your brain.
> > >
> > > We can all sit here on the chat board and talk about the multiple
> > > surgeries we have had, the various conflicting diagnoses we are
getting,
> > > the refusal by some pain management doctors to treat us long term with
> > > opioids for unmanageable pelvic pain, and the discussion of horror
> > > stories from ER visits where we have been accused of being drug
seeking
> > > junkies, "bored housewives" and people suffering with hypochondria and
> > > other insipid opinions.
> > >
> > > The bottom line remains, we have a valid, debilitating condition that
> > > has resulted either from too many operations performed by surgeons
> > > trying to cure the incurable with more cutting or by surgeons
attempting
> > > to get us off their backs (we are the bane of the surgeons's world
> > > because we never go away, never heal completely and always have a
degree
> > > of pain)
> > >
> > > I have watched this board evolve from a few dozen of us last year to
> > > hundreds, looking for answers and for help and I have yet to see
ANYONE
> > > announce that they are totally free of pain, have been treated like a
> > > human being with a legitimate illness and have found a resolution to
> > > their concerns.(Yes, I have seen remarkable responses from a very
small
> > > % of you who have had positive results from Dr Redan and others like
> > > him)But most of us are still floundering for help and for validation.
> > >
> > > By the way.............if you try to sign up for Social Security
> > > benefits based strictly upon your adhesions related disease and the
> > > subsequent pain and inability to control bladder/bowels, etc, you may
be
> > > surprised to learn that we are still not considered a valid disease
> > > process as far as SSI is concerned. It doesn't matter if you wet your
> > > pants every few hours and can't work without Morphine.....ARD isn't a
> > > "known disease" according to Social Security.
> > >
> > > If you are an alcoholic or drug abuser you stand a better chance of
> > > being accepted for Social Security disability benefits than if you
have
> > > adhesions! Believe me, I KNOW. I am fighting this right now, for
> > > myself.
> > >
> > > I guess we can all continue to talk about this and share stories,
which
> > > is a wonderful chance to release the frustration, and the
> > > anxiety.....OR...we can start petitioning someone to do something.
> > >
> > > I DO NOT know who to petition first, right now,, but I promise you I
> > > will make this my project if even a few of you offer me your support.
> > > I only want to know if even some of you are willing to work with me on
> > > educating doctors, surgeons, pain specialists and all others who are
> > > treating us like we are freaks, giving them the info they need and the
> > > resources they need to better educate themselves.
> > > I've got to tell you folks, over a year I have read the same concerns
> > > the same questions and the same responses from you and from your
doctors
> > > and I have seen very few of you who come back and talk about the
> > > "excellent, respectful, professional" treatment you have recieved
every
> > > time you complain of adhesional pain. Except for the few of you who
are
> > > lauding Dr Redan, I am not seeing a shift in the overall response to
our
> > > disease.
> > >
> > > Sally, you are 100% correct. We ARE AT THE MERCY OF THESE DOCTORS/
They
> > > do NOT know what they are doing with us and they are as frustrated as
we
> > > are, but now, the most current suggested surgical process is to remove
> > > all organs from our otherwise healthy bodies and hang bags and tubes?
> > > GIVE ME A BREAK!!!!!!!
> > >
> > > I am willing to petition Washington DC if necessary, and I will go
there
> > > alone! But I need your support, your thoughts and your ideas.
> > >
> > > You can talk all you want about this ache and that pain and the way
you
> > > are being ignored and lambasted but if you refuse to offer me the data
I
> > > need, I can only tell you I send my hugs, my best wishes and I sign
off
> > > this board for now.
> > >
> > > I need to know how you are recieved in ERs when you have a pelvic pain
> > > crisis. How your family doctor is treating your ongoing pain. How
the
> > > surgeons are directing you once they've established that you have
> > > adhesions. What you are being told as a long term prognosis after
> > > surgery. If your pain is being managed sufficiently. If you are
being
> > > told to (in effect) get lost after your inscision has healed.
> > > I need data before I can go to bat for you and for me.
> > > Help me help you?
> > >
> > > We can't be cut open every few months, fed pain pills and told to see
a
> > > psychiatrist as a final solution. We need to be recognized as people
> > > with a disease process as valid as diabetes or cancer.
> > > I need your input......Please.
> > >
> > > Ginny
> > >
> > > gingin99@home.com
> > >
> > > At Tue, 20 Nov 2001, Sally Grigg wrote:
> > > >
> > > >Sometimes we trust our doctors too much. We don't really have many
> > > >choices, but sometimes we can just say NO. And go looking for a
doctor
> > > >who isn't so quick to cut. We're in a no win situation with the
medical
> > > >care situation as it currently functions. Since they don't really
know
> > > >what they are doing, we are at their mercy. And we are in such pain,
> > > >that we'll say yes to just about anything to alleviate the pain. It
> > > >would be better most of the time to take pain pills until the
> > > >researchers find a cure and they will. I have faith. Love to all,
Sally
> > >
http://www.adhesions.org/forums/listcmds.htm
> >
>