How would you like to be only 45....tired of living your life the way I have to live mine...but know that you won't be able to be a wife or a mother....not for very long.
Are you terminally Ill? are you dying from cancer? Sorry if its upsetting.
Sorry I can't think of anything else that may help me, I am on my last nerve living in pain for 16 years, the last 5 became full chronic pain, I am unable to do so many things, and it makes me feel totally worthless. I do love and cherish my husband and Kids, and all are awesome, and always willing to help. They constantly ask when I come home from the doctor.. Is he gonna fix you mommy! Really have nothing to say, Nope not today hon.
Well off to bed soon. Hugs kimmi
>----- Original Message -----
From: "Karla" <ifirgit@new.rr.com>
To: "Multiple recipients of list ADHESIONS"
<adhesions@mail.medispecialty.com>
Sent: Saturday, November 24, 2001 12:37 AM
Subject: Re: Welcome Kimmi & Dave from Sally
> Kimmi,
>
> I write this with the best of intentions....but I know that there is pain
> and anger behind it. I read this post and it made me want to scream.
> You make the statement that you would rather take a chance at having
> something work than living like you do everyday.....Kimmi you have no
clue!
> It can get worse and I guarantee you it will...with each surgery it will
get
> worse and worse. I do the same things you do for pain...they don't help.
I
> have some relief with ms contin and liquid morphine...but not much. But
for
> you to say that you are only 34 and you are tired of not being able to be
a
> mother or wife the way you want to be....it makes me ill. I am sorry to
> come down on you...but yes it makes me sick. How would you like to be
only
> 45....tired of living your life the way I have to live mine...but know
that
> you won't be able to be a wife or a mother....not for very long.
> Because when you were 34 and in so much pain that you would do anything to
> have it end...including more surgery...and then more surgery and then
> finally need surgery so bad that if you don't have it you will die....but
> now no surgeon will touch you....even though they know that you will die.
> Cherish every moment that you have with your husband and your kids...even
if
> they are painfilled and not what you would like to give them....at least
> they are moments that you can treasure. Don't put yourself at risk for
> losing those moments any sooner then you have to.
>
> Karla
>
>> ----- Original Message -----
> From: "Kimmi&Dave" <kimmi3@mediaone.net>
> To: "Multiple recipients of list ADHESIONS"
> <adhesions@mail.medispecialty.com>
> Sent: Friday, November 23, 2001 11:17 PM
> Subject: Re: Welcome Kimmi & Dave from Sally
>
> > Sally,
> > Thanks for the welcome.And no you won't offend me, everyone is entitled
to
> > their opinion.
> > I have had 12 abdominal surgeries, I don't know for me, I would rather
> take
> > a shot at having something work that living like I do everyday. Its a
> > possibility that nothing will change or things can get worse but there
is
> > also the possibility that at least it might give me a few months or
years
> > without or less pain maybe that's just living on hopes and dreams. I
know
> > the pain management doctor always says people who are chronic pain are
> > willing to do anything that offers to be out of pain, and I must be
> careful.
> > For the most part all the doctors have said no more surgery unless it
> > becomes life threatening because of the amount of surgeries I have
already
> > had. But 1 doctor my gyn doctor when I see him he says yes and send me
to
> > another surgeon because he wants back up just in case something is in
> there
> > that's not his field. and the second surgeon replies no lets try this
> first,
> > so for 5 years I have been trying this and that and nothing works. I
take
> so
> > much medication to ease off this pain and that doesn't work. I go to all
> > these PT' programs to ease off pain that doesn't work. I get injections
> that
> > doesn't work. I just need something to work and have to live on that
hope
> > that something someday work. I am only 34, and I am tired of not being
> able
> > to be the mother and wife I want to be..
> > Hugs
> > Kimmi
>> > ----- Original Message -----
> > From: "Sally Grigg" <lostcst@mcn.org>
> > To: "Multiple recipients of list ADHESIONS"
> > <adhesions@mail.medispecialty.com>
> > Sent: Thursday, November 22, 2001 12:59 AM
> > Subject: Welcome Kimmi & Dave from Sally
> >
> > > Dear Kimmi, Welcome to the board. I'm sorry its taken so long to write
> > > to you. My computer broke and I was "stranded" here in the wilderness.
I
> > > wish you would go to the adhesions site http://www.adhesions.org and look at
> > > everything. The quilt and all our stories would be a good place to
> > > start. And please do not be mad at me for what I am about to say, but
> > > telling your doctor to do a full big cut and take out what ever he
feels
> > > like ...well, it might not be such a good idea. So many of us here on
> > > the board have had surgery after surgery and no one would recomment a
> > > full big cut unless it were life or death.
> > >
> > > I know a lot about pain. Even after your surgery you could be in worse
> > > pain. I'm so sorry to say that, but its true. We get our hopes up,
and
> > > go through the ordeal, but it doesn't necessarily help with adhesions.
> > > In the last 18 months I've had three laproscopics, one of which became
> > > a big, full cut because he sliced my bladder. My abdomen was full of
> > > adhesions and he couldn't see. Now a different doctor with better
> > > equipment might not have done that.
> > >
> > > Anyway, welcome to the board. There's so much information here and
great
> > > love and support. The emails from Helen Dynda are great. All my love
and
> > > any help I can give you are yours for the asking. And I believe you
> > > when you say it hurts so bad that you don't care what they do, but you
> > > do care, and it could get worse.
> > >
> > > Lots and lots of water is good. It helps flush you out and can't hurt,
> > > although I must say, and you know this already, I'm sure, I'm not a
> > > doctor nor do I have medical training just 34 years of experience with
> > > adhesions. Prayers to you and yours, Sally at
http://www.howardcreekranch.com
> > >
> > > > Helen,Oh that's right forgot you were not US.. Its possible they
carry
> > > > that drug, you can actually go to an online pharmacy and find that
> > > > out.You know I sometimes wonder where these doctors heads are
someday
> > > > and its sad we put our lively bodies on the table and let them do
what
> > > > is best. So then it becomes live and learn unfortunately.Now if you
> > > > need another you will have state take all of what you see that many
> > > > not be the full cause now but those adhesions are going to grow and
> > > > attach they need to be cleaned up.With Dr Delise which I need to
make
> > > > an appt myself with him to discuss surgery. He mentioned he would
> > > > start with lap and then what if that wasn't good enough do you have
a
> > > > problem will full inssision. So I try to tell him like this one we
are
> > > > approaching you go in there and you do everything that needs to be
> > > > done. If you anything mentions in your brain well this one might
> > > > suspect to go bad treat it now.I don't care about the Lap or full
size
> > > > cut just do it and do it now.Tonight again my stomach is swollen to
> > > > the size of a pregnant woman and the pain pressure feels like I
could
> > > > push out a baby.. Its terrible and you try and relate that one to
male
> > > > doctor they have no clue never pregnant don't understand.hopefully
> > > > together we can all get bits and pieces of treatments and get em all
> > > > together as one and present this to the doctors and say see
> > > > FIXME!!! Well hon gotta run.. Happy thanksgiving.Kimmi
> > > >
>> > > > ----- Original Message -----
> > > > From: Helen Gibson
> > > > To: Multiple recipients of list ADHESIONS
> > > > Sent: Wednesday, November 21, 2001 9:27 PM
> > > > Subject: Kimmi
> > > > Dear Kimmi, thanks for the post, I will consult my Drs and
> > > > see if I can get a referral to a pain management Dr, I don't
> > > > know how long I will have to wait, but I will get the ball
> > > > rolling.As far as him not removing all the adhesions, who
> > > > knows what he was thinking, maybe he was in a hurry?, but at
> > > > least I know now what some of the pain is being caused by.I
> > > > will ask my Drs about the neurotin, it may be called another
> > > > name over here in OZ, and see if I can take some to see if
> > > > it helps at all.Thanks for caring!!hope your having a good
> > > > dayLoveHelen G
> > > >
> > >
> > > to the unsubscribe form at
http://www.adhesions.org/forums/listcmds.htm
> >
>