I hear what you're saying. Often I say to John "I think I'm going crazy!" but he always says I'm not - he tells me that the pain is real, and not in my head. And that I shouldn't care what other people think!
So, I'm learning to do precisely that.
I've got a long way to go I know, but at least I've made the first steps!
Lin
>----- Original Message -----
From: Ellen <ellen5j@charter.net>
To: Multiple recipients of list ADHESIONS <adhesions@mail.medispecialty.com>
Sent: Wednesday, 5 December 2001 04:04
Subject: Re: I just got another constructive criticism! HA!
> Oh does that sound so very familiar. My sister even claimed I chose my
> old
> email just so I would stay sick. She is the only one that really voices
> that. I do know that most of the family on both sides feels that way
> about me
> Frankly I get sick of it and so depressed cause I am not that crazy.
> I ask my docs every once and a while if I need a shrink. One good thing
> about all this is my docs think it is PHYSICAL
>
> At Tue, 4 Dec 2001, rowdyladyrose@aol.com wrote:
> >
> >Lin,
> >
> >You go, girlfriend! That's the way to handle it!!!!!
> >Rose
> >
> >At Tue, 4 Dec 2001, J&L VERMEY wrote:
> >>
> >>Hey, it's me,
> >>
> >>My sister just rang. That was ok, it was nice that she took the time to
give me a call - and I told her that I appreciated her taking the time out
in her busy day.
> >>
> >>But she told me she is concerned about the fact that I am looking up all
those things I am on the internet, she thinks it is not good to dwell on my
illness! She doesn't want me getting any funny ideas! And that I need to
concentrate on other things besides my illness. She doesn't think it's
healthy what I'm doing and I shouldn't dwell tom much on the fact that I am
ill!
> >>
> >>It's pretty obvious to me that they (my family) have no idea just how
much my illness and my pain effects my life!
> >>
> >>I explained to her that I felt it was important that I educate myself on
my illness, that I was simply unwilling to continue leaving my welfare up to
my doctors she still seems to believe that the doctor is always right - and
that I should do what they tell me to - explicitly - and without questioning
it! I told her that in my doctors opinion I would probably be lucky to
survive until I was 35 years old and that I'm 31 years old now, so that
would give me only another 4 years! AM I SUPPOSED TO JUST LIE BACK AND
ACCEPT THAT KIND OF BULL SHIT? NO WAY!!!! I REFUSE TO DO IT! I've got far
too much to live for! I'm not ready to go yet, nor am I willing to leave
John to cope on his own.
> >>
> >>I don't want to miss out on anything - not when I've already missed out
on so much! And I want to make the most of my life!
> >>
> >>Right! That's done it - that's put the FIGHT back into me! (I guess I
can thank my sister for that!)
> >>
> >>I will continue to go on the net to do my research - to find out all I
can so that I can learn how to improve my quality of life, and make my life
a little easier.
> >>
> >>And I've also decided that if I am in the family way - that I will not
tell my family straight away - I'll wait at least until I'm 1/3 of the way
along - that way I wont have to deal with anymore unwanted comments. And if
later they get upset - I will tell them plainly - SORRY, BUT IT IS NONE OF
YOUR BUSINESS, IT IS MY AND JOHN'S BUSINESS!
> >>
> >>Right! I feel SO MUCH BETTER!
> >>
> >>God bless little sisters!
> >>
> >>Love,
> >>
> >>Lin
> >
> >--
> >kcmo ro(se)
> >ICQ #131145100
> >If you can't learn to do something well, learn to enjoy doing it
> >poorly.
> >
>