Re: ADHESION SUFFERERS...TIPS to help you write your letter to the U.S. Government by January 8th!!
From: Dolores Atwood (dtouch@bellsouth.net)
Tue Jan 8 11:12:32 2002
At Thu, 3 Jan 2002, Helen Dynda wrote:
>
>Keep in mind that a code for the "Application of an adhesion barrier for
>the prevention of adhesions" is the focus. Then write about the
>experiences you've had as a result of adhesion surgeries. Be sure to
>mention if an adhesion barrier was used!
>~ ~ ~ ~
>
>Has a health professional told you that adhesions don't cause pain or
>problems?
>
>Have you come across health professionals, who have never heard of
>adhesion barriers?
>
>Have you come across health professionals, who are unwilling to use
>adhesion barriers?
>
>Have you been affected by adhesions due to previous surgeries and you
>were told they are not a problem?
>
>Have you experienced a significant reduction in quality of life due to
>adhesions?
>
>Has a health professional refused to use an adhesion barrier?
>
>How many surgeries have you had to endure because of adhesions? When
>were these surgeries done?
>
>Have you experienced complications as the result of a adhesiolysis -
>such as inadvertant nicks into vital organs, peritonitis?
>
>Was an adhesion barrier (Interceed, Seprafilm, or Intergel) used for any
>of your surgeries.
>
>Did you experience any side effects because of the use of an adhesion
>barrier - such as inflammation?
>
>If an adhesion barrier was used in any of your surgeries, did it help?
>Or did your adhesion problems become worse?
>
>If an adhesion barrier was used in any of your surgeries, are you still
>pain-free today?
>
>~ ~ ~ ~
>
>* Email your comments to: IPPSNEWTECH@CMS.HHS.GOV
>
>* Please send a copy to the IAS at: david.wiseman@adhesions.org
>
>* Place "Adhesion Barrier Comments" in the subject line.
>
>* Send your comments by January 8, 2002.
--
Please, I am desperate. After an auto accident that almost took my life, I lost
my large intestine after 4 major surgeries. Now, I have a right lower abdominal
hernia that has a lot of intestinal loops hung in it. Since that isn't enough,
my small intestine has moved up where my splenic flexure was and adhered to
my diaphragm. No one wants to touch me, yet, I am getting to the point I can
no longer maintain a decent quality of life. We must have some solution to recognition and treatment of adhesions with barriers or whatever it takes and yes, they do cause debilitating pain. We have a right to the correct pain relief without being called addicts or drug seekers
not endure the pain. Is there any doctor who knows anything but "cutting
adhesions just makes more". My time is running out. I don't have a colostomy
as my sigmoid is connected to small intestine. It is almost like praying to
die and yet that is not what I want. I sort of compare myself to a terminal
cancer patient just waiting. Help Help Help. I am also an experienced nurse
with 33 years of nursing experience and I an totally helpless in this
Thanks, Dolores Atwood dtouch@bellsouth.net