Re: ADHESIONS digest 1787
From: Chris936963@aol.com
Sat Feb 9 06:14:54 2002
In a message dated 2/7/02 10:06:14 AM Pacific Standard Time,
adhesions@adhesions.org writes:
>
> Date: Thu, 7 Feb 2002 12:02:03 -0600 (CST)
> From: jenellis2001@yahoo.com (Jennifer)
> To: ADHESIONS@OBGYN.NET
> Subject: wow!!!!!!!! pain
> Message-ID: <200202071802.g17I23J01108@mail.medispecialty.com>
>
> I got my period today and do to the adhesions all my organs are spasming
> not just my uterus. the pain is really bad I try to excersize to help
> but that is difficult when you insides feel as though they are ripping
> apart!!!! well I guess I just wanted to complain to someone who
> understands but any tips would be very welcome!
>
Dear Jenillis2001:
I'm sorry to hear you're having so much pain. Cramps are bad enough, without
adhesions. The uterus is the strongest muscle in our bodies (stronger than
the heart), so the contractions we have during cramps or childbirth can hurt
worse than a heart attack.
I've had awful cramps since I was 12. They got worse every year, and now I
know I have endometriosis, and "massive, extensive adhesions throughout" my
pelvic/abdominal cavity & organs. I haven't had a pain free day in 20 years.
You don't say how old you are, and whether or not you have children, but if
you're in that much pain you may want to discuss it with your Dr., and try &
determine if you too have endometriosis -- you can be diagnosed WITHOUT
surgery. If you're posting on this board, I assume you know that you know
surgery causes adhesions.
Some of the symptoms of endometriosis are; severe menstrual pain, a
"pulling" and/or "tearing" feeling, heavy bleeding and/or tissue passing
during your period (passing large pieces of tissue through a closed cervix is
a whole new level of pain), pelvic congestion, pain during intercourse,
infertility and cysts in the pelvic cavity (they can usually be seen with
ultrasound). I DO NOT recommend "exploratory" surgery (usually a
Laporoscopy) for your diagnosis, as it can make you so much worse. Perhaps
you have (or can find) a Dr. who would be willing to try treating the
endometriosis w/o diagnostic surgery. I'm so scarred I'm no longer a
surgical candidate (ten surgical procedures, a ruptured ovarian cyst &
gangrenous fallopian tubes), so my Dr. was willing to treat me for
endometriosis. The treatment helped, but there's no cure and I'm not able to
use the pill, so I'm back to a progressive disease. I can't stress strongly
enough that anyone with severe cramps should tell your Dr. about them. I
wouldn't wish this hell on anyone & pray you'll be well again soon. Women
who are diagnosed & treated early are much better off.
As far as tips for dealing with cramps, if your Dr. feels it's appropriate,
you may want to take Ibuprofen (or another anti-prostoglandin, like Aleve)
every 4 hours (start this 1-2 days before you expect your periods for best
results). You may want to take a hot bath, or use a hotpad on your lower
back or abdomen to help ease the contractions. I find hanging upside-down on
an inversion table helps, too. It takes the weight of your internal organs
off your uterus & that can make you feel better in so many ways. Check with
your Dr. before you try this, however, as it may not be advisable for people
with high blood pressure & other conditions.
You have my thoughts and prayers, as do the others using this site.
I'm having a rough time myself lately, and things are about to get worse, as
my Dr. plans to take me off my pain killers now, after 10 years of barely
living, with the Rx.
I would really appreciate any kind notes, from anyone who has the time &
ability to write to me. Thank you all, either way.
In kindness;
Chris36963@aol.com
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