Re: what to say
From: Robin (rmasse2333@aol.com)
Sat Feb 16 08:38:22 2002
Dear Em
I have suicidal thoughts because of the adhesion pain and the
frustrations of it. My children, grandkids and hubby are the only
reason that I suffer. If it were not for them, I would have ended this
along time ago.
#1Adhesions form with in 7 days! After that, they start getting old &
start getting tight, that is really what causes the pain, when they
start pulling on things.
#2 I had to dump my Dr a couple of years ago. He told me that I really
didn't have pain, I was addicted to the pain meds & needed to go to
detox! One week later, I sat talkingv with a new Dr that increased my
pain meds. You have to get a dr that knows about adhesions & they will
support you.
#3 If you can get to a specialist then my personal opinion is that you
should go for the surgery/surgeries. But finding one, or affording one
is hard. I think that if I could afford to return to Germany for
surgery with Dr Korell, I would become adhesion free. My adhesions have
been greatly reduced because of him. I am having lots of pain now, but
I can't afford to return to him right now.
#4 LOL Maybe "Not tonight honey, I have adhesions"
My kids are older, 22, 17, 15, They understand a little better. My
grandbabies almost 4 & almost 3, can understand that "MEME's" tummy
hurts.
One thing that really helps is to come to this board where everyone is
in the same boat. There is comfort & understanding here. Just knowing
that someone truely understands what is going on helps a great deal.
>From what I have heard, one of Dr Korvorcian's "patients" was an
adhesion sufferer.
Keep your chin up!!
love
robin
At Fri, 15 Feb 2002, Em wrote:
>
>Okay, I have a few questions for you wonderful individuals who
>continually post their love, support, and in my opinion "expert" advice.
>#1-I have found such conflicting information on this one, when, and how
>long does it take adhesions to reform after adhesiolysis?
>
>#2-What to do when the doctor who has been managing your pain meds dumps
>you?
>I realize that a pain clinic is my best bet, but it takes forever to get
>in, any advice? Call them up and inform them I have a gun to my head?
>
>#3-Should I seriously be considering long term meds vs. adhesiolysis?
>When is enough enough? I know the ramifications, but I need to hear it
>again, and again.
>
>#4-What else would you call a book on vagina ovarian adhesions? Hey, I
>know, the patients guidebook to a life of living hell from adhesions, no
>wait it's in your head!
>
>I am one step away from driving my car into a cement wall. The only
>reason I have not done this so far, is three incredible girls ages 9, 4,
>and 2! I will not be responsible for ruining their lives. Of course you
>ask them now what is wrong with mommy and they reply she's a witch and
>cries all the time.