Re: Desperate
From: Mary Lou (klischma@plu.edu)
Tue Mar 12 14:50:19 2002
Hi this is from "Desperate"(actually less desperate now).
Thank you everyone for your messages.
I was so out of it yesterday--I don;t know if my message
that I sent actually got sent, as I don;t see it on
the board. Anyway, I got a TENS unit yesterday, which
works pretty well, but you have to turn it off and on
all day to prevent your body from getting used to it. It
can;t be used at night. I was in great pain last night
and couldn;t sleep, so I tried the Duragesic patch but
ripped it off after two hours because I became so
incredibly seasick from it. I have quit all OTC meds. To
night I am going to take amytriptilene at 6 pm instead of
10 pm thanks to Jo in Autralia's suggestion, to see if
I can fundtion better tomorrow, mentally. I am working on a pain
pain management plan. Tomorrow I will go to acupuncture--
I still haven't tried oxycontin, but probably will try
that next. So if anyone wants four free duragesic patches
e-mail me--they may work for others but are poison to me!
The bad side effects took hours to wear off during the nightand I had
a trerrible dream about being pulled to shreds by a
a pack of wild dogs, of course in the area of adheions.
Oh, and I was naked, lying in mud. I made a big decision
at work to get out of an unreasonable project that is not
physically possible for me to do.
once I get this pain "managed", I hope my postings will
be more uplifting and make more sense.
Thank you again to everyone.
Mary Lou
wo Ior it will nottp\
At Mon, 11 Mar 2002, Hchalm@aol.com wrote:
>
>MaryLou:
>
>As Janet said, watch all the over the counter pain meds as you could be doing
>a lot of internal damage; I am not surprised that you aren't bleeding. I
>too, in the beginning, was taking OTC meds as I had nothing else and was
>bleeding from the bowel and nose. My PS told me that all of the OTC meds was
>doing more damage to my liver and stomach lining than any opiod would do.
>
>Regarding your question about oxycontin and being able to function - many
>here are able to hold down jobs, take care of their family, drive a car, etc.
>without any side effects at all. When I take the oxy I don't feel any
>different than before I took it, except the pain is gone. I think the first
>week I felt a little groggy, but that soon passed and I was able to function
>without any problems at all. Now the methadone, since I have never been on
>it, I can't comment.
>
>In Friendship,
>
>Helen C. (Hell-yun)
>
>I am not a medical professional and am I am soley giving advice from my own
>experience in trying to deal with this horrible disease every day of my life
>since 12/99. I will try to offer my assistance, lend an ear, offer a
>shoulder to cry on (on a bad day) and offer support when needed. P.S.,
>sometimes I need help too.
--
Mary Lou (Less Desperate)