Re: Help

From: Karla N (ifirgit@yahoo.com)
Mon May 13 23:51:42 2002


Tami, Please take the time once again to review this site. I understand that you are in pain, but for you to have another surgery with a doctor who was unsuccessful the first time around with preventing your adhesions from reforming may cause you to end up in even worse pain. There is a product that is now available...in foreign ountries...that is showing very good results. "SprayGel" is being used in Germany...and soon in Canada and Australia and the patients have shown little to no reformation in the areas in which the Gel was applied. It is going to be tested here in the US but only on GYN cases. The cost of going to Germany is relatively inexpensive when you consider the outcome and compare it against how much it would cost to be done by the experts (there is only one or two) here in the states. They not only can use the Spray Gel but they can use it anywhere they need to. The cost of going to Germany is around $6,000 including all costs. This includes airfare, the hospital stay, the room which you will stay after the surgery, the doctor, hospital the surgery itself, as well as the second look procedure. Just about anything else you can think of including perhaps a day or so of sightseeing. The main thing that I am trying to say is that if you keep having surgery to correct your adhesions without seeing an expert, you are going to end up in worse condition. Its time to say, no more surgery until you have your problems solved. Love, Karla Tami <tamitorres@hotmail.com> wrote: Thanks for the replies and the information. From what I have read about adhesions is that alot of Doctors don't all believe that adhesions cause pain and alot of them say it could be IBS....but do I need all the testing if I don't have any symtoms of IBS?? I had a complete hysterectomy in 1996 and it took 6 hours to complete because of all the adhesions, bowels, bladder, ureters, etc. I have always gotten some relief from the surgeries, it just always comes back. My doctor that did my surgery on April 15, 2002 told me that there was no way he could get the "ton" of adhesions with the laproscope this time. And he has agreed to do the surgery on me. But before he does it he wants to rule out anything else, so that is why I have to see the Gastro DR and also the Urologist...I saw my PCP yesterday and he told me that I should have the tests done just to make sure there is nothing else going on. He also told me that they have used different types of radiation therapy for adhesions...Have you ever heard anything like that before??? He also gave me a RX for Neurontin. He told me that when people sometimes have a limb amputated they still have nerve endings that make them think they still have the limb...he said this medication is to desensitize (Misspelled sorry) the nerve endings and hopefully help my pain medication work better....So I'll try it!! Sorry to just ramble on like this, I am just thankful to find people to talk to about all this....you don't know how grateful I am...I truly am....thanks

At Mon, 13 May 2002, Shali wrote: >
>I have to entirely concur with Cathy on this one and I'll tell you why
>in another point of view. Your doctor has mentioned IBS. Interesting.
>If you read my other post I mention this because I have the problem as
>well. Of course, Ive had two emergency surgeries for adhesions, but the
>IBS is whats underlying the whole disease thing anyway. I would see
>whats going on INSIDE the gut which is easily done with metabolic
>testing. You do not even have to go anywhere! Dr. Trent Nichols in
>Hanover, PA will do phone consultations and send you the kits to send to
>the lab! He is a gastroenterologist and took part in writing the book
>Optimal Digestion. Want the number? Let me know, I'll dig it up. The
>phone consultation runs between $77-110 depending on the amount of time
>spent. There are times when I DO feel improvement like yesterday. Other
>times not so much but that is the nature of IBS anyway and especially
>being sick for 8 years and 4 surgeries. A CDSA [comprehensive
>diagnostic stool analysis - NOT the ones the MD's run], will tell it
>ALL. Its about $225 and it will show dysbiosis, ph, vegetable
>digestion, protein digestion, yeasts,etc., metabolic markers and give
>the full picture. Think I would rule that out or in first. Thats my
>two cents.
>
>--
>Shali
>
>At Mon, 13 May 2002, cathy:- wrote:
>>
>>Given that Person #1 can have insides that look like an explosion at the
>>glue factory and yet not be in any kind of discomfort, and Person #2 can
>>have relatively minor adhesions and be in agony, it would not be totally
>>crazy to think that someone would only have the pains where the
>>adhesions look "minor." It's all very much a matter of precisely what is
>>connected to what in a microscopic sense. Yes, it's mostly that where
>>there are a lot of adhesions is where you are going to find the
>>adhesions that are giving you the problems, but maybe you are just one
>>of the statistical outliers... I know that when it comes to endo
>>adhesions it is pretty common that women with just a few adhesions are
>>in a lot more poin than women with tons of them. (And no, nobody really
>>has a clue why.)
>>
>>I think that you really need to be listening to what the doctor is
>>saying "between the lines" here. It's possible that the reason that he
>>didn't see much over on the right is that he didn't really know what he
>>was looking for. Or maybe he couldn't get the scope over there very
>>well to look. I think laporotomy should be out of the question unless
>>you are in an emergency condition, like a bowel obstruction that they
>>can't clear. It's just going to make things worse. And if this surgeon
>>doesn't believe that he is skilled enough to do this with a lap, then
>>YOU sure don't want to be arguing with him, right???
>>
>>I think that the idea of seeing other specialists in order to rule out
>>other stuff is a wise choice. I think that you should also be searching
>>for another adhesion specialist. After 11 surgeries, I think you should
>>really think about trying something else, or at least trying somthing
>>with another surgeon...
>>
>>At Sun, 12 May 2002, Tami wrote:
>>>
>>>Help.............
>>>I've been away for a long time but now I have returned. I am seeking
>>>advice and of course moral support. I just went thru my 11th surgery
>>>for adhesions. It was outpatient with the laproscope and my Dr did not
>>>remove any of the "ton" of adhesions that he saw. My pain is mostly
>>>right-sided with some on the left. Problem is the Dr saw the "ton" on
>>>the left and didn't see anything on the right. He states that my pain
>>>cannot radiate that far...and he states that it will require a laprotomy
>>>to remove the extensive adhesions on the left. Now I know from my pain
>>>and experience what I am feeling is adheisons on the right. But before
>>>he will do the Laprotomy he wants me to see a Gastro Dr and a Urologist
>>>to rule out irrital bowel, etc , of which I have no symtoms. Only pain
>>>meds I've been put on is Tylenol 3...which is doing nothing....just
>>>curious if anyone out there knows of a good surgeon in Las Vegas? or
>>>should I go ahead thru all the tests and more agonizing pain waiting to
>>>find out. My quality of life now sucks and I am so ready to just hang
>>>it all up....help
>>
>>--
>>cathy :-)
>>

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