At Thu, 22 Aug 2002, Rita Steele wrote:
>
>Tami,
>Oh my Gosh, that's exactly what my son said after my
>first surgery. At least you don't have cancer, Mom! I
>feel like you, I wish the medical (& regular)
>community would take us seriously. Being in pain day
>after day is really a grind, especially when you can't
>get adequate pain relief. I try not to feel sorry for
>myself because my father-in-law has terminal cancer,
>but some days I just can't help it. I'm fighting to
>stay on disability because I just can't function well
>enough to put in an eight hour day & do my job right.
>The pain just overwhelms me at times. I tried it for
>15 months after my first surgery but I just about lost
>my mind! No more being a martyr. My employer has a
>2yr. long term disability plan that I have been on for
>almost 11 mos., now. If it weren't for one of my
>fellow employee's(& friend) I wouldn't have known
>anything about it. They did not come to me when I ran
>out of sick pay, I had to ask the benefits coordinator
>if we had a short/long term disability plan. Than I
>had to convince my Dr. that I was in pain & I could
>not function at work anymore, boy, was that a chore.
>Check with your human resource or benefits office to
>see if they offer any kind of disability plan, they
>will not come to you. It's worth a shot. I'm still
>fighting to stay on mine after my last surgery July
>29, I'm not feeling any better than I was before the
>surgery. I have to go to Phoenix on Mon. to see my
>surgeon & convince him the surgery did NOT work,
>something I'm sure he does not want to hear. I wish
>you luck!
>Take Care,
>Rita in AZ
>--- Tami <tamitorres@hotmail.com> wrote:
>> Dear Tish,
>> Hi honey, thanks for the reply. I've been worried
>> about you too. Do
>> you ever find your self saying at least "I don't
>> have Cancer". Because
>> at least they have some treatments for cancer, not
>> always with success,
>> but at least people are taken seriously. And then I
>> tell myself to snap
>> out of it, it could be so much worse. I get tired
>> of feeling sorry for
>> myself. I just wish that for once we could all be
>> taken seriously and
>> they would find a cure for us all....
>> I just wish that with as many of us in this world
>> that suffer everyday
>> that just once we could hear that they are really
>> working on a cure and
>> that people would really understand our pain....I
>> just want my life
>> back, as with everyone else on this message board,
>> we all deserve our
>> lives back !!! okay enough whinning.......
>> I may end up losing my job over all this. And it's
>> because the HMO's
>> are taking there time getting me approved for all
>> the tests I've had and
>> surgery...
>> I am really scared. I have used up all of my FMLA
>> leave and don't have
>> any sick leave left at work. I don't have anything
>> to protect me from
>> losing my job now. I have wondered if I can even
>> qualify for
>> disability. I wouldn't even know where to start.
>> Anyway thanks for
>> caring about me. I see the Surgeon tomorrow and
>> hopefully he can answer
>> some questions for me. The gastro told me that he
>> was worried about
>> food getting stuck in this "hole" and that it would
>> cause me alot of
>> pain if it did. I've lost over 25 pounds, because I
>> have been eating
>> very soft food. There is just no telling how long I
>> have been like
>> this, I can honestly tell you that I have been
>> having right-sided pain
>> for probably 10 years. After every surgery the pain
>> is always still
>> there. I think my appendix was taken out about 17
>> years ago. I will
>> keep you posted.
>> I hope you had a good day, and that you are feeling
>> alittle better. How
>> is your mom doing ? I am so sorry for all this
>> stress you are under
>> while feeling so crappy...it really sucks...I wish
>> you painfree days my
>> friend.
>> Take care and keep in touch Tish,
>> Love your friend,
>> Tami
>>
>> PS email me your phone number again....
>>
>> At Sun, 18 Aug 2002, Tish wrote:
>> >
>> >Dearest Tami..I am so glad to have finally heard
>> from you..and so sorry
>> >to hear thaat you are still in tons of pain even
>> with the meds..im
>> >hoping and praying that you get some relief very
>> soon..
>> >I am doing ok..still in some pain myself and trying
>> to adjust to an
>> >increase on my meds..and just getting back to OK
>> from Tx where i saw the
>> >Pain Dr..etc.
>> >Today was my grand babys 4th B-Day party so im kind
>> of worn out..
>> >Tami i am a little concerned about what you said
>> about the Drs saying
>> >you have a large hole in your intestines...Tami if
>> this is correct..it
>> >is a life threatening problem you have there...and
>> not something you or
>> >your Drs should be waiting on...Do they at the very
>> least have you on
>> >antibiotics? If this is correct Tami i would be
>> screaming to my Drs to
>> >do something about it...and not wait one more
>> second..because this is
>> >such a terrible thing..it could ruin your insides
>> forever..if you have
>> >all of that mess..draining in to your body..
>> >I am just a nurse..Tami..not a Dr but i do know
>> that even a very tiny
>> >hole could really reak havoc on your body..
>> >Tami PLEASE PLEASE PLEASE whatever you do please
>> call your Dr ASAP and
>> >get some clarification of this diagnosis..ok.
>> > I emailed you my phone number one time..if you
>> want to give me a call..
>> >But whatever you do girl..get a hold of that DR
>> immedietely ok.
>> >I hope i have not scared the water out of you...but
>> if this diagnosis is
>> >correct then this needs to be addressed ASAP,,ok.
>> >I Love ya Girl..and i want you to be well..
>> >God Bless and im sending up some serious prayer for
>> you ok..
>> >Hugs and Love
>> >Tish,
>>
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