I am so scared. Going to a new doc on Thurs. here in Boston. had a
horrible experiance that finally broke the straw on this camels back.
The hospital I have gone to for the past 15 years. Sent me out into the
streets of Boston @ 4:30am after they said they would admit me @ 3:30.
14 hours in the ER and I got 2 shots of morphine and a palvic exam. @
3:30 they did an U/S and decided it was from a leaking endometrioma ( I
had been in the ER the week before for that). They told my ride to go
hame @ 3:30. I live 45 mile from said Hospital. I now know that I had
a partial bowel blockage. After the U/S they decided to forgo the CT
scan.
I had no money ( I had taken an $89 cab ride the time before) so I
walked, vomitting and crying the whole way to a relatives house about a
mile away. He found me vommiting in his garden about 5:30 am.
Thru enemas and laxitives, not eatting and drinking plenty of fluids the
obstruction finally passed two days later.
I called the hospital the next day and pretty much flipped out about
this. Now My PCP won't return my calls. ( An honest, good doc that I
trusted for years)
I just call his office to refill my meds.
I am rapidly loosing my bowl and bladder function. Feels like I'm
birthing a baby for most movements.
I Had a TAH ( as their difinitive cure for my stage 4 endo)last year
when they found the adhesions. They left in the left ovary.
I am bed ridden alot but have good days sometimes. Thats when I try to
make up for lost time.
I have lurked on this board for just about a year now. Bless you all,
you have no idea how much you have helped me keep my sanity.
Had another blow this week. Was denied SSI disability. After sending
me to a shrink. They decided that while I could not do the work I was
trained for that I could still stand and therefore could work some other
type of job.
Well, besides writing a best selling novel I am not sure what I can do
to make $$ from bed.
I am sorry I am ranting but all this pain and suffering from you
wonderful folks on the board...it is just outrageous!
I know I need surgery if I am going to stand any chance of a kinda
normal life. I don't have the enegry to fight SSI right now. I am a
single mom and broke and Family and friends do question my illness. You
know the funny look.
I fear going to the new doc cuz I don't want another course of Lupron or
whatever drug they pedal now. ( treated years ago with lupron after my
first lap). I don't want to be sent to a pain clinic. They want to
install a neuro stimulator in my back.
So I have only had 2 surgeries to date. I want a surgical treatment
that adress these potentially life threating problems. I called Atlanta
and they don't take medicaide, they would like approx $30,000
please.!!!!!
Shame on the United States of America! The health care system in place
makes these type of surgeries unprofitable. Fear of malpractice bring
on what I believe are all the excuses we hear all the time. I cannot
believe our cries go unheeded. I will hit the next person who thinks
it's all in my head.
Back to my original point. I really need to know how all who went to
Dr. Korell or to Australia are doing. As far as cost effectivness, it
seems doable
I am sure I could mooch the money somehow. I am building up my hopes to
try to seek relief there. I still have hope. You see to complicate
matters my daughter was born with Polycystic kidney disease and will
need a kidey in a few short years. Her doc ( a wonderfull man from
Australia Jo!) says I am her best bet for a macth. I NEED to get
better.
I pray for all who suffer and again you have helped to educate me and
let me know I am not crazy.
My love and prayers to you all.
Dawn