At Tue, 27 Aug 2002, Dawn wrote:
>
>I am so scared. Going to a new doc on Thurs. here in Boston. had a
>horrible experiance that finally broke the straw on this camels back.
>The hospital I have gone to for the past 15 years. Sent me out into the
>streets of Boston @ 4:30am after they said they would admit me @ 3:30.
>14 hours in the ER and I got 2 shots of morphine and a palvic exam. @
>3:30 they did an U/S and decided it was from a leaking endometrioma ( I
>had been in the ER the week before for that). They told my ride to go
>hame @ 3:30. I live 45 mile from said Hospital. I now know that I had
>a partial bowel blockage. After the U/S they decided to forgo the CT
>scan.
>I had no money ( I had taken an $89 cab ride the time before) so I
>walked, vomitting and crying the whole way to a relatives house about a
>mile away. He found me vommiting in his garden about 5:30 am.
>Thru enemas and laxitives, not eatting and drinking plenty of fluids the
>obstruction finally passed two days later.
>I called the hospital the next day and pretty much flipped out about
>this. Now My PCP won't return my calls. ( An honest, good doc that I
>trusted for years)
>I just call his office to refill my meds.
>I am rapidly loosing my bowl and bladder function. Feels like I'm
>birthing a baby for most movements.
>I Had a TAH ( as their difinitive cure for my stage 4 endo)last year
>when they found the adhesions. They left in the left ovary.
>I am bed ridden alot but have good days sometimes. Thats when I try to
>make up for lost time.
>I have lurked on this board for just about a year now. Bless you all,
>you have no idea how much you have helped me keep my sanity.
>Had another blow this week. Was denied SSI disability. After sending
>me to a shrink. They decided that while I could not do the work I was
>trained for that I could still stand and therefore could work some other
>type of job.
>Well, besides writing a best selling novel I am not sure what I can do
>to make $$ from bed.
>I am sorry I am ranting but all this pain and suffering from you
>wonderful folks on the board...it is just outrageous!
>I know I need surgery if I am going to stand any chance of a kinda
>normal life. I don't have the enegry to fight SSI right now. I am a
>single mom and broke and Family and friends do question my illness. You
>know the funny look.
>I fear going to the new doc cuz I don't want another course of Lupron or
>whatever drug they pedal now. ( treated years ago with lupron after my
>first lap). I don't want to be sent to a pain clinic. They want to
>install a neuro stimulator in my back.
>So I have only had 2 surgeries to date. I want a surgical treatment
>that adress these potentially life threating problems. I called Atlanta
>and they don't take medicaide, they would like approx $30,000
>please.!!!!!
>Shame on the United States of America! The health care system in place
>makes these type of surgeries unprofitable. Fear of malpractice bring
>on what I believe are all the excuses we hear all the time. I cannot
>believe our cries go unheeded. I will hit the next person who thinks
>it's all in my head.
>Back to my original point. I really need to know how all who went to
>Dr. Korell or to Australia are doing. As far as cost effectivness, it
>seems doable
>I am sure I could mooch the money somehow. I am building up my hopes to
>try to seek relief there. I still have hope. You see to complicate
>matters my daughter was born with Polycystic kidney disease and will
>need a kidey in a few short years. Her doc ( a wonderfull man from
>Australia Jo!) says I am her best bet for a macth. I NEED to get
>better.
>I pray for all who suffer and again you have helped to educate me and
>let me know I am not crazy.
>My love and prayers to you all.
>Dawn