Re: I'm home.....again

From: kann (stew@cowtown.net)
Tue Nov 5 21:24:25 2002


Lisa, I am new here, just want to say your letter just thrilled me. I am so happy for you and you give others so much hope. It is so encouraging to me when I read your comments about the doctors in the US...I originally thought they just didn't like us!! They have been such a disappointment to me and my daughter. My daughter was ill for thirteen long years--all the while we were told she had Crohn's. I took her to countless doctors--all over, only to leave with the same prescription from everyone, "You need an antidepressant." My daughter was losing all hope. I had prayed and prayed with each new visit for God to give the doctor wisdom and find out what her problem was. After going to the renowned Scott & White Hospital in Temple and leaving so very upset (the doctor spent less than 10 minutes with us), I began praying, "God give ME wisdom." I came across the endometriosis website-- took her to a doctor and she has now had 2 surgeries. Her first lap revealed a pelvis full of adhesions. Her second revealed more, even with the liver being adhered to the ribcage. And, a lot of endo. She still isn't well, but thank God we have at least FOUND something. Before this, it had all been guesswork and all the doctors just thought she should be content on Prednisone!! I took her off of it (against the doctor's advice) over 7 years ago. And we have done our own thing since. I have been communicating with Dr. Kruschinski and I am currently having her surgery videos changed to a CD. He is going to see if he thinks he can help us further. I am just so happy you are adhesion free!! I hope you continue in COMPLETE health and wholeness. God Bless. Karen

>----- Original Message -----
From: "Lisa" <lilylover5555@aol.com> To: "Multiple recipients of list ADHESIONS" <adhesions@mail.medispecialty.com> Sent: Tuesday, November 05, 2002 6:33 PM Subject: I'm home.....again

> Hello everyone,
> I just got home from Frankfurt. As many of you know I went back with
> Sally for her surgery. Helen has kept you all updated on Sally and I'll
> wait and let her tell you about her experience.
> I will however tell you about my trip, and why I went back. Again as
> many of you know I had my adhesiolysis with Dr. Kruschinski in July. I
> came home 100% adhesion free! However I continued to have some problems.
> I had a tight knotted feeling up by my ribs even before the first
> surgery. During that surgery Dr. Kruschinski found a very big vascular
> adhesion attached from my liver to my naval, so that is what I
> attributed that pain to. Except it never went away, and at times got
> very severe. And as usual the doctors here all had different opinions,
> they ran tests-blood work, ultra-sounds, CT scans. My lipase level is
> slightly elevated, but not much. They suspected pancreatitis, but none
> of them would give me a definate answer, just the usual run-around! I
> have stayed in contact with Dr. Kruschinski, since I am the patient
> advocate for Frankfurt,and he is my doctor, he advised me through all of
> it, which was wonderful- a little bit of sanity I could trust and count
> on. I'm just a little pessimistic(sp?) when it comes to doctors here in
> the US!
> When Sally made her decision to have surgery in Frankfurt, I also
> decided to make the trip and see if I could get some answers.Dr.
> Kruschinski offered to do a third look to convince me and my family(who
> were sure my adhesions were back) that my pain was not from adhesions.
> That was a really tough decision for me, but I had to admit that after
> my past experiences with adhesions that I wasn't competely sure they
> were gone either. So to prove it to myself, my family, my doctors, and
> all of you here on the board, I went for it and had the third look. I'm
> thrilled that I am still adhesion free and always will be, God willing!
> I had the pictures to prove it. The pictures are beautiful(to me
> anyway)Normal... without any adhesions!! So I'm here to say that the
> combination that Dr. Kruschinski offers to the ARD sufferer simply
> can't be beat!!! I'm proof of that, 3 months later! Anyone interested in
> finding out more about what is available in Frankfurt, please feel free
> to contact me!!
> Lisa
>


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