Re: A new members comments
From: kann (stew@cowtown.net)
Tue Nov 12 08:22:00 2002
Welcome! You aren't the only one who has been told they're nutty! If I had
all the money I've
paid doctors for my daughter to hear that diagnosis, I would have to change
wallets!!
You women that are able to work---what a blessing! My daughter has not held
a full time
job since she was 18. Thankfully we own our own company and that allows her
to come in
as she can, (which is very little). She is still hoping for the day when she
will be able to function
like the rest of us. We have that same hope--I believe she will get well
(not just better-but WELL),
Read the post Re: melissa steward. It is from the German doctor. Give your
son a big hug for
me.Aren't good kids just wonderful??
Karen
-------Original Message-------
From: adhesions@adhesions.org
Date: Tuesday, November 12, 2002 06:04:56 AM
To: Multiple recipients of list ADHESIONS
Subject: A new members comments
To all my fellow ARD sufferers,
--
I want to first of all thank you all for being there and sharing your
experiences. It really helps to know that I am not the only one with this
affliction.
I am currently 40 years old and have had adhesions since I was 24. I have
been through a lot since then.
I believe the cause was due to my first ob/gyn who let me go eight years
with PID. He kept telling me that I did not have an infection that it was
a nasty discharge because I had my son at 16, and bad girls usually had to
pay for their mistakes. He also did the first laproscopic to determine the
cause of the erratic and painful periods and told my mother that the
adhesions (so he knew even back then) would go away as soon as I found a
good man to take care of me. (what a quack) when I kept having problems
he told my mother again that I was just trying to get attention and that
there was nothing medically wrong with me. That I must be just acting out
from the sexual and emotional abuse my father did when I was a child, and to
seek a good mental hospital.
So for years I suffered in silence, until my third husband just couldn't
understand and started taking me to other doctors to find out that the
damage had been done. The PID was cleared up and the surgeries began, we
started taking the fertility pills only to find out, after having a blighted
ovum that if I had gotten pregnant it would have killed me when the baby
started ripping the curtain of adhesions. After 13 years and a complete
hysterectomy my husband no longer needed me and he filed for divorce.
I thank god every day for my son who is now 23 for he understands and is
very supportive. He has even gone so far as to "find" pain meds on the
streets for me when the doctors refused to prescribe more.
For years I actually started believing the doctors and was starting to
think that it was all in my head. That maybe I was just a junkie….
I feel quite lucky when I read some of your stories, (my god) I have only
had 7 surgeries in the past 15 years, and have only managed to miss a few
weeks work through each year. After my doctor did the hysterectomy he told
me he put some sort of jell in there so maybe to slow down the adhesions and
it worked for 6 years then I had to have an emergency appendectomy and now 1
½ years later I am back in the doctor routine again. I thank god for the
Internet and the ability to research and now for bumping into this website
and all of your stories, it truly makes me know that I am not insane and
there is really a problem out there.
I keep reading about going to Germany for treatment. What makes the
difference or what do they know that our doctors here can't learn? Can
someone please shed some light on this?
To all of you, thank you and if there is anything I can do or say PLEASE LET
ME KNOW.
Sincerely,
Mendy Louiso