Re: clarification

From: kann (stew@cowtown.net)
Sun Nov 17 21:44:05 2002


Helen, I think that is great! Sometimes something that can seem to be a negative, can actually be a positive thing. I just think that everyone deserves to have this clarified. There is so much confusion about "no one owns my story". We can all scream and shout that no one owns it, but when we post it, as is done on the quilt, we lose our rights to it. Maybe the quilt page should add that note at the top of the page and this would not happen again. Personally, my daughter and I do not want to lose the rights to her story, so I have removed it from that page. I would also like to take this opportunity to say I will not argue issues. If I cannot be a blessing to others, then I know the way to the door. As I stated before God knows my heart, and that's good enough for me. karen -------Original Message------- From: adhesions@adhesions.org Date: Sunday, November 17, 2002 10:26:22 PM To: Multiple recipients of list ADHESIONS Subject: Re: clarification Karen, You are correct!!
--

In June 1998 I posted my story for the very first time at the
Healthseek.com forum - which is no longer on the Internet as of January
2001.

In October 1998 - while I was in the process of doing research on one of
the Search Engines, I couldn't believe my eyes!! - I SAW MY STORY ON THE
INTERNET...for everyone to read!!!!

I had no idea how it got there; and I had no idea how to have it
removed! There was only one alternative left!! I decided to leave my
story on the Internet. This decision became the best therapy "in the
world" for me!!

In my story I mentioned that I was willing to share some of the best
websites I had found about adhesions. Over a period of about three
years - as people from around the world read my story on the Internet -
I received more than 1,000 emails (Not all at once, thank goodness!!),
from people who had read my story!!

When I decided to "leave my story on the Internet", I have met some of
the nicest people in the world, literally speaking. So many expressed
their gratitude for my willingness to share information with them - and
a side benefit for me was that these POSTIVE MESSAGES enabled me to
block the full effect of pain messages from reaching my brain - a
wonderful example of the mind-body connection!!

I'm just sharing from my experience.

Helen D.

~ ~ ~ ~

At Sun, 17 Nov 2002, kann wrote:
>
>Once your story is "posted", it is no longer your private story. It beco es
>public
>domain. I think that need to be clarified to eveyone.
>karen

.

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