NO ONE OWNS THE RIGHTS TO THE ADHESION QUILT STORIES!! NO ONE!!
EACH PERSON, WHOSE STORY IS ON THE ADHESIONS QUILT, HAS THE RIGHT TO DO AS THEY WISH WITH THEIR STORY.
IF THEY WANT TO WRITE THEIR ARD STORY, THEY CAN.
IF THEY WANT TO ADD ON TO THEIR STORY, THEY CAN.
IF THEY WANT TO ADD THEIR PICTURE, THEY CAN.
IF THEY WANT TO PERMIT ANOTHER PERSON TO COPY THEIR STORY, THEY CAN.
IF THEY WANT TO REMOVE IT, THEY CAN.
HAVE I LEFT OUT ANYTHING????
X X X X
I know there are people on the Internet, who are out there to simply cause problems; in this case, problems at the expense of the International Adhesions Society.
KAREN, that person IS NOT YOU!!!
I have a pretty good idea who started the FALSE INFORMATION about the Adhesion Quilt stories being the property of either Synechion or Dr. Wiseman; and in fairness to the adhesion-sufferers who come to this website for support and education, I and others will be watchful.
PLEASE BELIEVE ME, KAREN, that person IS NOT YOU!!!
~ ~ ~ ~
At Sun, 17 Nov 2002, kann wrote:
>
>Helen,
>
> I think that is great! Sometimes something that can seem to be a negati e,
>can actually be a positive thing.
>I just think that everyone deserves to have this clarified. There is so uch
>confusion about "no one owns my story". We can all scream and shout that
>no one owns it, but when we post it, as is done on the quilt, we lose ou
>rights to it. Maybe the quilt page should add that note at the top of the
>page
>and this would not happen again.
>Personally, my daughter and I do not want to lose the rights to her stor ,
>so I have
>removed it from that page.
>I would also like to take this opportunity to say I will not argue issue .
>If I cannot
>be a blessing to others, then I know the way to the door. As I stated be ore
> God
>knows my heart, and that's good enough for me.
>
>karen
>
>-------Original Message-------
>
>From: adhesions@adhesions.org
>Date: Sunday, November 17, 2002 10:26:22 PM
>To: Multiple recipients of list ADHESIONS
>Subject: Re: clarification
>
>Karen, You are correct!!
>
>--
>
>In June 1998 I posted my story for the very first time at the
>Healthseek.com forum - which is no longer on the Internet as of January
>2001.
>
>In October 1998 - while I was in the process of doing research on one of
>the Search Engines, I couldn't believe my eyes!! - I SAW MY STORY ON THE
>INTERNET...for everyone to read!!!!
>
>I had no idea how it got there; and I had no idea how to have it
>removed! There was only one alternative left!! I decided to leave my
>story on the Internet. This decision became the best therapy "in the
>world" for me!!
>
>In my story I mentioned that I was willing to share some of the best
>websites I had found about adhesions. Over a period of about three
>years - as people from around the world read my story on the Internet -
>I received more than 1,000 emails (Not all at once, thank goodness!!),
>from people who had read my story!!
>
>When I decided to "leave my story on the Internet", I have met some of
>the nicest people in the world, literally speaking. So many expressed
>their gratitude for my willingness to share information with them - and
>a side benefit for me was that these POSTIVE MESSAGES enabled me to
>block the full effect of pain messages from reaching my brain - a
>wonderful example of the mind-body connection!!
>
>I'm just sharing from my experience.
>
>Helen D.
>
>~ ~ ~ ~
>
>At Sun, 17 Nov 2002, kann wrote:
>>
>>Once your story is "posted", it is no longer your private story. It bec es
>>public
>>domain. I think that need to be clarified to eveyone.
>>karen
>
>.
>