Re: adhesions suck and I am fed up!!!

From: Tonya Valpey (rainchild_35@hotmail.com)
Thu Dec 19 08:46:09 2002


Dear Nicky,

I have thought about all of that. If I went ahead with the hyst. then at least I would be eliminating one source of pain. I know that the adhesions would be worse, but I wouldn't be bleeding anymore. I've tried the patches and even bleed thru those. I have to be on a very low dose due to a brain tumor called Micro Adenoma. It sits on the pituitary gland that produces prolactin. It's very much hormone related and thus I can't take strong hormone meds. It could make it grow.

How are you feeling now since your surgery? Did you go thru menopause immediately or does it take some time? I am scared to experience that, and I feel for you that you are only 30.

Thank you for showing concern and caring. I will take your advise to heart to think about.

Tonya

>From: jason h rachal <arshal@juno.com>
>Reply-To: adhesions@adhesions.org
>To: Multiple recipients of list ADHESIONS
><adhesions@mail.medispecialty.com>
>Subject: Re: adhesions suck and I am fed up!!!
>Date: Wed, 18 Dec 2002 22:20:57 -0600
>
>TONYA,
>HI MY NAME IS NICKY AND I HAVE BEEN DEALING WITH ADHESIONS FOR EIGHT
>YEARS. I HAVE HAD TWO LAPR. SEVERE ADHESIONS AND THIS LAST ONE MY LEFT
>OVARY WAS TWISTED AROUND MY BOWEL AND EVERYTHING ELSE ATTACHED. 6WKS
>LATER I HAD A TOTAL HYST. I AM ONLY 30. MY PERIODS WERE TREMENDOUS. AND
>WHEN THE DR. WENT IN AND DID THE HYST. THE ADHESIONS WERE BACK IN FULL
>FORCE. HELEN SENT ME ALOT OF GOOD MATERIAL ALSO. I AM ONLY 4WKS POST OP.
>BUT I WOULD LIKE YOU LADIES TO KNOW THAT EVEN THOUGH THIS SURGERY AS WELL
>AS OTHER CAUSES MORE ADHESIONS THAT I FOUND OUT JUST RECENTLY THAT IF I
>WOULD NOT HAVE HAD IT DONE(THE HYST) THE ADHESIONS WOULD HAVE EVENTUALLY
>CAUSED SO MUCH DAMAGE TO MY FEMALE ORGANS AND THEY WOULD HAVE STOPPED
>WORKING AND I WOULD HAVE HAD TO HAVE THE HYST. ANYWAY. THIS IS NOT TO
>SCARE OR UPSET ANYONE JUST A LITTLE ADVICE TO THINK ABOUT.......
>On Wed, 18 Dec 2002 21:18:33 -0600 "Tonya Valpey"
><rainchild_35@hotmail.com> writes:
> > Thank you, Cathy, for the kind words. I am re-thinking the
> > hysterectomy. I
> > have talked to 3 different surgeons and they did tell me that taking
> > out my
> > uterus would cause even more adhesions and I would have even more
> > pain, if
> > that's possible. But since I'm having chronic pain from my periods
> > and
> > bleeding all the time, it was up to me to pick the lesser of the two
> > evils.
> > If I do, I'm damned, and if I don't, I'm damned!! I am besides
> > myself. I
> > can't wait for the spray-gel to come to the US ....maybe there is
> > hope for
> > all of us!!!!! I pray there is.
> >
> > I have read many of your stories and from other people and I tell
> > myself
> > that I have so much to be thankful for. Some of the women on this
> > site are
> > in way more pain than I, and have suffered many years longer than my
> > 4
> > years. I honor you women out there that are sharing with us your
> > life
> > experiences because without you all, I would still be thinking that
> > I was
> > the only one. We must educate others and bring these experiences to
> > our
> > doctors and tell them that this is real and not a figment of our
> > imagination. The doctors need to see us unite and meke a stand for
> > our
> > rights to be treated with dignity and respect and not told that it's
> > "just
> > in our heads". If we added up all the money that was spend in us
> > just going
> > from doctor to doctor to find a diagnosis ....that would be in the
> > millions,
> > I'm sure, and that money should have been spent on research in every
> >
> > country. We need to fight to be heard and possibly a cure found.
> >
> > Thank you for all your advise and moral support. Some days I just
> > feel like
> > giving up and I'm only 36. I am engaged to be married in June and I
> > found a
> > man that loves my body just the way it is....adhesions and all. He
> >
> > understands my pain and suffering and is so supportive also. He is
> > so glad
> > that I've found this site and is grateful for all of you too.
> >
> > I feel very uplifted today. Today has been almost a pain-free day
> > and I
> > feel very thankful.
> >
> > May your days be pain-free and your holidays blessed with lots of
> > love and
> > happiness.
> >
> > Tonya
> >
> > >From: anonymous@medispecialty.com (cathy:-)
> > >Reply-To: adhesions@adhesions.org
> > >To: Multiple recipients of list ADHESIONS
> > ><adhesions@mail.medispecialty.com>
> > >Subject: Re: adhesions suck and I am fed up!!!
> > >Date: Tue, 17 Dec 2002 21:30:08 -0600
> > >
> > >Boy, we hear ya, sister! The first thing that I would do is go back
> > to
> > >last week's postings and look for two from Helen Dynda. She put
> > in
> > >links to a couple of sites that have all of the various
> > alternatives to
> > >hysterectomies for the things that hysterectomies are usually used
> > for.
> > >
> > >I would focus very hard on making sure that every other possible
> > >treatment is exhausted before consenting to a hysterectomy. Having
> > one
> > >is going to make your adhesions worse. The ONLY hope you have of
> > that
> > >not happening (and even this is not a sure thing) is to delay the
> > >surgery until spray gel is approved in the US (expected in
> > spring-summer
> > >2003) and you can get an expert surgeon to do the surgery and lay
> > down
> > >the spray gel.
> > >
> > >Every time you have a thought something like, "I can't imagine
> > anything
> > >worse than spending the rest of my life using narcotics to
> > function,"
> > >tell yourself that you are suffering from a lack of imagination!
> > There
> > >are surely worse things, as any one of dozens of people here can
> > tell
> > >you. Because they don't have to IMAGINE worse things, they LIVE
> > worse
> > >things. Much worse things.
> > >
> > >At Tue, 17 Dec 2002, Tonya Fleming wrote:
> > > >
> > > >I am new to this forum. Until yesterday, I thought I was the
> > only one
> > > >that suffered from adhesions. I live in Idaho and the doctors
> > here are
> > > >"small time" so they seem to not know anything about them. I
> > have seen
> > > >many doctors and they all seem to think that the pain is either
> > in my
> > > >head or I'm "drug-seeking". I'm tired of not being taken serious
> > and
> > > >not being diagnosed correctly. I've finally moved to the biggest
> > city
> > > >in Idaho and finally I'm gaining some ground on them believing me
> > and
> > > >running tests. But now I've been referred to a chronic pain
> > center and
> > > >told that there is nothing that can be done for me. I'm scared
> > because
> > > >I need a partial hysterectomy and am scared to death that the
> > surgery
> > > >will screw me up even more. I've already had 4 surgeries to
> > remove the
> > > >adhesions to my liver, bowels and ovaries. Now, one more surgery
> > could
> > > >put me even in more chronic pain. Has anyone out there got any
> > > >suggestions on this? I am desperate to find help. I appreciate
> > this
> > > >site so much because until yesterday, I suffered in chronic pain
> > alone.
> > > >I don't know another sole in this world that has my problems.
> > Thank God
> > > >for you all.
> > > >
> > > >Merry Christmas to all
> > > >Tonya
> > > >
> > > >--
> > > >Tonya Fleming
> > > >
> > >
> > >--
> > >cathy :-)
> > >
> > http://www.adhesions.org/forums/listcmds.htm
> >

> > http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963
> >
> > http://www.adhesions.org/forums/listcmds.htm
> >
>


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